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Lightning Process to be Evaluated in Research Study on Children

Discussion in 'General ME/CFS News' started by Jenny, Mar 4, 2010.

  1. Wildcat

    Wildcat Senior Member

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    Phil Parker Group of Companies

    Phil Parker states on his commercial site that his Peak Performance programme builds on the “extraordinary technology” of the Lighting Process. Phil has redesigned the Peak Performance pages, and quotes Ed Stafford on the Peak Performance site front page as celebrity endorsement of Parkers Peak Performance Training.



    The Phil Parker Group of Companies
    http://www.philparker.org/Home/


    The Phil Parker Group
    "Welcome to the Phil Parker Group. Our core principle is that people are geniuses with amazing skills, qualities and talents, and we hope we can help as many people as possible to find that out about themselves."


    The Lightning Process The Lightning Process is an empowering three day training course which enables individuals to choose the life they love using techniques based on the way the brain and body interact.


    Phil Parker Peak Performance for Business Phil Parker Peak Performance (P4) is a unique programme developed especially for business success and peak performance by Phil Parker. It builds on the extraordinary technology of the Lightning Process to enhance success and ensure consistency in top performers - launching Autumn


    The Phil Parker Training Institute The Phil Parker Training Institute specialises in training people to become practitioners in personal development, health management and business. It is the only place where you can train to become a Lightning Process practitioner. Approved by the British Psychological Society Learning Centre for the purposes of Continuing Professional Development (CPD)


    Online Shop Phil Parker has created a wide range of books and audio programmes that have encouraged great change in thousands of customer’s lives. They are available here.





    Lightning Process
    http://www.lightningprocess.com/Landing/
    Welcome to the home of the Phil Parker Lightning Process. This is an informational website about the Lightning Process programme. It's a powerful, non medical tool that is tailored to help people who are stuck in their life or health.
    Please click on the buttons below to read about my thoughts on some common conditions.





    Phil Parker Peak Performance (P4)
    http://www.p4training.com/Home/

    Before P4 there was just training...
    Phil Parker Peak Performance (P4)

    This is a completely new approach for business success and optimising performance. It has been developed by peak perfomance expert Phil Parker to enhance success and ensure consistency in top performers. This powerful programme trains professionals in perfecting performance, excelling in competitive conditions and handling high pressure environments.

    "Peak Performance is not a luxury- it's a necessity and it isn't something you just have, it is something anyone can learn." Phil Parker, Designer of P4


    “Phil has an amazing toolbox of skills and the experience to help you get the best out of yourself, whatever your challenge. I’ve found every ‘peak performer’ needs a great coach, for me, Phil’s unique approach makes him the coach.”
    Ed Stafford, Amazon Explorer







    Phil Parker Practitioner Institute
    http://www.philparker.org/Practitioner-Institute/
    New site under construction.
    Applications have now closed for 2010/2011. Please email info@philparker.org for more details.
    Download 2010/2011 Prospectus

    BPS learning Centre Approved
    Approved by the British Psychological Society Learning Centre for the purposes of Continuing Professional Development (CPD)





    Phil Parker Group Online Shop
    http://store.philparker.org/c/Home/
    Welcome to our online shop
    Phil Parker has created a wide range of books and audio programmes which have helped thousands of individuals conquer stress, anxiety and panic attacks, sleep issues, weight issues and enhance their personal and professional effectiveness.
    Don’t miss our special offers, and check out our site regularly for new publications to help you achieve your potential in all areas of personal development.





    The Introduction to The Lightning Process

    http://store.philparker.org/p/Test-Product-Book/
    OUT OF STOCK
    The Introduction to The Lightning Process
    THIS PRODUCT IS CURRENTLY OUT OF STOCK UNTIL 17th DECEMBER 2010.
    You may have already heard about the extraordinary results achieved by people using the Phil Parker Lightning Process to transform & enhance their lives, health and success.





    Ding: The New Language of Change

    http://store.philparker.org/p/test/

    Ding: Language of Change
    Pre Order your copy now and receive it hot off the press (approximate print date December 2010)

    In this compelling book Phil presents some of the core components of his work which form the major transformational elements of the Lightning Process and the Phil Parker Peak Performance programmes. This book has been designed to be a practical guide to making your life better using the ideas and tools that it presents.

    What will you get from this book?
    A brilliantly simple, practical approach to using your langauge and seeing the world in a whole new way so you can start getting a great life.






