Full title: Sharing Clinical Trial Data: Recommendations from the US Institute of Medicine (IOM)
and the International Committee of Medical Journal Editors (ICJME) – Lily Chu, MD
From: IACFS/ME MAY 2016 NEWSLETTER
Study Data Transparency and Sharing: For ME/CFS, concerns over the PACE trials are pushing the call for data transparency and sharing to the forefront. However, this is an issue that has been brewing for some time within the scientific and medical world and will have consequences for all stakeholders in the future. Lily Chu takes a wide-angle-lens look at the issue, drawing on recent recommendations from the US Institutes of Medicine and the International Committee of Medical Journal Editors. Read more:
http://iacfsme.org/PDFS/2016MayNesletter/Attachment-07-Dr-Lily-Chu-Sharing-Clinical-Trial-D.aspx