Discussion in 'Other Health News and Research' started by currer, Mar 6, 2012.
Courtesy of the other forum.
There should be laws against sending us to the "other" forum. LOL
Thanks for the info! Very interesting!
I send you there deliberately. I think it is good for PRers to go to the "other side " occasionally!
I'm glad I made it back safely.
LOL! I had the same reaction. It was an interesting interview, but I wish I'd resisted the temptation to look around once I was there. :scared:
The discussion that follows on the "other forum", particularly the second post by Kent Heckenlively, is very interesting (I'm not going to paste it you hear, you'll have to go back - if you dare).
Lipkin seems to be a very complicated person. He has not always been on the most productive side of research into ME (apparently similar to his involvement with autism) and yet now he seems to have a real commitment to better understanding ME. In his presentation on June 24, 2011 at the WPI, he spoke openly about his 1999 study of Swedish CFS patients funded by the CDC ("Absence of evidence of Borna disease virus infection in Swedish patients with Chronic Fatigue Syndrome") and how there were two conclusions that could have been drawn from the study's data ("These results do not support a role for BDV in pathogenesis of CFS" OR that the CFS patients in the study had clear immune abnormalities ("immunoreactivity to BDV proteins observed in Swedish CFS patients by ELISA may reflect infection with related microbial agents that induce cross-reactivity with conformational determinants on BDV proteins (Kliche et al, 1996) and b-galactosidase, the serologic fndings are also consistent with nonspecifc polyclonal B-cell activation")). As several posters on the other forum point out, seeing severely ill patients at the WPI likely impressed upon him the severity of ME. During his talk at the WPI, he stated that in retrospect he felt that the 1999 publication had placed the emphasis upon the "wrong" conclusion (implying that his study played an indirect role prolonging confusion surrounding CFS by not fostering an interest in the immunological abnormalities of ME/CFS).
I read it too while I was "out there" - yes, I had the guts to do it. - LOL
This comment did scare me a bit because Lipkin is depicted as the "greatest of the world".
What if he does not find anything? Will it mean that everybody will stop looking because he says so?
I realize that my comment might be a bit simplistic... but bare with me.
My brain is getting smaller by the minute.
This is only a problem if he stops looking. The researchers we most need are those who have a commitment to ME or CFS research and not to their pet theories.
thanks for that, currer and CBS
CBS the non specific polyclonal B cell activation is also related to a reaction to adjuvants, among other things, and as we know rituximab depletes these B cells.
You can also try a Google Site Search
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