    Phil Parker ‘Lighting Process’ & ‘The Ten Questions’

    Buy these two books and get our Boost Your Immune CD FREE!
    http://store.philparker.org/p/Buy-these-two-books-and-get-our-Boost-Your-Immune-System-CD-FREE-48-6/

    Buy these two books and get our Boost Your Immune System CD FREE!
    THE INTRODUCTION TO THE LIGHTNING PROCESS BOOK IS CURRENTLY OUT OF STOCK UNTIL 17th DECEMBER 2010. YOUR ORDER WILL BE DISPATCHED AND THE LP BOOK WILL FOLLOW AFTER THIS DATE.
     
  2. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    I've been looking at the Wayback Machine for archived pages for Simpson and Fawdry (Rowan Centre) but the most recent archived pages date from July 2008. (I had hoped to establish which month the Rowan Centre website dumped LP for its own flavour of LP - the "BodyMind Programme" - but it is too early for changes to these pages to have been archived yet.)

    The change must have taken place at some point between late July and September because in mid July, at the point that I wrote to the BMJ, they were still offering the LP and using the LP logos.


    Here is a page from Simson and Fawdry's site from July 2008 in which some very dodgy claims were being made:

    http://web.archive.org/web/20080629...y.com/lightning_process_questions_answers.htm

    Lightning Process Questions and Answers


    It sounds too good to be true. Is there someone I can talk to who has used the Lightning Process ?
    Yes, we’ll be happy to put you in touch with other people who have experience of using the Lightning Process to get well.

    I’m worried that the training will be too tiring.
    Yes, it can seem hard to imagine how you will manage it, but your symptoms will start improving in the first session and thereafter things get easier.

    I’m afraid of relapsing ?
    After the first session you will continue to go from strength to strength until you have cleared all your symptoms. If you apply the Process consistently, relapsing isn’t an issue.

    Will I have to do the Process forever ?
    No, the result is permanent. After all your symptoms have cleared, you don’t need to keep doing it. But the techniques can be also be adapted to resolve many other issues and conditions, should the need arise.

    I’m bedridden, can I still do it ?
    Yes, you can start slowly and gently. Complete wellness is achievable no matter how ill you are now.

    Who doesn’t it work for and why ?
    If you don’t apply the Process consistently you will get variable results and further coaching is essential to get you back on track. Occasionally, people stop applying it before all their symptoms have cleared and so do not get the full benefit. Like learning any new skill you may need help if you trip up. It won't work if you don't use it.

    Will it work for my particular symptoms ?
    With over 3,000 people now recovered, in our experience, a vast array of different symptoms can be cleared by addressing the underlying cause. There is a list of cleared symptoms on the Lightning Process page.

    Does it last or will I get ill again ?
    Yes it lasts, you will make permanent changes to your health.

    Does anyone fail ?
    No, not in our opinion because if you DO the Process it works. If you don’t, it doesn’t. Some people don't keep doing the Process until they have cleared all their symptoms, so may not feel successful, or may think the Process doesn't work for them. At this point, they need further support and coaching to help them get the result they want. Once you have learnt the Lightning Process, it is your choice whether you use it or not.

    Is it difficult ?
    No, anyone over 8 could learn the techniques. But there will probably be times when you don't feel like doing it, but still must, to get a good result. There may also be times when you don't know when to do it and will need help to spot the signs. It takes discipline and persistence, which some people would find difficult. A very small percentage of participants find it difficult to stick to it until they get fully well and occaisionally they give up or stop doing it. This is when they need extra support and coaching. For most people who do the training, the most difficult thing about it, is getting there in the first place.

    http://web.archive.org/web/20080628...fawdry.com/phil_parker_lightning_process.html

    The Lightning Process
    The Phil Parker Lightning Process™ was developed seven years ago by Phil Parker and already over 3,000 people have used it to recover their health. The Lightning Process enables your body to clear all the symptoms of M.E, Chronic Fatigue Syndrome, Post Viral Fatigue Syndrome and other chronic conditions.

    It is a training programme not a therapy, so we learn that our minds and bodies are interrelated and that we have more power to effect both than we ever realised. The success rate for people completing the training is very high and the techniques are easy to learn. They only need to be applied until the symptoms are cleared but it does take work and commitment to do so. It is effective no matter what the level of disability, and can even be used by very severely affected M.E. sufferers.

