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Lipkin bad news folks

Discussion in 'XMRV Research and Replication Studies' started by pollycbr125, Sep 17, 2012.

  1. pollycbr125

    pollycbr125 Senior Member

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  2. Christopher

    Christopher Senior Member

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  3. Sasha

    Sasha Fine, thank you

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    Holy sh...

    I just emailed the editor of the Mail and emailed the MEA to ask them to act. What an appalling piece of crap. Shame on that man (I can't call him a journalist). How the Mail shames itself with this.

    On the plus side, the psych lobby must be scared...

    Thanks for posting, Polly.
    taniaaust1 and currer like this.
  4. Sasha

    Sasha Fine, thank you

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    So let's email the editor and complain, on the facts - that ruling out XMRV doesn't rule out all viruses, obviously, and that, contrary to his statement that "Now scientists are looking at psychological, genetic or autoimmune mechanisms to explain the disease", Lipkin ruled out a psychological explanation and is looking now at other viruses.

    He's just plain wrong and it's easy to show it. Don't bother posting comments on his blog (though I couldn't help myself and doubt my comment will make it past moderation) - complain to the editor. It's bad journalism.
  5. Daffodil

    Daffodil Senior Member

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    yea why does the UK suck so much? it's like the health authorities there have some kind of personal vendetta against CFS patients
  6. August59

    August59 Daughters High School Graduation

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    I read an article awhile back in Discover Magazine, which had an article about Dr. Lipkin. He is a very curious man in that if something is following the normal path then he is going to find out why. He is definitely not bound to humans in his studies either. He has studied many of other mammal, reptile and insect dieases and viruses.

    I got the impression he is very happy in his present position as being the "go to" guy when discrepancies arise. If he moved up any higher would not be able to get hands on in as much as he would like. Also, got the impression that his superiors do not want him going anywhere if at all possible. They like him just the way he is because when they get ask question that they have no answer to. It's to him that they seek an answer to save their butts and he usually does.

    I really hope he takes an interest in CFS and is able to partipate in more studies and hopefully lead some more studies.

    He is definitely a good man!
  7. paddygirl

    paddygirl Senior Member

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  8. paddygirl

    paddygirl Senior Member

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    One positive about the dire early media coverage (actually the only positive) is that people like Lipkin will see how totally misrepresented we have been in the media and therefore the public conciousness (sp) . How frustrating for him and the others to see their their carefully crafted work so twisted and polluted.

    I have to say we would not be at this point without Judy Mikovits and her undoubted courage and integrity. I'm thinking of her today.
    GhostGum, beaker, WillowJ and 2 others like this.
  9. snowathlete

    snowathlete

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    These headlines are depressing, and though they will cause some in the public and even services to shun us even more than they already do, the good thing is that Lipkin and others are already involved and commited to finding the cause of the illness. So, its important that we remember that and dont get too discouraged...hard i know, but still true.
    August59, anniekim and Sasha like this.
  10. Sasha

    Sasha Fine, thank you

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    Irritating as that ridiculous blog post on the Mail is, we must remember that out of 60 million people in the UK, about two blokes and their dog are going to read it. And even their dog will realise that it's ludicrous to say that because a single virus has been ruled out as a cause, a disease must be a mental illness.
  11. currer

    currer Senior Member

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    Can someone send that disgusting Mail article to Lipkin then? Ask Lipkin to respond.
    I am serious.
    I'd do it but I have no IT skills.

    It might interest him to see how his science is distorted for political and personal ends in the UK.

    It is not our responsibility to fight this - we are patients.
    Medicine should be responsible for policing itself to stop this psychopathic abuse of patients.

    This debate should go on between professionals of equal standing.
    The psychiatrists ought to be responded to by their scientific peers.- they would be more difficult to bully and abuse with impunity.
    xrayspex, vli, alex3619 and 3 others like this.
  12. user9876

    user9876 Senior Member

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    I added a comment but they are moderated by the author so I don't expect to see any critical comments appear.

    The author describes himself as "Michael is Britain’s sharpest and most well-read newspaper science journalist."
  13. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    only half way through the video but interesting how they are saying we are sick, immunological findings are leading them to that but they just cant pin point a cause. I hope this encourages other researchers to keep looking into this for us.

    cheers!!!
    taniaaust1 and WillowJ like this.
  14. VillageLife

    VillageLife Senior Member

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    ..


    New post by Dr Michael Snyderman on Dr Jamie Deckoff Jones blog.


    Called....We Must Move Foward

    http://www.x-rx.net/blog/


    This from Dr Snydermans new post!

    Quote
    xrayspex, taniaaust1 and currer like this.
  15. currer

    currer Senior Member

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    It is true that Dr Snyderman has responded to antiretrovirals. This needs to be explained.
    beaker likes this.
  16. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Some antiretroviral also have activity against the herpes viruses, that could be a possible explanation???

    cheers!!!
    taniaaust1 and SOC like this.
  17. alex3619

    alex3619 Senior Member

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    Something that has not been said about Ian Lipkin that I think is worth mentioning: unlike many scientists he seems to have a good grasp of politics as well as science. I think a part of his effectiveness may be that he can work the political side of science as well as he can work in the technical side. Bye, Alex
  18. biophile

    biophile Places I'd rather be.

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    I have not had a chance to examine the paper much or view the conference, but I get a good impression from other people's comments so far. It confirms some of my pre-release suspicious about it all; the findings were null but there was emphasis on the seriousness of ME/CFS and other biomedical projects underway.

    I agree that Michael Hanlon's Science blog is the worst coverage yet (AFAIK), but it was only a matter of time. I even saved a copy for future reference, and just in case it changes ...

    The 1st paragraph is inflammatory. The alluded connection between the 2nd and 3rd paragraph does not make sense. The rest of the article gives an inflated sense of how common the "abuse" is, although at the end suggests it may only be a handful of people. He seems to conflate the XMRV/pMLV hypothesis with a general "virus hypothesis", and seems to misrepresent or water-down Shepherd's position on ME/CFS: "Shepherd has been vocal in his support for the view that ME may not be a purely psychiatric condition."

    Out comes the [fear of the stigma surrounding mental illness] explanation again, and portrayal of the PACE/CBT/GET critics as negative campaigners and worse than anti-vaccinators. Then, "Something about this disease seems to cause a suspension of reason." Yes, apparently for the writers of articles and blogs too! "There is a deep mystery here and one is forced to suspect that there is more to all this than meets the eye." Oh the irony! Things are not always as they appear, keep digging and you soon fall down the rabbit hole with the rest of us.

    "Perhaps now the final nail in the coffin of the virus theory appears to have been driven home, we will find out once and for all the true story behind the ME fanatics." All the claims in various articles about "the virus theory has been debunked once and for all" will look rather stupid if Lipkin's pathogen study finds something significant.

    I do not expect reporters to understand the science and politics of ME/CFS straight away, I did not either at first, but I expect curiosity for different sides of the argument and the avoidance of inaccurate conflation. Keep in mind that Daily Mail excels as a gossip magazine and has rarely shown much understanding or insight about ME/CFS.
    taniaaust1 likes this.
  19. Snow Leopard

    Snow Leopard Senior Member

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    Sasha and camas like this.
  20. beaverfury

    beaverfury beaverfury

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