Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Links required for the letter

Discussion in 'General ME/CFS Discussion' started by Jan, Oct 31, 2016.

  1. Jan

    Jan Senior Member

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    Hi, we are nearing completion of the letter re MEGA. If anyone has the following links it would help enormously.

    Research suggests that the potential biomarkers of this disease change after about three years of illness. (ref)

    ICC (ref)

    Brian Kennedy QC PACE TRIAL Is this one right? http://informationrights.decisions....iversity of London EA-2015-0269 (12-8-16).PDF

    Manipulation/misrepresentation of PACE results (refs)

    David Tuller Virology Blog (refs)
     
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  2. A.B.

    A.B. Senior Member

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    http://advances.sciencemag.org/content/1/1/e1400121

    http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full

    Yes. The PACe trial data FOI request tribunal decision.

    Not sure what you're looking for. Something not written by Tuller?

    http://www.virology.ws/2016/09/21/no-recovery-in-pace-trial-new-analysis-finds/
     
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  3. A.B.

    A.B. Senior Member

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  4. Jan

    Jan Senior Member

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    Thanks Ab, you're a star
     
  5. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    May not be exactly what you're looking for, but you can see for yourself:

    The PACE Trial Invalidates the Use of
    Cognitive Behavioral and Graded Exercise
    Therapy in Myalgic Encephalomyelitis/
    Chronic Fatigue Syndrome: A Review

    Mark Vink
    Family Physician, Soerabaja Research Center, Amsterdam, The Netherlands

    https://www.sciforschenonline.org/journals/neurology/article-data/JNNB-2-124/JNNB-2-124.pdf

    This was published in a peer-reviewed journal prior to the Mathees re-analysis.
     
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  6. Countrygirl

    Countrygirl ME is not MUS

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    Am working through the references still and have one I can't find.

    I have mentioned that PACE is being taught to US students as an example of how not to undertake research and need the reference to this. I read it about a month or so ago on either Prof Coyne's blog or Virology blog and can't now locate it. Can anyone help please? Thanks.
     
  7. Countrygirl

    Countrygirl ME is not MUS

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    Phew! I have just done a word count for the letter.........it is more than 8 000 words (!) Well, they asked for our comments and they have got them.

    Am missing two references now.
     
  8. mango

    mango Senior Member

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    @Countrygirl

    https://www.facebook.com/david.tuller.1/posts/10153565001466829

    http://www.meaction.net/2016/08/08/rehmeyer-makes-statisticians-jaws-drop-over-pace/
     
  9. Countrygirl

    Countrygirl ME is not MUS

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    @mango you are a star! Thank you!
     
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