    Because this powerful new solution is achieving amazing results, Professor Findley Consultant Neurologist and Clinical Director at the National M.E Centre in Essex is now referring some of his patients to the Lightning Process. A pilot study on the Lightning Process is now underway.

    Esther Rantzen OBE, (Vice President of the National M.E Centre and President of AYME, the Association of Young People with M.E) has written about her daughter Emily's 14 year illness and subsequent recovery using the Lightning Process. You can read it on our Recovery Stories page, or on the Daily Mail website.

    We recommend that you view the video testimonials on The Lightning Process website so that you get a real sense of the benefits that other M.E sufferers are now enjoying. They are all real people starting to get their lives back. You may have heard that it takes years of pacing, or exclusion diets to get beyond M.E. This is no longer true, because if you are willing to apply the Lightning Process techniques, consistently and repetitively, you too will clear your symptoms and be able to get on with your life. To find out more visit http://www.lightningpocess.com

    What Does The Lightning Process Work For?
    Using the Lightning Process has proved effective for clearing ALL the debilitating physical and mind based symptoms of M.E, Chronic Fatigue Syndrome, and Post Viral Fatigue Syndrome.

    Some of the symptoms that other M.E sufferers have cleared are listed here...

    addictions, adrenal problems, allergies and intolerances, anxiety, balance problems, bloating, blurry vision, brain fog, candida, chemical sensitivity, compulsive behaviours, concentration problems, confusion, constipation, depression, diahorrea, dizzyness, electrical pulsing sensations, excessive sleeping, exhaustion, fatigue, fear, feeling detached or disconnected, fever and chills, flu-like symptoms, frequent coughs and colds, fybromyalgia, hallucinations, head pain or pressure, heartburn, indigestion, insomnia and other sleep disturbances, irritability, irritable bowel syndrome, itching and rashes, itchy eyes, joint pain, light sensitivity, loss of vision, malaise, memory loss, migraines, muscle pain, nausea, noise sensitivity, oedema, panic attacks, painful and/or swollen glands, pins and needles, restless leg syndrome, runny nose, sensitivity to electrical fields/computers/mobiles etc, shaking, shooting pains, skin sensitivity, stomach pain, sun burn sensation, swelling, temperature control problems, thrush, thyroid problems, unrefreshing sleep, vertigo and similar sensations, vomiting, water retention, watering eyes, weakness.....and probably many more.

    If you are concerned that any of your symptoms are not in this list, please feel free to ring us to discuss it.

    If the immune system isn't working, almost any symptom can show up, which is why so many M.E sufferers can have a vast array of differing and confusing symptoms that often vary in severity and occurrence from day to day.

    Symptoms can vary from feeling a little under the weather a lot of the time, to being unable to work, to being bedbound and unable to walk, to being unable to care for oneself at all. Wherever you are on the spectrum, you can use the Lightning Process to gain full recovery.

    We advise you to consult your GP, have the necessary tests to rule out other potential problems and obtain a diagnosis.

    How does the Lightning Process work ?
    The Lightning Process consists of three face to face teaching sessions and back up coaching, during which you learn how to influence your hormonal, immunological, neurological and musculo-skeletal body systems.

    You will discover how your body and mind are trapped in an unconscious stress response. Without realising, some of us have over produced adrenaline on a daily basis which can also lead to adrenal exhaustion. The abnormal production of adrenaline suppresses the immune system to such an extent that we can be overwhelmed by fatigue, pain and many other symptoms.


    "Any treatment which reduces the Stress Response will improve chronic fatigue syndrome and many other conditions"

    Professor Findley speaking on You and Yours, BBC Radio 4.​


    When we use the Lightning Process we address the underlying cause of the symptoms. We learn how to consciously interrupt and change the old unconscious response and create new neurological pathways in our brain. Research shows that brain plasticity allows us to make permanent changes. So we learn how to rebalance the adrenaline which then allows the immune system to revert to normal function.

    The body is then able to clear ALL the symptoms because the immune system is not damaged, but suppressed. For bedbound patients, strength and fitness can be regained over time, but for everyone else, normal life is achievable in a matter of days or weeks.

    Therapy ?
    No, it's not a therapy or a treatment, it's a training programme. It is a combination of processes and techniques, derived from NLP (Neuro Linguistic Programming) Hypnotherapy, Life Coaching and Osteopathy.

