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List of historical ME research papers and articles (wiki) - please help

Discussion in 'Action Alerts and Advocacy' started by Bob, May 30, 2011.

  1. Bob

    Bob

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    England (south coast)
    Hi everyone,

    I'm creating a wiki page with a very simple list of historical ME research papers and articles.

    The wiki pages is here:
    http://forums.phoenixrising.me/show... ME Research Literature and other information

    And I'm seeking more research articles to add.
    If anyone has any links to any papers or articles, please could you post them here or send me a private message.

    The main purpose of the wiki is to collate literature related to the historical 'ME' definitions and outbreaks.
    So I'm focusing on research before 1990, which is a couple of years after the CDC invented the CFS criteria...
    And I'm especially collating research relating to the 63 (?) documented ME outbreaks.
    But I'm also adding some other interesting research literature and info about CFS which has ramifications for historical ME.

    Thanks for any help you can give.

    Bob
     
  2. rlc

    rlc Senior Member

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    Hi Bob, great work on the wiki page Thanks!!! I should have a lot more links to articles ready for you by the end of the weekend which Ill post for you here. Thanks again!!

    All the best
     
  3. rlc

    rlc Senior Member

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    Hi bob, heres a lot more links to Historical ME articles Ive found quite a few relating to Enterovirus research from the 80s as well, thanks again for your great work!!!!
    This first lot of articles are free to view by clicking on the links

    Epidemiological approaches to 'epidemic neuromyasthenia': syndromes of unknown aetiology (epidemic myalgic encephalopathies) MAIR THOMAS M.B., B.Sc., F.R.C.Path., M.F.C.M., D.P.H. 1978

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2425311/pdf/postmedj00263-0065.pdf

    Myalgic encephalomyelitis.report of an epidemic K. G. FEGAN, mb, drcoc, P. O. BEHAN, md, frcp, facp, E. J. BELL, PH.D, MRC.PATH.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1972867/pdf/jroyalcgprac00078-0017.pdf

    Coxsackie B viruses and myalgic encephalomyelitis E J Bell PhD MRCPath R A McCartney FIMLS M H Riding BSc MSc Ruchill Hospital, Glasgow G20 9NB

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1291624/pdf/jrsocmed00161-0023.pdf

    Coxsackie B infection in a Scottish general practice B. D. CALDER, MB, MRCGP

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1959663/pdf/jroyalcgprac00169-0017.pdf

    Sporadic myalgic encephalomyelitis in a rural practice B. D. KEIGHLEY,mb, mrccp General Practitioner, Balfron, Stirlingshire E. J. BELL, PH.D, MRC.PATH.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1972871/pdf/jroyalcgprac00078-0021.pdf

    A study of Coxsackie B virus infections, 1972-1983 BY ELEANOR J. BELL AND ROBERT A. McCARTNEY Regional Virus Laboratory, Ruchill Hospital, Glasgow G20 9NB

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2129449/pdf/jhyg00014-0036.pdf

    Coxsackie B viruses and the post-viral syndrome: a prospective study in general practice B.D. CALDER, MRCGP RJ. WARNOCK, BSc, MRCGP R.A. McCARTNEY, FIMLS E.J. BELL, BSc, PhD, MRCPath

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1710584/pdf/jroyalcgprac00025-0020.pdf

    Postviral fatigue syndrome: persistence of enterovirus RNA in muscle and elevated creatine kinase L C Archard PhD N E Bowles BSc Department of Biochemistry, Charing Cross and Westminster Medical School, London P 0 Behan MD FRCP Department of Neurology, Glasgow University E J Bell PhD MRCPath Enterovirus Reference Laboratory, Ruchill Hospital, Glasgow D Doyle MD Institute of Neurological Sciences, Southern General Hospital, Glasgow 1988

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1291623/pdf/jrsocmed00161-0020.pdf

    Disease due to echovirus type 19 in Birmingham, England, 1975: relationship to 'epidemic neuromyasthenia' A. P. BALL B.Sc., M.B., Ch.B., M.R.C.P.(U.K.).

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2425332/pdf/postmedj00263-0034.pdf

    Postgraduate Medical Journal (November 1978) 54, 747-751 III defined neurological diseases of possible viral origin R. N. P. SUTTON M.A., D.M., D.Sc., M.R.C.Path., D.C.H. Withington Hospital, Depart?pent of Virology, Manchester M20 8LR

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2425320/pdf/postmedj00263-0044.pdf

    VIRUS MENINGITIS AND ENCEPHALOMYELITIS

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1973180/pdf/brmedj03149-0047.pdf

    Fatigue in Myalgic Encephalomyelitis Ellen M Goudsmit1*, Bart Stouten2, Sandra Howes3

    http://www.iacfsme.org/BULLETINFALL2008/Fall08GoudsmitFatigueinMyalgicEnceph/tabid/292/Default.aspx

    Epidemic Neuromyasthenia J. GORDON PARISH Department of Rheumatology and Rehabilitation, St. Mary's Hospital, Colchester, Essex

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1610570/pdf/brmedj01975-0054b.pdf

