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Jen Brea is a phenomenon. After working as a freelance writer in China and Africa, she enrolled for a PhD at Harvard in political science but, four years ago, got sick. She had a fever that lasted ten days.
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Llewellyn King interviews Dr. Chia (Part 4): ME/CFS Alert Episode 41

Discussion in 'General ME/CFS News' started by Ember, Feb 19, 2013.

  1. Ember

    Ember Senior Member

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  2. ballard

    ballard Senior Member

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    Llewellyn King should be nominated for a humanitarian award. Thanks to him and all that he does for us. :balloons:
     
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  3. Ember

    Ember Senior Member

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    Chris Cairns (CFS Patient Advocate) asks:
     
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  4. SOC

    SOC Senior Member

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    My best guess is that it's a funding issue. They have very limited funds, so they research what they can get funding for. They are most likely to get funding for research in the area of expertise of the principle investigators, which is not, at present, enteroviruses. We need to get an high level enterovirus researcher interested and on one of those teams.
     
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  5. Gemini

    Gemini Senior Member

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    Yes an enterovirus researcher collaborating with research gastroenterologists who perform endoscopies and have tissue banks available for testing. I agree with Dr. Chia that his research needs to be replicated, and hopefully the advocates working on the FDA's upcoming meeting will put Dr. Chia's request for enterovirus antivirials from drug companies high on their priority list.
     
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  6. Ember

    Ember Senior Member

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    Or Dr. Ian Lipkin? Chris writes, "The most likely person to pursue the enteroviral connection in ME/CFS is Ian Lipkin at Columbia. Lipkin has an inquisitive nature. I would be surprised if he is doing tissue biopsies, which seems the way to go."
     
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  7. A lot of important research into ME was done before the invention of CFS.
     
  8. Ember

    Ember Senior Member

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    Is this what you're referring to?

    “Myalgic encephalomyelitis – a persistent enteroviral infection?” (http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2429637/pdf/postmedj00163-0031.pdf)
     
  9. ukxmrv

    ukxmrv Senior Member

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    London
    Dr Mowbray at St Mary's released a entroviral test onto the NHS in the UK for ME patients. I'm not sure who he was working with then. There was a group called the persistant entroviral research group (or something like that). I had the test in the late 80's. At that time the only treatment they had was Amantadine.
    Sadly, in the UK no one would finance this work and it dried up. Most of the doctors are dead or retired now.
     
  10. Ember

    Ember Senior Member

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    A warning was sounded in 1989: S. Wessely, "Myalgic encephalomyelitis - a warning: discussion paper" (http://www.simonwessely.com/Downloads/Publications/CFS/2.pdf). Interesting read!

    Here's a bit of history (1987):
     
  11. vli

    vli

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    Yeah. Frankly, I would've preferred the $1m anon donation that Mt Sinai received be used on investigating enteroviruses rather than PEM.
     
  12. Sparrowhawk

    Sparrowhawk Senior Member

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    West Coast USA
    I watched all four segments, excellent information. Very thought provoking. So many potential facets to this condition.
     

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