    Readiness
    Readiness is an important requisite for success with the Lightning Process. Before booking the training it is essential to decide that this particular training is appropriate for you. Does it make some sense to you? Are you are willing to do the necessary work involved, until your body has cleared all the symptoms?

    When you are ill it can be hard to imagine how you could do "work" or go on a training programme. Thankfully it is possible because your symptoms will start improving on the first day. Thereafter you will keep on improving as long as you apply the Lightning Process techniques consistently until you are fully well.

    We believe it is entirely reasonable to be unsure whether you will get the same results as the other people who have recovered from their illnesses. Most people believe there is no 'cure' for M.E let alone that it really is true that symptoms can be cleared in a few days or weeks. Some people you come across will be cynical and dismissive because as they havn't done the training, they don't understand how the Lightning Process works.

    But if after talking to others who have already used the Lightning Process to get well, you are still cynical yourself, you are probably not ready. If you still think that it's impossible for your particular symptoms to go, or that the recovery stories are all exaggerated or untrue, or that your mind and body are unconnected entities, then you are not ready to do the LP training. At this point we suggest you still need to either find out more about it, or look for something else to help you.

    The next step
    The first step is to do some research on websites and/or phone us for an informal chat. We think it is a really good idea to talk to other people who have used the Lightning Process to get well, and can put you in touch with them. It is also good to look at the videos and recovery stories on the websites below. Just click on the links....

    http://www.fatigueanswers.com/ or http://www.lightningprocess.com/

    Then if you feel this training is for you, fill in the assessment form. This can be downloaded by clicking on the link below or we can send it to you by post. Occasionally we have to refuse a booking but will always try to suggest useful avenues to explore so that a booking may be made at some later date.

    Assessment Form


    Practical details
    Structure

    Preliminary discussions take place in person or on the phone. If you want to go ahead, you send us your assessment form. Then the assessment is completed in a telephone session. At this point, we will confirm your place on a course and ask you to send the 150 deposit.Training.

    Day 1 approximately 5 hours
    Day 2 approximately 5 hours
    Day 3 approximately 5 hours
    Follow up coaching is arranged as required, sometimes in person but more usually on the phone.

    Venue
    We do therapeutic work and the Lightning Process training programme at the following venues:

    North Hall near Southwold, Suffolk. (pictures and directions to come)

    The Phoenix Centre in Dunwich, Suffolk. The Phoenix Centre

    The Harmony Centre near Halesworth, Suffolk. The Harmony Centre

    Woodbridge Complimentary Health Centre, Suffolk. Woodbridge Complimentary Health Centre

    Ipswich - the venues vary at the moment.

    Accommodation
    For accomodation click here - Tourist Information – Suffolk Coastal
     
  3. Wildcat

    Wildcat Senior Member

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    Phil Parker Group

    About us. The Company

    http://www.philparker.org/The-Company/

    The Company

    The Phil Parker Group is a family of companies specialising in empowering people to maximise their potential and embrace life to the full. We believe in making a difference. The Group was established in 2009 to bring together all the products and services developed by Phil Parker under one umbrella.
    Our ethos allows talent to flourish and our stakeholders to work as a team to support and grow the different brands within the Group.
     
  4. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    On 4 August, I had noted that the Rowan Centre had changed the text:

    "People using the Lightning Process have recovered from, or experienced significant improvement with the following issues and conditions"

    to

    "We have helped people with the following illnesses and conditions..."

    and that the several testimonials on the site from Dr Munglani also appeared to have disappeared. In July (I took copies of some of the webpages on 19 July) Dr Munglani's testimonials had read:

    "I have been very impressed with the results of the LP. I have seen the lives of some of my patients transformed by this self empowering technique. Everyone who has battled with chronic illness and wants to win should have an opportunity to do the Lightning Process.
    Professor Rajesh Munglani. MB BS DCH DA FRCA FFPMRCA. Consultant in pain medicine.
    West Suffolk Hospital and Nuffield Health Cambridge Hospital."


    It's likely then that the change from LP to the "MindBody Programme" took effect on the website between 19 July and beginning of August.
     
  5. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    I've probably mentioned this before but when charging employers, the Rowan Centre states:


    http://www.simpsonandfawdry.com/employers.htm

    Fees
    The fee to a private individual is 850. The cost to employers is 1,500 per person (we keep the fee to individuals low because they are often not working and unable to afford it easily, whereas an employer will benefit financially from investing in their employee).



