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List of ME/CFS charities as potential Chase nominees?

Discussion in 'Fundraising' started by Merry, Jun 4, 2012.

  1. frenchtulip

    frenchtulip Senior Member

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    The problem seems to have resolved itself, Merry. Thanks.
     
  2. WillowJ

    WillowJ Senior Member

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    Thanks, Merry. I had looked under Stockton, too, and I couldn't find anything relevant to us (some other charities, but not any of ours). In Guidestar I can only find University of the Pacific generally, and a couple of funds which don't fill out separate paperwork and don't seem to be related to PFL anyway. I'll write PFL and ask whether they have another name or city.
     
  3. Merry

    Merry Senior Member

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    Yesterday, I was trying to figure out why another organization (besides Pacific Fatigue Lab) didn't come up in a search in Chase's database. The organization was in Guidestar, but when I studied its Guidestar entry, I saw that it was flagged as not having provided necessary documentation in several areas including proof that the organization had filed a 990 form with the IRS.
     
  4. frenchtulip

    frenchtulip Senior Member

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    Merry, Did you find Neuro-Immune Disease Alliance at Chase? Also, I noticed Chronic Fatigue Syndrome Fibromyalgia & Chemical Sensitivity Coalition of Chicago (CFCCC) signed the letter a number of ME/CFS organizations is sending to Sec. Sebelius. I think they were at guidestar last year, but I can't find them this year. Would you please check for them at Chase? Thanks so much!
    Chronic Fatigue Syndrome, Fibromyal
     
  5. Merry

    Merry Senior Member

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    Hi, frenchtulip. Yes, Neuro-Immune Disease Alliance is at Chase as is the second organization although it is listed simply as Chronic Fatigue Syndrome Fibromyalgia & Chemical Sensitivit. The address is Willmette, Illinois, and I see that Wilmette is a suburb of Chicago.

    Also at Chase is a Neuro-Immune Dysfunction at Tarzana, California and the Neuro-Immune Dysfunction Syndromes Advisory Medical Board, address Black River, New York.

    Perhaps fifteen fibromyalgia groups, beyond the three (?) on the list of small organizations you emailed me yesterday, are listed at Chase. Would you like for me to email you a list of the fibromyalgia organizations to look over?

    Should I wait a few days for opinions or should I start nominating the small organizations?

    Did the person you know who works for JP Morgan nominate Rocky Mountain?

    18 days left in the nomination period.

    Thank you.
     
  6. Merry

    Merry Senior Member

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    Now I remember that the Neuro-Immune Alliance is one I already nominated. Double-checked just now at Chase.
     
  7. Merry

    Merry Senior Member

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    Here's the list of the organizations I've nominated so far:

    ME/CFS large organizations nominated for Chase Giving 2012

    Rocky Mountain CFS/ME and FM Association

    Phoenix Rising an NEID Corporation
    CFIDS & Fibromyalgia Self-Help Program

    New Jersey Chronic Fatigue Syndrome Association, Inc. (NJCFSA)

    Wisconsin ME/CFS Association, Inc.

    Enterovirus Foundation

    Connecticut CFIDS & FM Association, Inc.

    Chronic Fatigue Syndrome/Fibromyalgia Organization of Georgia (CFOG)

    Organization for Fatigue and Fibromyalgia Education and Research (OFFER)

    RESCIND

    Neuro-Immune Disease Alliance (NIDA)

    Dr. A. Martin Lerner Chronic Fatigue Syndrome Foundation

    Edit: HHV-6 Foundation also
     
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  8. WillowJ

    WillowJ Senior Member

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    it's been done
     
    Merry likes this.
  9. Merry

    Merry Senior Member

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    Last evening when I posted the list of large ME/CFS organizations nominated, I forgot that I'd also nominated HHV-6 Foundation. I've edited the list above to add this organization.
     
    WillowJ likes this.
  10. frenchtulip

    frenchtulip Senior Member

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    Thank you so much for doing all of this, Merry! What a huge help! And Rocky Mountain has been nominated again. So we have 13 nominated right now. Great!

    May I copy the list and put it in the ME ME/CFS Fundraising Group on Facebook? I tried to copy the URL and it included your name and photo, so I thought you might not want that.
     
  11. Merry

    Merry Senior Member

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    Yes, frenchtulip, of course you may copy the list. I had made myself a list and was planning to email it to you. Oh, a PR member asked me for a list last evening, so I hurried up and put together the list to post in a Conversation to him and then posted the list in this thread. But I can't think of a reason why posting the URL for the Facebook ME/CFS Fundraising group would be a problem. Whatever you want.

    I'll get started nominating from the small group list.

    You are welcome, and my thanks to you.
     
  12. Merry

    Merry Senior Member

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    ME/CFS small organizations nominated for Chase Giving contest 2012

    Blackhills Chronic Fatigue CFS and Fibromyalgia Syndrome FMS Support Group

    Central Virginia Chronic Fatigue Syndrome

    American Fibromyalgia Syndrome Association, Inc

    Fibromyalgia Coalition International

    National Chronic Fatigue Syndrome and Fibromyalgia Association

    CFIDS Emergency Relief Services, Inc

    Helping Our Pain and Exhaustion, Inc.

    CFSFM Support Group of DFW

    National Fibromyalgia Research Association

     
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  13. Merry

    Merry Senior Member

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    frenchtulip, Tacoma Gig Harbor CFIDS and Fibromyalgia Support Group is one small organization I couldn't find in Chase's database.

    Let me know if you want me to nominate other organizations.

    Tomorrow 16 days will be left to nominate.
     
  14. frenchtulip

    frenchtulip Senior Member

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    Thanks, Merry. So you nominates those smaller org's with the exception of Gig Harbor? It will be very cool if they win money!!! I'm excited! Thanks so much!
     
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  15. Merry

    Merry Senior Member

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    Yes, I nominated all the smaller organizations in the list above. Yes, I hope they all win some money.
     
  16. Dolphin

    Dolphin Senior Member

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    Two other ones worth nominating, if not done already (and eligible):
    Open Medicine Foundation:
    http://www.openmedicinefoundation.org/Contact_Us.html

    Simmaron Research
    http://simmaronresearch.com/
     
  17. Merry

    Merry Senior Member

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  18. Dolphin

    Dolphin Senior Member

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    Open Medicine Foundation is fairly news so that might be the problem there.
     
  19. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Merry, does it make a difference if two people nominate the same charity? I was supposed to nominate HHV-6, but I postponed it until after the CFSAC. Now I see you nominated them. Should I do it also?

    Tina
     
  20. Merry

    Merry Senior Member

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    Hi, Tina. Yes, two or more people can nominate the same charity. In fact, I wish that people who read this thread, if they are eligible to nominate (Chase customers and employees only), would nominate. When a charity is nominated, Chase asks for contact information (optional), and I didn't have complete contact information for all charities and couldn't be sure what was up to date. Chase would like organization website address, name of contact person, email address, and telephone number.

    frenchtulip worked hard to put together the lists and to track down contact information, but finding all contact information in a short amount of time wasn't possible. More information was readily available for the large organizations than for the small.
     

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