1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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9th Invest in ME International ME Conference, 2014 - Part 1: Autoimmunity and ME
Mark Berry begins a series of articles on the 9th Invest in ME International ME Conference in London, with a look at three presentations on autoimmunity
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List of Blogs and Articles about the HHS/IOM Contract

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Oct 24, 2013.

  1. Nielk

    Nielk

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    Blogs and Articles about the HHS/IOM Contract

    CFSAC testimonies re. HHS/IOM contract

    Andrew Bokelman - http://bit.ly/18LG5H7
    Susan Kreutzer - http://bit.ly/JyKkQS
    Jeannette Burmeister -http://bit.ly/JrEcJh
    Edward Burmeister - http://bit.ly/1bwQx5b
    Gabby Klein - http://www.occupycfs.com/?s=gabby klein
    Marry Dimmock - http://www.occupycfs.com/2013/12/10/mary-dimmock-cfsac-testimony-december-2013/
    Sr. Sandra Duma - http://www.occupycfs.com/2013/12/11/sr-sandra-duma-cfsac-testimony-december-2013/
    Justin Reilly - http://bit.ly/1cwAVQk

    Jennie’s Occupy CFS

    IOM on the Case - http://www.occupycfs.com/2013/08/29/iom-on-the-case/
    Foreshadowing - http://www.occupycfs.com/2013/09/03/foreshadowing/
    If You Want Our Support - http://www.occupycfs.com/2013/09/03/if-you-want-our-support/
    Simple Action- http://www.occupycfs.com/2013/09/04/simple-action/
    Still Wafting, Still E-mailing - http://www.occupycfs.com/2013/09/09/still-waiting-still-emailing/
    Insult, Meet injury - http://www.occupycfs.com/2013/09/17/insult-meet-injury/
    The Contract Signed Sept. - http://www.occupycfs.com/2013/09/23/contract-signed/
    The Experts Sept - http://www.occupycfs.com/2013/09/24/the-experts/
    The Statement of Work - http://www.occupycfs.com/2013/09/30/the-statement-of-work/
    Convergence - http://www.occupycfs.com/2013/10/10/convergence/
    Which Paddle? - http://www.occupycfs.com/2013/10/11/which-paddle/
    IOM Process Check - http://www.occupycfs.com/2013/11/04/iom-process-check/#comments
    Conflict of Interest Policies - http://www.occupycfs.com/2013/11/06/iom-conflict-of-interest-policies/#comments
    FAQ Checking - http://www.occupycfs.com/2013/11/18/faqchecking/
    Which Disease is HHS Sudying? - http://bit.ly/1barghe
    IOM Panel Announced - http://www.occupycfs.com/2013/12/03/iom-panel-announced/
    IOM Panelists: Method to Our Madness - http://bit.ly/18QQx3v
    IOM Panelists: The Unknowns - http://www.occupycfs.com/2013/12/05/iom-panelists-the-unknowns/
    IOM Panelists: The Knowns - http://www.occupycfs.com/2013/12/07/iom-panelists-the-knowns/
    IOM Panelists: = Experts + Information - Bias - http://bit.ly/1gDw9HR

    Jeanette Burmeister’s Thoughts about M.E.

    ME Experts Agree on a Case Definition, Call Secretary Sebelius - http://bit.ly/1c70mx0
    Perfect is the Enemy of Good - http://thoughtsaboutme.com/2013/10/02/perfect-is-the-enemy-of-good/
    Spinning Around –CAA putting Political Spin on the IOM - http://bit.ly/18LGvgR
    Please Sign Petition: Thank You to Our ME Experts - http://bit.ly/1dGhCWN
    More Propaganda: Still no Explanation from CAA for Disagreeing with Experts and Patient Majority – http://bit.ly/18uVWPG
    Principled Approach: Fighting the IOM Contract is a Moral Imperative - http://bit.ly/18LGCsH
    Opening Pandora’s Box
    - http://bit.ly/18LGERt

    16 Additional MECFS Experts added signatures to Open CCC/IOM letter to Sebelius - http://bit.ly/1fgQxKY
    66 ME/CFS Advocates send letter to Secretary Sebelius in Support of their Experts - http://bit.ly/JrFvYX
    Overwhelming growing support of ME Experts by Advocates: Open letter resent with additional signatures - http://bit.ly/1k8bb3F
    Call for Investigation by the Inspector General of the IOMs Conflict of Interest with Respect to ME/CFS - http://bit.ly/1dHzIba
    Inquiring Minds Want to Know: Who Is Behind the IOM Faqs - http://bit.ly/1diwnyx
    Supplemental Request for Investigation by OIG: Did DHHS Violate it's No-Bid Contract Requirements for IM Contract? - http://bit.ly/1fzwHeJ
    Call for the HHS Competition Advocate to Investigate the IOM Contract - http://bit.ly/1c7YhAN
    Sebelius "Responds" to the Experts: You Mean This Is Nwhat You Wanted?- http://bit.ly/1bUXZeW

    Verillo Blog: CFS Treatment Guide

    Clearing the Air or Breaking Wind: A comment on Suzanne Vernon - http://bit.ly/JAuxkp
    Misconception about the Physicians letter and the IOM Contract - http://bit.ly/1fhSAhU
    Darwin, IOM and Dating Game - http://cfstreatment.blogspot.com/2013/11/darwin-iom-and-dating-game.html
    Just the FAQs Maam - http://www.cfstreatmentguide.com/1/post/2013/11/just-the-faqs-maam.htl
    Actions Speak Louder than Words: David Egan Challenges the IOM - ://www.cfstreatmentguide.com/1/post/2013/11/actions-speak-louder-than-words-david-egan-challenges-the-iom.html
    HHS to MECFS Community: We Don't Care What You Think - http://bit.ly/18QMiF7