    So that's 1,500 for each employee for presumably the same course of sessions of 5 hours per day for three days when they are already charging individuals one of the highest rates I have seen (LP courses range from 650 to 850 from what I have seen).

    Austin Healey's testimonial for LP has also gone from the site along with Dr Munglani's.
     
  6. Bob

    Bob

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    I've asked the ME Association, and its board of trustees, for a position statement on The Lightning Process, generally, as a therapeutic approach for adults or children with ME.
    I'll update this thread if I get a reply.
     
  7. carol

    carol

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    I started taking Amlodipine prior to starting the lightening course. I felt a lot better. Then I had to stop the amlodipine after 3 months. 2 weeks after stopping the drug I started to feel a whole lot worse. I carried on ignoring my symptoms and doing the NLP, I'm now in bed 24hrs a day, but I.ve been classed as a success! I was stll ok for the first follow up call and then was unable to take further calls as I had lost my voice. How many more are there like me classed wrongly as a success. Now my husband wont pay for anything else as he's branded ALL non NHS treatments as Quackery.
     
  8. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Carol,

    I'm very sorry to hear that you are bedbound.

    Have you made your LP practitioner aware that any improvement you experienced at that time was not sustained and that you should not be classified as a "success"?

    Suzy
     
  9. Bob

    Bob

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    OK, we have a speedy reply from Charles Shepard:

    Here is their 'comment' about LP, taken from the link given:

    And about LP's effectiveness...

     
  10. Bob

    Bob

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    I've just received a helpful second reply from Charles Shephard...

     
  11. Bob

    Bob

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    If LP practitioners and promoters are still making "misleading or inappropriate therapeutic claims" then maybe we could list them, when we come across them, in a new thread?
     
  12. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Bob, as there are already four threads on LP that have been active this year, if you do start another thread specifically for listing the sites of specific LP practitioners and promoters could you post the URLs for the other threads, please, in the first post so that material on, and discussion around LP does not become fragmented across five threads and so that general information around and comment on LP that has already been posted in the other threads does not get repeated.

    The links are:

    Thread: Article: An MD on the Lightning Process:

    http://www.forums.aboutmecfs.org/showthread.php?4687-Article-An-MD-on-the-Lightning-Process

    Blog post: The April Dr Frivold blog article that Cort published:

    http://www.forums.aboutmecfs.org/blog.php?b=364#comments

    Lightning Process to be Evaluated in Research Study on Children:

    http://www.forums.aboutmecfs.org/sh...to-be-Evaluated-in-Research-Study-on-Children

    My son & i are giving the lightning process a go on this week:

    http://www.forums.aboutmecfs.org/sh...iving-the-lightning-process-a-go-on-this-week

    Suzy
     
  13. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Here's one that changed its wording:

    http://www.x-eed.com/page/services

    Our promise to you is that we will train and coach you to the best of our ability. We train with compassion and integrity and are totally committed to helping you get the change.
    You will have to be committed to your success, and apply the process consistently! The good news is we have the support structure in place to guide and support you for as long as you want and need. Step by step we will show you how to create lasting change!

    What do we work with?

    Asthma
    Rheumatoid Arthritis
    Depression
    Ocd
    Anxiety And Panic Attacks
    Insomnia
    Cerebral Palsy
    Low Self Esteem
    Hyper And Hypo Thyroidism
    Chronic Aches And Pains
    Ibs
    Anger Issues
    Ptsd
    Allergies
    Type 2 Diabetes
    Migraines
    Noise And Light Sensitivity
    And Many More

    When you train with X-EED you will periodically be given the opportunity to emerce yourself in life changing experiences to support your new learning.

    --------------

    Interesting spelling of "immerse"!

    At 4 August (when I brought this site to the attention of the MEA), the site had been using the text:


    What does it work for?

