Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Llewellyn King interviews Dr. Lipkin: ME/CFS Alert, Episode 95

Discussion in 'General ME/CFS News' started by Ember, Dec 11, 2017.

  1. Ember

    Ember Senior Member

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    Dr. Lipkin comments on his involvement and on funding levels:
     
  2. bertiedog

    bertiedog Senior Member

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    South East England, UK
    Thanks for putting this video up, it sounded very similar to Mady Hornig's one and both are very encouraging but it does sound like drugs to treat the condition and available to doctors are still a long way off (not sure if they still work together?)

    Personally I hope that at least they can come up with some recommendations regarding the gut in the not too distant future because we could probably act on that instead of the trial and error we have to do at the moment.

    Pam
     
  3. RYO

    RYO Senior Member

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    I think we should be encouraged that ME / CFS research is getting of the ground but the sober reality is that there is a tremendous need for disease advocacy and fund raising.
     
    Dolphin, RL_sparky and Ember like this.
  4. Ember

    Ember Senior Member

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    Dr. Lipin’s projection seems to confirm Dr. Klimas’ comments here:
    She adds:
     
    Solstice likes this.
  5. RYO

    RYO Senior Member

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    Dr Lipkin's comments about Hutchins foundation are interesting. It appears their resources have been instrumental in positive developments for ME/CFS field. Are the Hutchins family from Massachusetts? Does this also partly explain strong advocacy group based in MA and the support from MA legislatures?
     

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