Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Link to my story in the Irish Independent (October 30)

Discussion in 'General ME/CFS News' started by Tom Kindlon, Oct 30, 2015.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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    This was written in a bit of a rush. They contacted me Wednesday afternoon around 3pm and wanted it by lunchtime the next day. I was asked to tell my story rather than write a long political or scientific piece.

    They also had to edit down quite a lot of what I said to fit the space they had.
     
    Yogi, Woolie, Roy S and 35 others like this.
  2. Denise

    Denise Senior Member

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    Thank you very very much for using scant reserves to write this!

    Would you be willing to share the unedited version?
     
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  3. Tom Kindlon

    Tom Kindlon Senior Member

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    Not sure I should as they are paying me for this and probably wouldn't want me to (I will be giving the money to the Irish ME/CFS Association as I have done previously when I was paid for interviews and the like).
     
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  4. Denise

    Denise Senior Member

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    I understand.
     
  5. meadowlark

    meadowlark Senior Member

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    Thank you so much for writing this!
     
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  6. Marco

    Marco Grrrrrrr!

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    Near Cognac, France
    Still talking to us now that you're famous? ;)
     
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  7. Marco

    Marco Grrrrrrr!

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    Near Cognac, France

    ETA - despite the deadline and editing process that reads really well - snappy and gets the point across.
     
  8. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Nicely done, Tom. Thank you!
     
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  9. mango

    mango Senior Member

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    Tom Kindlon and sarah darwins like this.
  10. Tom Kindlon

    Tom Kindlon Senior Member

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    I just checked. In my initial submission, I mentioned that some people were at my worst level long term which didn't make it into the final version. Also, I mentioned (in what I submitted) I was lucky living at home with my parents who did all the basic activities freeing me up to use my energy as I wanted and that other people struggled trying to raise children, prepare food, maintain their house, etc. But I suppose it was only supposed to be my story.
     
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  11. Tom Kindlon

    Tom Kindlon Senior Member

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    Thanks for people reading and sharing it. It's now the most read in paper's health features section and the most shared in the paper overall :) (not in the top five most read though for the paper as a whole).
     
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  12. snowathlete

    snowathlete

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    Thank you Tom, both for writing it, and for donating the fee.
     
  13. ahmo

    ahmo Senior Member

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    Tom, great job. :star::trophy::hug:
     
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  14. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    I wish they had told you how much space they had so that you could have decided what was most important to say in the space allotted. It is a very good article.
     

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