    Liz Willow’s Twenty Years and Counting

    Urgent: Act Now toStop ME Redefinition - http://bit.ly/1jcCoEj
    DHHS to Stop all Attempts Redefining ME - http://bit.ly/IQBJbz
    Tell Congress and the President – No to the IOM - http://bit.ly/1cNah9s
    HHS Signs IOM Contract - http://twenty-years-and-counting.blogspot.de/2013/09/hhs-signs-iom-contract.html
    Support and Thank our Experts - http://bit.ly/1bLF3ON
    One Heck of an Inspiring anti-IOM Study - http://bit.ly/1fhSXJr
    Update Action: Tell Congress and president stop redefining ME - http://bit.ly/JtuaaA

    Paradigm Change Blog – by Dr. Lisa Petrison and Erik Johnson

    An ME/CFS Petition Worth Signing - http://paradigmchange.me/wp/?p=110
    How to Win a Rigged Game - http://paradigmchange.me/wp/?p=208
    66 ME/CFS Advocates Sent Letter to Secretary Sebelius in Support of their Experts - http://paradigmchange.me/wp/?p=249
    Overwhelming growing support of ME Experts by Advocates: Open letter resent with additional signatures -http://paradigmchange.me/wp/?p=265

    Slightly Alive Blog – by Mary Schweitzer

    Why CDC Must Use Two Day CPET Testing-and specialist must define the disease not bureaucrats
    http://slightlyalive.blogspot.com/2013/09/why-cdc-must-use-two-day-cpet-testing.html

    Phoenix Rising articles and forum

    Patients to DHHS: Cancel IOM Contract - http://phoenixrising.me/archives/19380
    International experts speak out against the IOM contract to determine clinical diagnostic criteria - http://phoenixrising.me/archives/19618
    Forum: IOM government contract - http://bit.ly/1dHAPHD
    The Nightmare Scenario - IOM Case Definition Terrifies ME/CFS Advocates - http://bit.ly/1bUZhXl
    Death Contract? ME/CFS Experts and Advocates Unite to Oppose US 'Case Definition' Contract -http://phoenixrising.me/archives/20319
    IOM Contract Forum - http://bit.ly/1dHAPHD


    MECFSFORUMS

    IOM Contract forum - http://www.mecfsforums.com/index.php/board,27.0.html

    Cort Johnson’s Health Rising

    The Definition ‘Coup’ - http://bit.ly/198q2ZZ
    Feds Snub Chronic Fatigue Syndrome Community - http://www.cortjohnson.org/blog/201...perts-out-fund-outside-group-redefine-me-cfs/
    A Tiger Awakes:ME/CFS research Community Takes a Stand - http://bit.ly/IPxxbP
    Experts Expand efforts to Stop IOM Contract - http://bit.ly/IZGLBU
    Strong Core of ME/CFS Experts Bodes Well for IOM Definitin of CFS -http://www.cortjohnson.org/blog/201...well-iom-definition-chronic-fatigue-syndrome/

    Speak Up About ME

    Our ME/CFS Experts Have Spoke on the Case Definition - http://bit.ly/19NfdH7
    HHS Strategic Plan, Goal number 4? Not Implemented - http://bit.ly/1hXCQVz
    Thank You Experts Who Signed the Letter on ME case Definition - http://bit.ly/1gBz8R0
    Crimes, criminals, and the need for Justice - http://bit.ly/IPA0mF

    Mindy Kitei’s CFS Blog

    Stop the IOM; Team Up with Gulf War Veterans - http://bit.ly/1baq8KC
    Don’t Let Petion Fatigue Set In - http://www.cfscentral.com/2013/10/dont-let-petition-fatigue-set-in.html

    Pro Health

    Action Alert: Tell Congress to Listen to Our Experts - http://bit.ly/1c6ZvMU
    Making sense of the IOM Controversy by Erica Verillo - http://bit.ly/1bKvorK

    Name US.Org

    HHH/IOM Contract: Fooled Us Once, Shame On You!For Abusing the Disabled - http://bit.ly/1hfcXO7
    IOM Contract Can Be Terminated - http://bit.ly/JAwPA2
    HHS & IOM - FAQs & Fiction - http://name-us.org/AdvocacyPages/HHS_IOM_FAQs_FICTION.htm
    HHS + IOM = Borg - http://name-us.org/AdvocacyPages/HHS_IOM_BORG.htm
    Last edited: Dec 17, 2013
    ahimsa, Izola, Purple and 4 others like this.
  2. Nielk

    Nielk

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    I'm sure I left some out so please let me know and I'll add it to the list.
    Izola likes this.
  3. slayadragon

    slayadragon Senior Member

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    twitpic.com/photos/SlayaDragon
    Thanks for doing this!
    Nielk likes this.
  4. slayadragon

    slayadragon Senior Member

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    twitpic.com/photos/SlayaDragon
    Jeannette has a couple more blogs on this topic prior to the ones you list here.
    Izola likes this.
  5. Nielk

    Nielk

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    Thank you. Done.
    slayadragon likes this.
  6. Andrew

    Andrew Senior Member

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  7. Nielk

    Nielk

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  8. Izola

    Izola Senior Member

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    Thank you, Nielk.
  9. hikinglo

    hikinglo

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  10. Nielk

    Nielk

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    Thank you @hkinglo. I added these to the list.
  11. Nielk

    Nielk

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    I just updated the list. If I left anything out, please let me know.

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