He wasn't asking specifically for funds - unless (my impression) you have access to a large trust fund - although the CFI is a registered charity: so I suppose you could ask them about establishing a means to donate smaller sums from the community perhaps - that might be a good idea. Mainly he was talking about applying pressure to your political representatives. He said that Facui and (I forget) - the CDC and NIH - were receptive to his ideas and to ME research being pursued - but the implication was that of the funds that were available: we just don't have enough of a profile to gain access to what is needed. This sequestration that is being applied globally isn't helping: but if we can somehow raise the profile of ME in terms of solid research direction e.g. the kind of collaborative efforts on large scale that CFI is pursuing - and for things like (not my own preference) the microbiome - with some more background from Lipkin himself perhaps: you could try and pressure the government to increase funding for ME. I think it needs to be specific. More specific than campaigns in the past. And personal - from you to your own Congressman etc. but it could be planned as part of a PR campaign or an even larger effort. We have - preliminary - biomarkers now: we'd need I think to wait for publication - but that's more credible now than ever before: so it gives us, well, some credibility and we'd not just be demanding funds as before. We might also have more background detail from the publication of Lipkin's paper (whenever that will be). Be nice to hear something more solid (excuse the pun) about the microbiome and crap-shoot that he appeared so energised by. I think it could be an expensive waste: but I admit to knowing very little about the direction he wishes to take here. In the transcript - and review - I provided a link I think to the Autism and microbiome paper he co-authored. Might be worth taking a look. I will when I get round to it. Here's a general piece from Carl Zimmer (also there was another one (NYT I think) linked to in the transcript). You might find it interesting to read more about the possibilities: And another recent one from Nat Geo: I think the Microbiome is fascinating, don't get me wrong, but I also think it can be a wild goose chase: unless you know what you are looking for it's very easy to get lost. There are a hell of a lot of theories out there, and remedies for things that nobody can yet prove: but it would be good to get some hard science on the table in relation to PwME at last. In a very mean spirited way, I am pleased that Lipkin and CFI are taking this challenge on. It is very expensive - as he said - and there's obviously no guarantees. But I guess it has to be done by somebody - and I'd rather it was him and the incredible team he has assembled within CFI and elsewhere in collaboration.