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A Little Poisoning Along the Road to ME/CFS
Looking at my symptoms, many of which are far less these days and some are gone, it would be easy to figure that I'd just been dealing with some heavy-duty menopausal issues.
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Living with the unexplained: coping, distress, and depression: CFS +/or FMS vs autoimmune disorder

Discussion in 'Latest ME/CFS Research' started by Dolphin, Mar 24, 2014.

  1. Dolphin

    Dolphin Senior Member

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    Possibly not the most exciting study ever but I've read it and thought I'd post a little on or from it


    *I gave each sentence its own paragraph
     
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  2. Dolphin

    Dolphin Senior Member

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    They mention looking for people in support centres and online support groups across Canada. I'm guessing this means Phoenix Rising wasn't a source, but maybe somebody can remember otherwise?
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    Here's more specific info on the diagnoses of those who took part:
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    Although it wasn't clear to me from the introduction, by the end I was inclined to think the authors were sympathetic to ME/CFS and not inclined to see the condition as primarily behavioural e.g.
     
    Last edited: Mar 24, 2014
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  3. Dolphin

    Dolphin Senior Member

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    I thought the conclusion they came through in the last sentence was interesting enough:

     
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  4. Dolphin

    Dolphin Senior Member

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    This was a measure they used:

    The CFS/FM group had statistically higher/worse levels on all four measures (and the total score) compared to healthy controls.

    The CFS/FM group had statistically higher/worse levels on all four measures (and the total score) compared to the autoimmune patients, and this was statistically higher/worse for "distancing" and "minimizing". Probably with a bigger sample, the result would have been statistically significant for the other two.
     
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  5. Dolphin

    Dolphin Senior Member

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    (I spaced out this paragraph to make it easier to read)
    The odd thing they found was that with increasing use of problem-focused coping, in the CFS/FMS group, perceived distress increased very slightly (slope=0.02), while for autoimmune disorders it decreased (slope=-0.43) and for healthies, it decreased a small bit more again.

    Similarly the results for depression were different with regard to problem-focused coping: with increasing use of problem-focused coping, in the CFS/FMS group, depression increased slightly (slope=0.84), while for autoimmune disorders it decreased (slope=-6.20) and for healthies, it also decreased although not quite as severely.

    This is how they discussed this bit:
     
    Last edited: Mar 24, 2014
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  6. Esther12

    Esther12 Senior Member

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    While not an interpretation of the 'unsupportive social interactions' data that there's any good evidence to support, it is possible that those with CFS/FMS just tend to complain more, or expect unreasonably more from those around them. It is just a self-report questionnaire.

    Although I don't see this sort of research as particularly enlightening, this piece sounded about as well meaning and helpful as we could hope for. Thanks D.
     
    Last edited: Mar 24, 2014
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  7. Snow Leopard

    Snow Leopard Senior Member

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    While not the most exciting paper, I am glad that there are at least a few willing to take on the social side, and examine coping styles and distress in depth rather than simply claiming the distress is due to bad coping styles like some authors we know...
     
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  8. N.A.Wright

    N.A.Wright Guest

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    This sort of study would benefit from having gender comparison. It is quite possible that men and women experience quite different positive/negative interactions in differing social contexts. Research, particularly social research that deals with ME/CFS solely as a 'women's disease' is missing valuable reference and comparison points.
     
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