    People using the Lightning Process have also recovered from, or experienced significant improvement with the following conditions: -

    Fibromyalgia
    Chronic Fatigue Syndrome
    Post Viral Fatigue
    Asthma
    Rheumatoid Arthritis
    Hayfever
    Depression
    Dyspraxia
    Bipolar Disorder
    Ocd
    Anxiety And Panic Attacks
    Insomnia
    Cerebral Palsy
    Low Self Esteem
    Parkinsons Tremors
    Motor Neurone Disease
    Hyper And Hypo Thyroidism
    Chronic Aches And Pains
    Ibs
    Lyme Disease
    Anger Issues
    Food Intolerances
    Coeliac Disease
    Ptsd
    Candida
    Allergies
    Type 2 Diabetes
    Interstitial Cystitis
    Migraines
    Noise And Light Sensitivity
    And Many More

    Using the Lightning Process has proven effective for clearing ALL the debilitating physical and mind based symptoms of ME, chronic fatigue syndrome, and post viral syndrome.

    Some of the symptoms that people have cleared are listed here...

    Addictions, adrenal problems, allergies and intolerances, anxiety, balance problems, bloating, blurry vision, brain fog, candida, chemical sensitivity, compulsive behaviours, concentration problems, confusion, constipation, depression, diarrhoea, dizziness, electrical pulsing sensations, excessive sleeping, exhaustion, fatigue, fear, feeling detached or disconnected, fever and chills, flu-like symptoms, frequent coughs and colds, fybromyalgia, hallucinations, head pain or pressure, heartburn, indigestion, insomnia and other sleep disturbances, irritability, irritable bowel syndrome, itching and rashes, itchy eyes, joint pain, light sensitivity, loss of vision, malaise, memory loss, migraines, muscle pain, nausea, noise sensitivity, oedema, panic attacks, painful and/or swollen glands, pins and needles, restless leg syndrome, runny nose, sensitivity to electrical fields/computers/mobiles etc, shaking, shooting pains, skin sensitivity, stomach pain, sun burn sensation, swelling, temperature control problems, thrush, thyroid problems, unrefreshing sleep, vertigo and similar sensations, vomiting, water retention, watering eyes, weakness.....and probably many more

    We advise you to consult your GP, have the necessary tests and obtain a diagnosis before applying for the Lightning Process training programme

    --------------

    And one that hasn't changed its wording:

    A Manchester and Cumbria practitioner

    http://www.helenjames.com/

    The Phil Parker Lightning Process ™ is a hugely successful training programme which has transformed the lives of thousands of people whose problems had previously seemed impossible to resolve such as Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Post-Viral Fatigue Syndrome (PVFS), Fibromyalgia, Multiple Sclerosis (MS), Obsessive Compulsive Disorder (OCD), Anxiety, Depression and many other debilitating issues.

    Helen James is a fully qualified Lightning Process Advanced Practitioner, with many years experience in helping people to recover from numerous conditions. For more information about Helen see the About Helen page.

    Many people that have already used the Lightning Process to recover from the above conditions had previously tried all sorts of alternative healthcare treatments and complementary therapies, but the only treatment that is consistently helping 1500 suffers a year to recover is the Lightning Process. 85% of people that have the attended a Lightning Process training make a full recovery, and the recovery is permanent.


    http://www.helenjames.com/lightningProcess/more

    Further applications for the Lightning Process

    The Lightning Process can help you to recover from / resolve any of the following...


    •Myalgic Encephalomyelitis (ME)
    •Chronic Fatigue Syndrome (CFS)
    •Post-Viral Fatigue Syndrome (PVFS)
    •Fibromyalgia
    •Depression
    •Obsessive Compulsive Disorder (OCD)
    •Overwhelmedness
    •Feeling stuck
    •Guilt
    •Asthma
    •Allergies including Hay Fever
    •Bipolar Disorder
    •Irritable Bowel Syndrome (IBS)
    •Food intolerances
    •Hyper and Hypo Thyroidism
    •Migraines
    •Multiple Sclerosis
    •Post Traumatic Stress Disorder (PTSD)
    •Anger Issues
    •Rheumatoid Arthritis
    •Anxiety and Panic Attacks
    •Perfectionism
    •Procrastination
    •Coeliac Disease
    •Dyspraxia
    •Focal Dystonia (undesirable muscular contraction or twisting)
    •Insomnia
    •Low self esteem
    •Lyme Disease also known as Borrelia or Borreliosis.
    •Noise and Light Sensitivity
    •Torticollis
    •Chronic Aches and Pains
    And it's also effective for enhancing:

    •Business success
    •Peak Sports Performance

    ------

    http://www.helenjames.com/lightningProcess/multipleSclerosis

    Multiple Sclerosis (MS)
    Over the last few years we have started to see number of people getting impressive results when using the Lightning Process with other neurological conditions such as CFS, Parkinsonian type tremors, cerebral palsy and strokes. As a consequence we were asked whether the Lightning Process could be used for improvement and recovery with any other types of neurological illness, particularly Multiple Sclerosis...
     
