The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Living on empty -- new article featuring Whitney Dafoe...

Discussion in 'General ME/CFS News' started by dannybex, Jul 10, 2015.

  1. dannybex

    dannybex Senior Member

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    Many of you have read about Whitney Dafoe and his severe case of ME/CFS.

    This new article (July 10th) talks about his current state (and also other patients). The author does a good job IMO describing the complexities, the severe frustration and hell that many of us experience.

    My only gripe is that she slips into using the term 'chronic fatigue' too often. Other than that, it's well written.

    I hope you'll read it and also leave a comment if possible.

    http://www.paloaltoonline.com/print/story/2015/07/10/living-on-empty

    And, if anyone knows or has contact with his family, I'm curious if they were able to find another doctor to insert the feeding tube that one doctor refused to help them with? I would hope so…it seems like a matter of life or death, yet the 'gastroenterologist who would perform the surgery refused. Instead, he told Janet Dafoe that her son needed acute psychiatric care.'

    What century are we living in?

    That doctor should be sued to the ends of the earth.
     
    Last edited: Jul 11, 2015
  2. Bob

    Bob

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    The above article seems to be part of a feature on ME/CFS published in Palo Alto online. It has published a series of articles in the same issue. See links below .

    Also, don't miss their excellent video, about Whitney Dafoe, his parents, and other ME patients, here:
    http://forums.phoenixrising.me/inde...ss-stories-of-chronic-fatigue-syndrome.38653/

    Living on empty
    http://www.paloaltoonline.com/print/story/2015/07/10/living-on-empty

    Chronic fatigue syndrome saps its victims, but new research may find the cause
    http://www.paloaltoonline.com/news/...s-victims-but-new-research-may-find-the-cause

    Unraveling the mystery of chronic fatigue syndrome
    http://paloaltoonline.com/news/2015/07/10/unraveling-the-mystery-of-chronic-fatigue-syndrome

    Whitney Dafoe: 'When I crash'
    http://paloaltoonline.com/news/2015/07/10/whitney-dafoe-when-i-crash
     
    Last edited: Jul 12, 2015
  3. Bob

    Bob

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  4. Bob

    Bob

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    Last edited: Jul 11, 2015
  5. ahmo

    ahmo Senior Member

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    I posted a comment. I can only express simple thoughts, in simple words. thanks dannybex.
     
    Bob, dannybex and Never Give Up like this.
  6. Gingergrrl

    Gingergrrl Senior Member

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    Thanks @Bob for putting this all together so people can easily read it.
     

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