    Epidemic neuromyasthenia the sporadic form George W Holt 1965

    http://journals.lww.com/amjmedsci/C...ic_Neuromyasthenia__the_Sporadic_Form.16.aspx

    Epidemic neuromyasthenia Joseph F Fraumeni JR MD Durham NC 1959

    http://journals.lww.com/smajournalonline/pages/toc.aspx?year=1959&issue=10000

    Epidemic neuromyasthenia 1959

    http://journals.lww.com/smajournalonline/Citation/1959/06000/Epidemic_Neuromyasthenia.27.aspx

    These ones can only be accessed by signing up to the medical journals

    A disease epidemic in Iceland simulating poliomyelitis.
    SIGURDSSON B, SIGURJONSSON J, SIGURDSSON JH, THORKELSSON J, GUDMUNDSSON KR.

    http://aje.oxfordjournals.org/content/52/2/222.long

    CLINICAL FINDINGS SIX YEARS AFTER OUTBREAK OF AKUREYRI DISEASE Bjbn Sigurdsson Dr. med. Iceland, DIRECTOR, INSTITUTE FOR EXPERIMENTAL PATHOLOGY, UNIVERSITY OF ICELAND, REYKJAVK and KjartanR. Gudmundsson, Laeknir, Iceland CLINICAL NEUROLOGIST, REYKJAVK, Islande

    http://www.sciencedirect.com/scienc...c2e3183bca9723306149c6ea53011607&searchtype=a

    AKUREYRI DISEASE (MYALGIC ENCEPHALOMYELITIS), FORTY YEARS LATEROriginal Text Byron Hyde , Sverrir Bergmann

    http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(88)90255-3/fulltext#

    Anxiety disorders: a result of long-term chronic fatigue - the psychiatric characteristics of the sufferers of Iceland disease. Lindal, E. 1; Bergmann, S. 2; Thorlacius, S. 2; Stefansson, J. G. 1 [Article] Acta Neurologica Scandinavica. 96(3):158-162, September 1997.

    http://ovidsp.tx.ovid.com/sp-3.4.0b...2-199709000-00007&NEWS=N&CSC=Y&CHANNEL=PubMed

    Iceland Disease: A New Infection Simulating Acute Anterior Poliomyelitis. White, D. Naldrett M.B., B.Chir; Burtch, Robert B. M.D. [Article] Neurology. 4(7):506-516, July 1954.

    http://ovidsp.tx.ovid.com/sp-3.4.1b...4-195407000-00003&NEWS=N&CSC=Y&CHANNEL=PubMed

    Benign myalgic encephalomyelitis: an outbreak in a nurses' school in Athens.
    DAIKOS GK, GARZONIS S, PALEOLOGUE A, BOUSVAROS GA, PAPADOYANNAKIS N.

    http://www.ncbi.nlm.nih.gov/pubmed/13642848

    Epidemic myalgic encephalomyelopathy: the Durban outbreak.
    HILL RC, CHEETHAM RW, WALLACE HL.

    http://www.ncbi.nlm.nih.gov/pubmed/13642847

    Epidemic Neuromyasthenia An Outbreak of Poliomyelitis-like Illness in Student Nurses Alexis Shelokov, M.D., Karl Habel, M.D., Elizabeth Verder, Ph.D., and William Welsh, M.D. N Engl J Med 1957; 257:345-355August 22, 1957 http://www.nejm.org/doi/pdf/10.1056/NEJM195708222570801

    Epidemic NeuromyastheniaOutbreak in a Convent in New York StateRobert M. Albrecht, MD, MPH; Virginia L. Oliver, MD, MPH; David C. Poskanzer, MD, MPH

    http://jama.ama-assn.org/content/187/12/904.short

    Epidemic Neuromyasthenia An Outbreak in Punta Gorda, Florida David C. Poskanzer, M.D., Donald A. Henderson, M.D., E. Charles Kunkle, M.D., Seymour S. Kalter, Ph.D., Walter B. Clement, M.D., and James O. Bond, M.D., M.P.H.** N Engl J Med 1957; 257:356-364August 22, 1957

    http://www.nejm.org/doi/full/10.1056/NEJM195708222570802

    Epidemic Neuromyasthenia Clinical Syndrome? Donald A. Henderson, M.D., and Alexis Shelokov, M.D. N Engl J Med 1959; 260:757-764April 9, 1959

    http://www.nejm.org/doi/full/10.1056/NEJM195904092601506

    Session IAccounts of Outbreaks: Epidemic neuromyasthenia, Texas, 1977 A. Shelokov, D. M. Currie, M. Nelson Postgrad Med J 1978;54:741 doi:10.1136/pgmj.54.637.741 http://pmj.bmj.com/content/54/637/741.citation

