Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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List of media stories on tribunal PACE data release ruling

Discussion in 'General ME/CFS News' started by Sasha, Aug 19, 2016.

  1. Sasha

    Sasha Fine, thank you

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    I think we should have a list!

    I'm aware of a story in Swedish medical news magazine Dagens Medicin.

    Google Translate version:

    Read the rest on the page.

    Remember that we shouldn't reproduce whole articles here - just a few paras and a link. We should read the full stories on their own websites to reward them for their coverage with traffic.
     
    sue la-la, Woolie, Kati and 11 others like this.
  2. Sasha

    Sasha Fine, thank you

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    Retraction Watch:

    Read the rest:

    http://retractionwatch.com/2016/08/...controversial-chronic-fatigue-syndrome-study/
     
    Mary, sue la-la, Woolie and 10 others like this.
  3. Kalliope

    Kalliope Senior Member

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    Good idea @Sasha !

    Undark has mentioned the tribunal ruling in a roundup on science.

    Never heard of them before, (I spotted this in a tweet from David Tuller) but in "about us" Undark says:

    Undark is an editorially independent, foundation-supported digital publication of the Knight Science Journalism Program, which is headquartered at the Massachusetts Institute of Technology in Cambridge. Administratively, KSJ resides under the institute’s Program in Science, Technology & Society, a division of the School of Humanities, Arts & Social Sciences
     
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  4. charles shepherd

    charles shepherd Senior Member

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    A press release on the FOI tribunal judgement has been prepared and is being sent out to health journalists - so there should be more media coverage to come

    I have been talking to a BBC journalist this week but this item would form part of a more thorough 'work in progress' documentary on controversies and uncertainties surrounding ME/CFS
     
  5. mango

    mango Senior Member

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    Sounds great, @charles shepherd! Any chance you could send a copy of the press release to the Swedish journalist mentioned in Sashas post above?
     
    Last edited: Aug 19, 2016
    actup, Johannawj and Kalliope like this.
  6. charles shepherd

    charles shepherd Senior Member

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    Kati and Valentijn like this.
  7. Sasha

    Sasha Fine, thank you

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    Can we keep this thread for actual published stories, please, and discussion of where to send the press release to the other thread that Charles Shepherd linked to? Just so people can easily find the stories?

    Thanks! :thumbsup:
     
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  8. Skippa

    Skippa Senior Member

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    Alem Matthees should get a slot on BBC Breakfast!

    (Eta Sorry @Sasha I only skimmed your above post and rather ignorantly posted this, just let me know and I'll delete it if it takes up too much space).
     
    Last edited: Aug 19, 2016
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  9. Cheshire

    Cheshire Senior Member

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    Chronic Fatigue Syndrome: tribunal orders data from controversial trial to be released

    https://inews.co.uk/essentials/news/health/tribunal-chronic-fatigue-syndrome-data-released/


    Chronic Fatigue Syndrome sufferers have just had a small victory



    https://inews.co.uk/opinion/chronic-fatigue-syndrome-sufferers-just-small-victory/
     
    Mary, MeSci, actup and 21 others like this.
  10. wdb

    wdb Senior Member

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    Also tweeted to 82k followers

     
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  11. snowathlete

    snowathlete

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    TWO articles in iNews about it. Cool. Well done iNews.

    Make sure you click through on both links and read the full articles.
     
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  12. AndyPR

    AndyPR Cookies for Tired Sam

    Lol, the headline image used is this
    GettyImages-460492842-760x507.jpg
    which then has this comment underneath
    Looks like the writer had input into the images used this time :thumbsup:
     
    Mary, sue la-la, Solstice and 15 others like this.
  13. worldbackwards

    worldbackwards A unique snowflake

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    Earth
     
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  14. user9876

    user9876 Senior Member

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    Mary, Comet, sue la-la and 18 others like this.
  15. snowathlete

    snowathlete

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    Mary, PennyIA, Comet and 16 others like this.
  16. Sasha

    Sasha Fine, thank you

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    Six lines, angels, boffins, balloons - nice signature, @snowathlete!
     
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  17. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    wowwee. Yes, definitely the best concise summary of PACE issues I have seen to date.

    Wondering if this should get its own thread? It is on the data release, but also sums up PACE more broadly...and it is just really good and we should share it widely :)
     
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  18. snowathlete

    snowathlete

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    I don't think I can take credit for it. I think I copied it off someone else. Yours is looking pretty tempting too, I have to say!
     
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  19. Bob

    Bob

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    Just for you (and everyone else)...
    New thread courtesy of @Dolphin:
    http://forums.phoenixrising.me/inde...n-pace-trial-august-19-well-referenced.46289/
     
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  20. Cheshire

    Cheshire Senior Member

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    BruceInOz, Mary, Woolie and 9 others like this.

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