Links to media coverage of the Naviaux study (Aug 30, 2016)

[CFS_for_19_years]

Chronic Fatigue Syndrome/Systemic Exertion Intolerance Disease Speculcation

https://www.sciencebasedmedicine.or...ic-exertion-intolerance-disease-speculcation/

The comments on this article are horrible for patients to read.

 

[mfairma]

That site is filled with narrow-minded quacks anyways. Just a few years ago they told us we just need to accept CBT/GET. Where are they now with that advice?

 

[Snowdrop]

I see Harriet Hall felt the need to chime in in the comments.
I've seen her around before.
There's no amount of evidence that is going to convince some people. And they could not give a shit about the people who are suffering only that their POV is protected to the end.

 

[Cheshire]

Mayo News: The solution to improve our broken metabolism:

by moving more in the sun and fresh air, you’ll most likely sleep better and have more energy the following day.

http://www.mayonews.ie/living/nurturing/28600-gentle-steps-towards-beating-chronic-fatigue

 

[sarah darwins]

Mayo News: The solution to improve our broken metabolism:


http://www.mayonews.ie/living/nurturing/28600-gentle-steps-towards-beating-chronic-fatigue

Written by Andrew O’Brien who "is a chartered physiotherapist and the owner of Wannarun Physiotherapy and Running Clinic at Westport Leisure Park. He can be contacted on 083 1593200 or at www.wannarun.ie"

So why he should know more than bugger all about ME/CFS isn't clear.

For information, this is County Mayo in Ireland, not the Mayo Clinic!

 

[CFS_for_19_years]

Mayo News: The solution to improve our broken metabolism:

http://www.mayonews.ie/living/nurturing/28600-gentle-steps-towards-beating-chronic-fatigue

More discussion about this story was started here:
http://forums.phoenixrising.me/inde...-steps-towards-beating-chronic-fatigue.46965/

 

[halcyon]

Santa Rosa doctor’s study offers new insight into chronic fatigue syndrome

This is a local paper from the city that Gordon Medical Associates is in.

 

[Hutan]

There there are so many ways an article about ME can get things wrong that even the most well meaning of efforts can fall short of what we would hope for.

If I was reading that Santa Rosa article and knew little about ME, I'd come away thinking that this is a disease of people with Type A personalities, people who have pushed themselves too hard. So, while it may well have a biological basis, it is really just 'burnout'.

I don't think there is good evidence for that view. So much of the evidence relevant to the idea relies on surveys of diagnosed patients. And determination, financial resources and self confidence (things a type A person may well have more of) make diagnosis more likely.

 

[mfairma]

@Hutan, definitely. It's hard because people often mean well, but good intentions come up against, at least for me, a lack of patience from seeing years of the same sort of half-baked, informed-by-the-dominant-yet-wrong-narrative descriptions.

 

[TiredSam]

There there are so many ways an article about ME can get things wrong that even the most well meaning of efforts can fall short of what we would hope for.

If I was reading that Santa Rosa article and knew little about ME, I'd come away thinking that this is a disease of people with Type A personalities, people who have pushed themselves too hard. So, while it may well have a biological basis, it is really just 'burnout'.

I don't think there is good evidence for that view. So much of the evidence relevant to the idea relies on surveys of diagnosed patients. And determination, financial resources and self confidence (things a type A person may well have more of) make diagnosis more likely.

Harrison, now 21, is one of an estimated 1 to 2 million Americans with chronic fatigue syndrome, a debilitating illness that can transform hardworking, type-A personalities, into patients who, in some cases, cannot work and can barely take care of themselves.

The above could be read as just the author's way of saying CFS can happen to anyone, not just lazy, depressed types. I agree that any reference to personality types is unneccesary and unhelpful. I thought the rest of the article was very good.

 

[Hutan]

I thought the rest of the article was very good.

Yes, it was. And I mean no disrespect to Brittany and her family who came across very well.

The above could be read as just the author's way of saying CFS can happen to anyone, not just lazy, depressed types.

Yes, it could.

Harrison, now 21, is one of an estimated 1 to 2 million Americans with chronic fatigue syndrome, a debilitating illness that can transform hardworking, type-A personalities, into patients who, in some cases, cannot work and can barely take care of themselves.

But all it would take is an 'even', as in 'a debilitating illness that can transform even hardworking, type-A personalities, into patients...' to remove the potential for mis-understanding.

I guess part of the problem may be that not too many pre-illness lazy slobs or even just averagely accomplished people are lining up to be a poster child for the illness and even fewer writers are selecting such people to write about. And it makes a much better story to emphasise any pre-illness activity and accomplishment to better contrast with the post-illness loss.

So everyone gets a skewed idea of who this illness is affecting and it becomes easy to assume that the 'type 'A' personality' is a key cause.

And so it is important in publicity to emphasise that the illness can strike anyone. (Something that the Millions Missing campaign is doing very well).