Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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List of CFS and ME organisations

Discussion in 'Advocacy Projects' started by Snow Leopard, Sep 18, 2013.

  1. Snow Leopard

    Snow Leopard Senior Member

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    Australia
    Does anyone know of any comprehensive lists (or regional list) of CFS and ME organisations? Hopefully covering the whole spectrum, from advocacy to support groups.
     
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  2. Clodomir

    Clodomir In hibernation mood

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    Belgium
    There was one on this forum...
    But where, i don't remember...
    Maybe it is better asking each member and make a list for every country?

    Clodomir
     
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  3. Snow Leopard

    Snow Leopard Senior Member

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    Australia
  4. Clodomir

    Clodomir In hibernation mood

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    Belgium
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  5. Tuha

    Tuha Senior Member

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    here is a list:
    http://mecfsforums.com/wiki/Organizations_for_ME/CFS
     
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  6. Clodomir

    Clodomir In hibernation mood

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    Belgium
    Thanks,

    But the list is not complete and some adress/ organisations are not valid anymore for Belgium

    Clodomir
     
  7. Mark

    Mark Acting CEO

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    Sofa, UK
    This page is something I've wanted to update for quite a while now - and there are lots of other pages on the website which need reviewing and updating. We made a bit of a start with the list in this article:
    http://phoenixrising.me/archives/17334

    If a group of members could work on such a list for us that would be great.
     
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