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Live tweeting from IiME conference, Friday 3 June 2016

BurnA

BurnA

Senior Member
Messages
2,087
Been hesitant to do Rituxamib because we have found almost all CFS/ME patients have abnormally low CD19/CD20 cells, so not sure if want to lower them even more??
Click to expand...

Is this a case of another Dr. not understanding rituximab ?

I am trying to make sense of this argument - it doesn't seem logical. Either RTX is a valid treatment in which case b cell depletion is required or it isn't a valid treatment.
 
Jonathan Edwards

Jonathan Edwards

"Gibberish"
Messages
5,256
BurnA said:
Is this a case of another Dr. not understanding rituximab ?

I am trying to make sense of this argument - it doesn't seem logical. Either RTX is a valid treatment in which case b cell depletion is required or it isn't a valid treatment.
Click to expand...

Quite a number of groups have now looked at CD19/20+ cells in ME/CFS including Fluge and Mella, Bansal, Blanco, Griffiths, UCL, Mikovits and historically probably a dozen others and everyone finds them normal. Not sure how this chap finds them all low - which he has not published. Certainly the comment sounds to reflect a lack of understanding of B cell targeted therapy.
 
B

Bob

Senior Member
Messages
16,455
Location
England (south coast)
Here's a long report of the conference by Dr Ros Vallings:
http://www.investinme.eu/IIMEC11.shtml#report
PDF:
http://www.investinme.eu/Documents/IIMEC11/IIMEC11 Conference Report.pdf

And a very brief report of the conference by the Solve ME/CFS Initiative's Dr. Zaher Nahle:
http://solvecfs.org/june-2016-zaher-letter
http://solvecfs.org/report-from-the-invest-in-me-research-conference-in-london

And of course, make sure you haven't missed our very own Mark Berry's excellent detailed report...
http://forums.phoenixrising.me/inde...in-me-international-me-conference-2016.45189/
 
B

Bob

Senior Member
Messages
16,455
Location
England (south coast)
There are so many interesting names on the DVDs, it's difficult to know where to start. Ron is the last presentation. Do I start with an introductory presentation, or dive straight in? Decisions, decisions.

There's a superb selection of presentations...

DVD 1
Mrs Kjersti Krisner
Dr Ian Gibson
Dr Vicky Whittemore
Prof Olli Polo

DVD 2
Prof Carmen Scheibenbogen
Dr Jo Cambridge
Mr Fane Mensah
Prof Tom Wileman

DVD 3
Prof Don Staines
Prof Simon Carding
Associate Prof Mady Hornig
Prof Maureen Hanson

DVD 4
Prof Elisa Oltra
Prof James Baraniuk
Prof Ron Davis
 
MeSci

MeSci

ME/CFS since 1995; activity level 6?
Messages
8,231
Location
Cornwall, UK
John Mac said:
The conference gets a mention today on a New Zealand health website.

"Dr Rosamund Vallings, of Howick Health and Medical Centre, in Auckland, attended the conference in June and has returned home excited about the prospects of various international research paths."

http://www.stuff.co.nz/national/hea...s-conference-airs-exciting-research-prospects
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This isn't right, is it?

"Some people will be recovered in six months and others in two-three years, which is the average recovery time."
 
A

acer2000

Senior Member
Messages
818
AndyPR said:
No, not this year and no guarantee of when there might be a stream. As I understand it, it comes down to the small number of volunteers who run Invest in Me and what they are currently capable of doing - I believe a streaming version is on their to-do-maybe-one-day list.
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Thats too bad. It would be much easier for some of us if they offered a stream. Even after the conference, for the same cost of the DVD. It would save them the costs of making the DVD, and would open the audience to more people. Many conferences do this and there are sites that specialize in hosting, billing, and streaming such media.
 
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