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Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data

Discussion in 'Phoenix Rising Articles' started by Simon, Aug 22, 2016.

  1. fingers

    fingers Senior Member

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    SW Endland
    Is there a proper discussion of this anywhere else?
    thanks
     
  2. fingers

    fingers Senior Member

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    People, don't donate to this. They only want your money.
     
  3. CFSTheBear

    CFSTheBear Senior Member

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    I mean...that's what a donation is.
     
    Joh, Forbin, Murph and 1 other person like this.
  4. fingers

    fingers Senior Member

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    haha, nice one. You are right.
    Then again, a donation could be well-informed or exploitation.
    Keep talking to me then.
     
  5. CFSTheBear

    CFSTheBear Senior Member

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    If you think there's a legitimate reason why people shouldn't donate to this research team, please share it.
     
    justy likes this.
  6. fingers

    fingers Senior Member

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    Lipkin quoshed Mikovits's retroviral theories with some very dodgy tactics.
    He majors on fundingraisng...for who? Us or himself?
    If he gets the answer, it's game over for him....no more funding.
    If Mikovits or anyone else turns out right he loses all his possible kudos.
    ME is the best possible funding gravy train for 'researchers'...check out the psychos who are milking it.

    Quite frankly, we have to follow gut instinct sometimes and he's the slimiest bastard I've ever come across.
     
  7. lnester7

    lnester7 Seven

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    to @fingers point, I don't know if Limpkin is one of the Original CFS mess descendent, but I do agree some researcher were in the game to control narrative, but you have to see where they come from.
    If they have any relationship with CDC or military. The initial researchers were sent by the CDC and the military I forgot the details but if you read the history of CFS, you know who not to donate too if you follow the history of a person's carrier. We have to be careful which group to trust, since some researchers are really interested in our getting better, VS others that do not discover the real origin of this mess.
     
    fingers and merylg like this.
  8. msf

    msf Senior Member

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    Some of the comments here seem a little paranoid, at least without anything to back them up. Lipkin and Hanson are pretty much the only game in town at the moment, and I am quite happy that the NIH chose them.
     
    Forbin likes this.
  9. fingers

    fingers Senior Member

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    Will be interesting to see how it pans out...are you a gambling person?
    $10/£10 it comes to nothing concrete. But even then they will claim that it has moved research forward.
    I'll come back and eat humble pie big time if I'm wrong. And we'll all be partying anyway once we are on the drugs that this study turns up. Or maybe it will show that GET and CBT were the right treatments after all.
    After all...we are all paranoid, and nothing whatsoever to back that up :rofl:
     
    Sing and heapsreal like this.
  10. msf

    msf Senior Member

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    Ok, you´re on.
     
    fingers likes this.
  11. fingers

    fingers Senior Member

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    Well said.
    Expert patients could have good input too.
    I think there may be cheaper ways of homing in on the problem before throwing big guns and $$$ at it.
     
    Sing likes this.
  12. fingers

    fingers Senior Member

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  13. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    I can't remember where I read this quote, but it always makes me chuckle:

    "Paranoia is just good thinking when they're out to get you."
     
  14. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Since cfs theres been several generations promised better research funding and treatments. There will be several more generations yet before anything translates into a cure or improvement in quality of life if one waits for some government body or similar to come up with an answer.

    Cfsers need to do their own research and own experiments to improve or will be another generation waiting for medicine to fix us. Maybe one can keep the wolves from the door long enough that cfs directed treatments are introduced and one isnt a complete basket case.
     
  15. fingers

    fingers Senior Member

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    ker-ching
    ker-ching
    ker-ching
    ker-ching
    ker...........deafening silence
     
  16. Forbin

    Forbin Senior Member

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  17. Dufresne

    Dufresne almost there...

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    How about Ian Lipkin engaging in mock human sacrifice with a bunch of elites out in California? :)

    Cue to 9:29 in the following video.

     
  18. Omar88

    Omar88 Senior Member

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    I would never donate for this guy , I don't trust him at all
     
    Dufresne likes this.
  19. tamsyn

    tamsyn

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    Ron Davies at Stanford University in USA has a son with severe ME/CFS and Ron is leading a team which is developing new technologies. I think this might be a good example of expert (and personal) understanding of the illness coupled with the leverage to get funding based on new technologies (they are using the genome lab facilities). This type of multi-pronged approach might yield some much needed information.
     
    Sing likes this.
  20. tamsyn

    tamsyn

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    I think most of us have already done our "own experiments" to the utmost limits of our abilities, and we are still sick. I'm not sure why anyone would complain about money and medical expertise/ technology being directed towards finding help for us all. Isn't that what we all need?
     
    Learner1 likes this.

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