Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Live feed of 12/13 January CFSAC Meeting

Discussion in 'Upcoming ME/CFS Events' started by Sasha, Jan 11, 2017.

  1. Sasha

    Sasha Fine, thank you

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    Jennifer J, mango, AndyPR and 2 others like this.
  2. Sasha

    Sasha Fine, thank you

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    Bump! This starts today.
     
    mango, AndyPR, Joh and 1 other person like this.
  3. Sasha

    Sasha Fine, thank you

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    Bump! Starts 5pm UK time (four hours from now).
     
    AndyPR likes this.
  4. lnester7

    lnester7 Seven

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    USA
  5. Nielk

    Nielk

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    It seems like it is a teleconference only. This would be the first time that an in-person meeting would not be videocast. They didn't warn us about this - but who is surprised?
     
  6. Sasha

    Sasha Fine, thank you

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    Should be starting now...
     
  7. Nielk

    Nielk

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    Running late, I guess. Didn't start yet.
     
  8. Denise

    Denise Senior Member

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    CFSAC - If the meeting is teleconference (and slides) and if one only has one phone, how can one listen if one has to have a phone line available for public comment?
     
    usedtobeperkytina and Nielk like this.
  9. Kati

    Kati Patient in training

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    I can't watch for my tablet. How disapponting, again. Accessibility!!!! Too sick to be sitting at desktop!
     
    MEMum likes this.
  10. Rrrr

    Rrrr Senior Member

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    it has started. i can't get on the web-based connection. so i'm on the phone listening in.
     
  11. Nielk

    Nielk

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    Just started. The audio is through the phone. On the computer, are only slides. There is no visual of the meeting.
     
  12. Sasha

    Sasha Fine, thank you

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    I'm going to have to wait for this to go up on YouTube. :(
     
  13. Nielk

    Nielk

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    They need to add five new members - which they are working on.
     
    actup likes this.
  14. Nielk

    Nielk

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    It won't go on Youtube. It is audio only.
     
    actup likes this.
  15. Nielk

    Nielk

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    There is nothing to watch - except the slides.
     
    actup likes this.
  16. Nielk

    Nielk

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    Exactly.
     
    actup likes this.
  17. Nielk

    Nielk

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    This is so confusing - because I have no idea who is talking!!! They see each other - but we don't see them. This is ridiculous.
     
  18. Kati

    Kati Patient in training

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    They don't seem to even have a quorum. They are 6 or 7 in the room. 4 needs to approve for motions to pass
     
    ukxmrv likes this.
  19. Nielk

    Nielk

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    They only have 6 voting members present for the meeting. They are discussing whether they have enough for quorum. They decided yes - because right now there are only 7 active voting members.
     
  20. Nielk

    Nielk

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    Belay - ex officio of CDC speaking about CDC update. Last one was in May (2016 had only one meeting!)
     

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