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Live tweeting from Invest in ME Biomedical Research Colloquium 2016

Discussion in 'General ME/CFS News' started by Sasha, Jun 1, 2016.

  1. Sasha

    Sasha Fine, thank you

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  2. Sasha

    Sasha Fine, thank you

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    I must admit it's all quite tight-lipped so far, though! The colloquium is not open to the public (and will not be recorded) and the tweeting at the moment seems to be more a matter of announcing when people take the podium.

    Here's the programme (scroll down):

    http://www.investinme.eu/BRMEC Colloquiums.shtml#BRMEC6

    Hope @Jonathan Edwards might be able to give us a sense of things overall... :)
     
  3. Bob

    Bob

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    Thanks Sasha :thumbsup: The list of presentations, over the two days, is fascinating. It makes me realise that there's a lot more research going on behind the scenes than we are aware of. I'd love to be at the event.
     
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  4. Bob

    Bob

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  5. Bob

    Bob

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  6. Bob

    Bob

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  7. A.B.

    A.B. Senior Member

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    Do you feel it? The growing sensation that patients, researchers and decision makers are reaching the level of organization needed to find answers and make progress.
     
  8. Simon

    Simon

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    Yes, guess we won't see much action til the conference itself on Friday. Also, IiME are promsing conference highlights at the weekend, which is pretty impressive:

     
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  9. Simon

    Simon

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    First day of colloquium (today, Weds 1 June)

    Diagnosis (clinical) – Patient Stratification
    (including the following)

    Edit
    - Angela Vincent — Emeritus professor of Neuroimmunology at Oxford, has been involved in conferences before (can't recall the details)



    Sample Standardisation SOPs for Research (including the following)


    Biomarkers: 1 Data

    Edit Riley is Professor of Infectious Disease Immunology at the London School of Hygeine andTropical Medicine, and this is presumably reporting on the NIH-funded study linked to the UK biobank (£1m grant for looking at virology, immunology and gene expression of mecfs vs healthy and MS controls - includes recruiting a total of 300 new people to the biobank)

    Biomarkers: 2 Imaging

    Biomarkers: 3 Mitochondria
    Edit More on Mike Murphy, who's new to me: Mike Murphy (Univ Cambridge) | MRC Mitochondrial Biology Unit
    Targeting therapeutic and probe molecules to mitochondria, mitochondrial radical production and redox signalling

    Adjourn


    Wish I was there too
     
    Last edited: Jun 2, 2016
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  10. Bob

    Bob

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  11. Sasha

    Sasha Fine, thank you

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    Yesterday:

     
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  12. lnester7

    lnester7 Seven

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    Why so little update going on. This is so uncharacteristic of CFS events. Any gag on guests???
     
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  13. Sasha

    Sasha Fine, thank you

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    I expect there is a gag on guests - these two days (the colloquium) are closed sessions. The conference on Friday is an open session (although even there, there is likely to be some embargoed material).
     
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  14. mango

    mango Senior Member

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    Yes, one of the guests, who was there today, told me that they have been given very strict instructions not to share any information at all. Same reason as usual: a lot of what has been talked about hasn't been published yet.
     
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  15. Sasha

    Sasha Fine, thank you

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    Although this is frustrating for us, it's good to know that there's a lot in the publication pipeline and that the researchers are nevertheless happy to discuss their research with each other!
     
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  16. Tuha

    Tuha Senior Member

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    It seems that there are a lot of subjects/talkes about mitochondria
     
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  17. Bob

    Bob

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    If I remember correctly, she gave a presentation at last year's conference about autoimmunity. I found it difficult to watch because she was discussing severe cases of autoimmune diseases.
     
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  18. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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  19. Simon

    Simon

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    Agenda for Thursday 1 June

    What the researchers will be discussing, but as yesterday we presumably won't hear anything, action strarts tomorrow at the main conferencce

    BRMEC6 - Day 2

    Summary Day 1 - Objectives of DAY 2 Dr Ian Gibson, UEA, UK Professor Jonathan Edwards, UCL, UK


    Biomarkers: 4 Antibodies
    (including the following)



    Biomarkers: 5 Big Data Updates

    Would particularly like to listen in to that session!


    Biomarkers: 6 Phenotypes
    (including the following)

    Tom Wileman/Simon Carding are supported by IiME grants


    Systems Biology
    (including the following)

    A Systems Biology approach Dr Travis Craddock, Nova Southeastern University, Miami, USA

    This is Nancy Klimas's lab, presumably reporting on the kind of work Gordon Broderick has done in the past


    Novel Treatments
    (including the following)


    Novel Treatments - Immunoadsorption Professor Carmen Scheibenbogen, Charite Berlin, Germany
    Medical Education - BMJ Update Professor James Baraniuk, Georgetown University, USA

    SUMMARY of BRMEC6 - Objectives Status Dr Ian Gibson Professor Jonathan Edwards
    ends
     
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  20. Bob

    Bob

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