    AN OUTBREAK OF NEUROMYASTHENIA IN A KENTUCKY FACTORY-THE POSSIBLE ROLE OF A BRIEF EXPOSURE TO ORGANIC MERCURY Am. J. Epidemiol. (1967) 86(3): 756-764

    http://aje.oxfordjournals.org/content/86/3/756.full.pdf

    Epidemic NeuromyastheniaA Syndrome or Disease?Maj John R. Graybill, USAF, MC; Capt Joseph Silva Jr., USAF, MC; Capt Maureen S. O'Brien, USAF, NC; Lt Col James A. Reinarz, USAF, MC

    http://jama.ama-assn.org/content/219/11/1440.short

    Blood Rheology and Myalgic Encephalomyelitis: A Pilot Study 1986, Vol. 18, No. 2 , Pages 190-192
    Leslie O. Simpson1, B. I. Shand1 and R. J. Olds1 1Pathology Department, University of Otago Medical School, Dunedin, New Zealand

    http://informahealthcare.com/doi/abs/10.3109/00313028609059457

    Electromyographic studies of patients with Epidemic Neuromyasthenia at the Royal Free Hospital.A T Richardson

    http://pmj.bmj.com/content/54/637/745.extract

    Myalgic Encephalomyelitis Neil Gordon

    http://onlinelibrary.wiley.com/doi/10.1111/j.1469-8749.1988.tb04808.x/abstract

    Post-infectious encephalomyelitis: some aetiological mechanisms. P. O. Behan

    http://pmj.bmj.com/content/54/637/755.abstract

    The Myalgic Encephalomyelitis Syndrome J C MURDOCH

    http://fampra.oxfordjournals.org/content/5/4/302.short

    Repetitive stimulation abnormalities in Epidemic Neuromyasthenia Identification and implications DM Currie A Shelokov

    http://pmj.bmj.com/content/54/637/746.1.extract

    Epidemic Neuromyasthenia Clinical Syndrome? Donald A. Henderson, M.D., and Alexis Shelokov, M.D. N Engl J Med 1959; 260:757-764April 9, 1959

    http://www.nejm.org/doi/full/10.1056/NEJM195904092601506

    Benign myalgic encephalomyelitis (Akureyri disease, Iceland disease) Russell J. Blattner

    http://www.jpeds.com/article/S0022-3476(56)80241-2/abstract

    Royal free disease: perplexity continues

    http://www.bmj.com/content/294/6568/327.extract

    MYOGLOBINAEMIA IN BENIGN MYALGIC ENCEPHALOMYELITIS RobertB. Layzer Department of Neurology, School of Medicine, University of California, San Francisco, California 94143, U.S.A..

    http://www.sciencedirect.com/scienc...serid=10&md5=733065bedd5992664b4fa0a0d9de3be6

    Post Viral Neurological Syndromes

    http://www.bmj.com/content/287/6406/1717.3.extract

    WAS IT BENIGN MYALGIC ENCEPHALOMYELITIS? C. S. Goodwina, PeterG. R. Mayb, StuartP. B. Donnanb, JohnR. Ashtonb, MarieM. Ogilvieb and ChristopherJ. Rollesb a Department of Microbiology, Royal Perth Hospital, Perth 6000, Western Australia b Shirley Health Centre, Southampton SO9 3ZA and Southampton General Hospital, United Kingdom

    http://www.sciencedirect.com/scienc...d339595d9d1a2657582fda6cc07d0d78&searchtype=a

    Raphe nucleus encephalopathy (myalgic encephalomyelitis, epidemic neuromyasthenia) Charles P. Maurizi

    http://www.sciencedirect.com/scienc...f0e75ebd152a72c101b5d52c17065670&searchtype=a
     
  4. Bob

    Bob

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    wow, thanks rlc... i'll work through them slowly.
     
  5. Bob

    Bob

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    rlc, that's a really helpful and totally relevent list of links that you provided...
    Thank you.

    I've now added them all to the wiki.
    I've categorised them under year, author and outbreak, but I may not have categorised all the outbreaks yet... It's a work in progress.

    The wiki page has become too long for the system to handle, so I've had to create a 'Section 2' in a new wiki page.
     
  6. justinreilly

    justinreilly Senior Member

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    NYC (& RI)
    Thanks Bob. This is important work.
     
  7. rlc

    rlc Senior Member

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    Hi Bob thanks for your wonderful work!! The wiki page is looking really good, anymore links I find Ill post here for you. I think the great thing about doing this is that the ME epidemics of the past are something that a lot of people dont know much about and now its all in being collected in one place it will help people understand a lot more what the history of this illness really is, as opposed to the nonsense that is put out by the likes of the CDC and the Wessely school. It also means that when the press put out their usual rubbish stories about it being an illness that appeared in the 1980s and is some sort of psychiatric illness, people will be able to send them the link to the wiki page and tell them theyve got a lot of reading to do, and would they mind getting their facts straight before printing anymore garbage!!

    Thanks again Bob

    All the best
     
  8. Bob

    Bob

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    Thanks for the positive feedback justin and rlc... :D
     
  9. Kelly

    Kelly

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  10. Bob

    Bob

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    Thanku Kelly :Retro smile:

    We didn't have this one, so I've added it:

    Clinical and biochemical findings in ten patients with benign myalgic encephalomyelitis
    A. M. Ramsay, A. Rundle
     

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