1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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List of conventional and potential treatments for POTS/OI

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by ramakentesh, Feb 8, 2012.

  1. mellster

    mellster Marco

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    San Francisco
    xrayspex, I think it is very possible that they were doing Shire (the maker of midodrine) a favor. Smaller, innovative biotechs usually have a tougher time with the FDA which I think is corrupted (like most govermnent entities) and needs reform. To reject a drug that has been in use in Japan for over 20 years doesn't make much sense to me, but the FDA is clear when they say they do not take foreign trials or experiecnes into account. It's usually the patients who suffer, I am not for treating everything with drugs (though Northera is close to a natural compound occuring in the body) but the patient should have the choice, esp. with conditions not well understood and where there are unmet needs such as OI.
     
    sensing progress, ahimsa and xrayspex like this.
  2. SOC

    SOC Senior Member

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    USA
    Thanks, ramankentesh, great list!
     
    ahimsa likes this.

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