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Live tweeting from IiME conference, Friday 3 June 2016

Discussion in 'General ME/CFS News' started by Sasha, Jun 2, 2016.

  1. Sasha

    Sasha Fine, thank you

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    Hoping to get some interesting stuff tomorrow! :woot::woot::woot:

    @Mark said he's going to be tweeting using Phoenix Rising's Twitter account:

    https://twitter.com/aboutmecfs

    Here's IiME's own Twitter account:

    https://twitter.com/Invest_in_ME

    ...and we should be able to find other tweets with the conference hashtag:

    https://twitter.com/hashtag/IIMEC11?src=hash

    Here's the programme:

    08.55 IiME - Welcome to IIMEC11

    09:00 Dr Ian Gibson - 10 years – Looking Back, Looking Forward

    09:15 Dr Vicky Whittemore - Keynote Speech: NIH Research into ME

    09:35 Professor Olli Polo - Clinical Diagnosis of Myalgic Encephalomyelitis

    10:00 Professor Carmen Scheibenbogen - Autoantibodies to adrenergic and acetylcholine receptors in CFS/ME

    10.30 Break

    11:00 Dr Jo Cambridge - Immunoregulation in patients with ME

    11.25 Professor Tom Wileman - Gut Virome in ME

    11:50 Dr Don Staines - Update from NCNED: Receptor identification and intracellular signalling

    12.25 Professor Simon Carding - European ME Research Group

    12.45 Lunch

    13.45 Professor Mady Hornig - Pathogen Discovery in ME

    14:25 Professor Maureen Hanson - The Search for Biomarkers for Myalgic Encephalomyelitis

    14:55 Professor Elisa Oltra - Molecular Biomarkers of Myalgic Encephalomyelitis

    15.20 Break

    15:50 Professor James Baraniuk - Exercise testing and orthostatic tachycardia

    16.20 Professor Ron Davis - Big Data Approach: Severely ill ME Patient Cohort

    17.00 Dr Ian Gibson - Plenary Session Status of ME Research

    17.30 Adjourn​
     
    Last edited: Jun 3, 2016
  2. Sasha

    Sasha Fine, thank you

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    MEMum, sue la-la, aimossy and 2 others like this.
  3. NL93

    NL93 Senior Member

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    Exciting:woot:
     
    Comet, Daisymay, Bob and 2 others like this.
  4. Bob

    Bob

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    Ben Howell, Comet, Kati and 2 others like this.
  5. Sasha

    Sasha Fine, thank you

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    MEMum, Bob and Comet like this.
  6. Gingergrrl

    Gingergrrl Senior Member

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    Sounds like a phenomenal conference! I don't know how to use Twitter but will read about it as you guys discuss it in here. Am interested in Prof Schiebenbogen's work with autoantibodies and recent plasmapheresis & IVIG study. I think this is the subgroup that I belong to as best I can figure out!
     
    justy and Bob like this.
  7. Kati

    Kati Patient in training

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    It starts in less than 3 hours. Good morning London! :nerd::nerd::nerd:
    To all attendees, do make sure you take care of yourself today.
     
    MEMum, Bob and BurnA like this.
  8. hixxy

    hixxy Senior Member

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    Will updates be posted here or only on Twitter?
     
  9. Kina

    Kina Admin Support Staff

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    I will be tweeting from the IIME conference. I will add updates on this thread if I have time.
     
    ukxmrv, MEMum, Jennifer J and 18 others like this.
  10. Kati

    Kati Patient in training

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    The conference has started:

    Tweet from @aboutmecfs : #IIMEC11 First up Dr. Ian Gibson - Conference chair
     
    Bob likes this.
  11. Kati

    Kati Patient in training

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    Hi Kina, do make sure all your tweets contain #IIMEC11 so we can find them all ! Thanks and enjoy the conference!
     
    Daisymay, Simon and Kina like this.
  12. Kina

    Kina Admin Support Staff

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    Dr Gibson is talking about the new venue right now -- more friendly to people with ME.
     
    mango, AndyPR, Bob and 3 others like this.
  13. Kina

    Kina Admin Support Staff

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    NHS doesn't even officially record # of ME cases in the UK -- Gibson says this is disrespectful. Talking about how it's appalling that ME isn't seriously discussed worldwide. Research collaboration among countries is growing.
     
    justy, Mel9, Woolie and 13 others like this.
  14. Kina

    Kina Admin Support Staff

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    Vicky Whittemore speaking now. Giving a brief history of her research and what the NIH does. Describing how NIH has basically ignored ME in the past. Not acceptable. Dr Navi now in charge of a study -- 40 individuals -- analyze every thing. Then expanding the study -- other patients, other institutions.
     
    MEMum, Mel9, Woolie and 12 others like this.
  15. Kina

    Kina Admin Support Staff

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    It's nice to hear somebody from the NIH saying they have not taken us seriously for years -- now 24 agencies involved, research money, collaboration etc. Whittemore -- funding over the years has been pathetic. NIH is requesting information how money would be best spent, priorities etc.
     
    MEMum, justy, Jennifer J and 19 others like this.
  16. Kina

    Kina Admin Support Staff

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    simeyss, Kati, *GG* and 8 others like this.
  17. Sasha

    Sasha Fine, thank you

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    Thanks, @Kina, this is terrific! I didn't know you'd be at the conference. :thumbsup:
     
    MEMum, simeyss, Comet and 3 others like this.
  18. Sasha

    Sasha Fine, thank you

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    You don't need to know anything about Twitter (fortunately for me!) or need a Twitter account. If you just click on those links I gave you, you'll see all the posts on those people's Twitter feeds and if you click on the hashtag link, you'll get what everyone is posting who has included the conference hashtag (identifier) in their Twitter post.
     
    shannah, aimossy and Bob like this.
  19. Kina

    Kina Admin Support Staff

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    Professor Olli Polo now talking about symptoms, difficulty of diagnosing, how Drs don't take us seriously, that we need biomarkers. Focus on physical signs.
     
    panckage, Mel9, Woolie and 8 others like this.
  20. Sasha

    Sasha Fine, thank you

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    MEMum, Woolie and Bob like this.

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