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Lipkin bad news folks

Discussion in 'XMRV Research and Replication Studies' started by pollycbr125, Sep 17, 2012.

  1. leela

    leela Slow But Hopeful

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    i think i might have a little bit of a crush on Ian lipkin:oops:
    seriously, i thught the presentation was really good, and hillary and debra's questions were great.
    it seems lipkin is really on board with getting the ball rolling on investigating furhter.
  2. alex3619

    alex3619 Senior Member

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    The real question that should be asked, and the lesson learnt, is that high quality validation studies like the one just released should be done sooner rather than later. Low quality studies are only suggestive. The blame for this lies everywhere, including the WPI. They should have been pushing for this from the beginning. Researchers like Coffin should also have been pushing for it. Some commentators at the time suggested this be done but were ignored. Bye, Alex
    xrayspex, SOC, currer and 1 other person like this.
  3. Sasha

    Sasha Fine, thank you

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  4. currer

    currer Senior Member

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    I like what you are saying, Alex, but I think the problem is always cost.

    Cheap and quick research studies will always be easier to perform.

    It is also evident from what Lipkin said that it is clear to any scientist that ME is a genuine disease.
    But it is cheaper and easier for governments to ignore us and pretend otherwise. And that is why the situation has become so fraught between patients and health agencies..
  5. leela

    leela Slow But Hopeful

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    I think Judy made a good point about FDA's recent statement, and the "pressure" from Mr. President, in regards to a potentially refreshed source of study funding. Of course pharamacological profit-motivated research is not always in the patiients' best interested, but there is so little "pure" research these days anyway.
    between that and Lipkin's very firm and forthright announcement about this being *absolutely* biological, and his ongoing studies into these illnesses, and his reminder that scinece is in fact a process where people ought not to be afraid to have their careers ruined when they come to a potentialy erronoeus conclusion---
    it would seem that we have indeed reached a real turning point in attracting some solid science now.

    He makes a good point too on continuing to apply pressure as a patient population.
    beaker, Overstressed, Sasha and 2 others like this.
  6. alex3619

    alex3619 Senior Member

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    I agree with you currer, but its a false cost issue. How much has doing cheap studies cost in the long run? This is a huge issue with CFS and ME generally. Ignoring these and related illnesses may be costing the world on the order of a trillion dollars a year (I am including other neuroimmune diseases here). CFS itself (not so sure about ME) is on the order of a hundred billion a year. In what universe is it fiscally responsible to spend almost nothing on fixing the problem? Add in the issue that XMRV is a retrovirus and it should have had priority funding. If we continue on the current path and something new and nasty comes along, by the time we respond it might be too late. Bye, Alex
    currer likes this.
  7. lilpink

    lilpink

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    Ok..on which 'bit' of the TWiV website will the podcast be shown?
  8. Sasha

    Sasha Fine, thank you

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    Good question -it's just sitting there at the moment. Maybe it just suddenly appears at 12:01pm?
    Ritto and lilpink like this.
  9. jace

    jace Off the fence

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    Anybody else here weirded out by the body language and demeanor of the press conference participants that we could see? Why was Hilary Johnson's question about 'XMRV' in the prostate cancer studies slapped away? Lipkin's 'not prepared to talk about that online' indeed...

    I'm weirded out anyway.:alien::cautious::oops::alien:
    xrayspex likes this.
  10. Sasha

    Sasha Fine, thank you

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    It's there now...
  11. Kina

    Kina Moderation Team Lead

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    Perhaps it was just too political or too complicated to provide a good answer in the short time they had. I don't think I will start looking for reasons or make speculation. Dr Lipkin was willing to discuss it with Hilary Johnson after the press conference. I am sure she will pass on any relevant information.

    I didn't notice any weirdness in body language or demeanor. Actually, the head nodding etc matched what was being said in the room.
    Firestormm likes this.
  12. lilpink

    lilpink

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    Don't you think it was an aside which could be interpreted as him knowing the prostate papers will be pulled (or at least there's lots going on behind the scenes) but it's all getting angry and political and he can't be drawn in (especially on record?)
  13. lilpink

    lilpink

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    Where? Which bit? I don't have it here (UK).
  14. leela

    leela Slow But Hopeful

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    Lipkin did not address her question because this was a press conference about this particular study.
    His invitation to discuss her question after was a positive, in my view.
    I found his whole approach to be admirable and inspiring, personally.
    Entirely laudable, including his tribute and acknowledgement to Judy's contriubutions.
    SOC, penny, Gamboa and 2 others like this.
  15. lilpink

    lilpink

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    Yes I agree whole heartedly. Rosie
    Sasha likes this.
  16. leela

    leela Slow But Hopeful

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    is anyone else having trouble getting the twiv thing to play?
  17. TessDeco

    TessDeco

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    Maybe because Lipkin was not involved in the XMRV/prostate cancer studies and he does not want to make public statements about his opinion. Lipkin seems to have a lot of respect for other researcher's work (as seen with Mikovits) and if he has doubts about their XMRV/prostate CA findings, maybe he just didn't want to make a public statement about his doubts. Beside, I thought Hilary Johnson's question was off topic too since the conference was about Lipkin's study which has nothing to do with prostate cancer.
    user9876 likes this.
  18. Kina

    Kina Moderation Team Lead

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    The link appears to be empty. Maybe they are having technical issues or there was some delay. The box for the podcast didn't appear until after the advertised time. I guess we will have to wait patiently.
  19. Sasha

    Sasha Fine, thank you

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    I can't get it to play. It's not a live transmission though, so I hope that once it's sorted out, we'll have plenty of time to see it. Frustrating, though!
  20. leela

    leela Slow But Hopeful

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    thanks sacha and kina. i never can tell, as my internet connection comes from somewhere in the late jurassic.

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