ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Link between CFS and DES exposure.

Discussion in 'Information and Resources' started by vamah, Dec 2, 2012.

  1. vamah

    vamah Senior Member

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    Does anyone know if there is research on a link between DES exposure in utero and CFS?
     
  2. Hugocfs

    Hugocfs Senior Member

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    What does DES stand for?
     
  3. vamah

    vamah Senior Member

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    Diethylstilbestrol. It's a synthetic estrogen that was given to some women to prevent miscarriage up until the early 1970s. It has been shown to cause certain cancers and reproductive problems in women who were exposed in utero.There has also been some research into a link to autoimmune disorders, but no conclusive studies. I was just sort of curious since I am DES exposed.
     
  4. Sea

    Sea Senior Member

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    I haven't heard of any link. The problems I've heard of are mostly related to reproductive organ abnormalities, fertility problems and increased risk of certain cancers
     
  5. WillowJ

    WillowJ Senior Member

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    I haven't heard of a link specifically to ME/CFS. The mouse studies and one human study show a link to autoimmune disorders generally, and we think ME/CFS could be an example of an autoimmune disorder (e.g. prevalence of positive ANA, response to Rituximab). Other human studies don't show a link (though I haven't read any of them to see how well/badly they were designed--use of estrogens is very political). A 2010 cohort study shows a link to RA only.

    DES Action is a good resource for finding all the latest news, or the relevant equivalent in your country.
     

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