  14. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    LP pilot study (SMILE) Time Plan

    A reminder of the Time Plan for the SMILE pilot study

    [​IMG]
     
  15. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Update on NRES scrutiny of complaints received in relation to SMILE LP pilot study

    Update on NRES scrutiny of complaints received in relation to the Dr Esther Crawley led SMILE Lightning Process pilot study

    On 16 November, I had received the following response from Ms Joan Kirkbride (Head of Operations, England National Research Ethics Service (NRES), National Patient Safety Agency):

    "We are collating a list of all the people/organisations who have contacted us about this study. We have received considerable correspondence about this matter which will take some time to consider and take forward but it is our intention to advise everyone who has written to us about the process and the outcome."


    Yesterday, 5 December, I wrote again to Ms Kirkbride to enquire whether there is a date by which she anticipated contacting those who have written to her in connection with this pilot study with an update on the progress of the scrutiny of the complaints and concerns that have been received.

    Ms Kirkbride has responded this morning that letters are being sent out this week.
     
  16. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    NRES Letter

    ME agenda Post: http://wp.me/p5foE-3fO

    PDF: http://tinyurl.com/NRESletterSMILE-Pilot

    that is: http://meagenda.files.wordpress.com/2011/01/2011-01-05-letter-smile-sc.pdf



    6 January 2011

    Mrs Joan Kirkbride
    Head of Operations
    National Research Ethics Service
    Darlington PCT
    Dr Piper House, King Street, Darlington DL3 6JL

    Direct Line – Mobile 07979 806425
    Tel: 01325 746167 (Assistant – Janet Kelly)
    Fax: 01325 746272
    Email: joan.kirkbride@nres.npsa.nhs.uk
    Website:www.nres.npsa.nhs.uk


    Dear Ms Chapman

    Assessing the feasibility and acceptability of comparing the Lightning Process with specialist medical care for Chronic Fatigue Syndrome (CFS/ME) - pilot Randomised Controlled Trial

    This study, exploring how best we might treat children with Myalgic Enchephalitis [sic] or Chronic Fatigue Syndrome under the guidance of Dr Esther Crawley, Senior Lecturer/Consultant, Child and Adolescent Health sponsored by Bristol university and with the active participation of the association of Young People with ME (AYME) was reviewed on 8 July 2010 by the South West Research Ethics Committee (REC) as part of standard research regulation and ultimately received a favourable opinion on 8 September 2010.

    Subsequently the National Research Ethics Service (NRES) received a number of emails and letters about this study and, despite being satisfied with the ethical review, felt it fair to give consideration to the issues raised.

    It was clear that the application had received a considered and extensive review of the ethical issues of the project prior to the issue of the favourable opinion. This met all required procedures and processes, however, in view of the weight of correspondence received, much of which raised very similar issues, NRES asked the REC to consider the application, taking into account the issues that had been raised in the subsequent correspondence. Dr Hugh Davies, NRES Ethics Advisor provided a summary to the REC on the issues which had been raised and the opportunity was offered to Dr Crawley and the research sponsor to respond to the issues raised.

    In December 2010, the South West REC met again to consider the application and associated documentation. Dr Davies and Mrs Kirkbride attended the meeting to provide advice and support to the REC in relation to ethical matters and operational processes. Dr Crawley was also invited to attend the meeting and was accompanied by sponsor representative Professor David Gunnell. The Chief Executive of the Association of Young People with ME (AYME) had been due to attend to offer support but as a result of illness was unable to do so and sent in a letter of support. The REC considered all the information available to it and discussed the application and agreed a number of questions which they then put to Dr Crawley. After this interview and further consideration the REC agreed that they would uphold their initial decision to grant a favourable opinion to the research with one minor change to the patient information documentation and one suggestion for the future should the research progress beyond a feasibility study.

    Given the uncertainties of treatment of this condition and the need to resolve these, in line with professional guidance and duties, the REC felt this project would be a valuable start. A copy of the minutes of the meeting are attached and provide full detail of the discussions and agreements reached. I would like to thank you for your time in raising with NRES your concerns about the study. NRES believes that the initial application received a thorough review and an extensive reconsideration of the application at the December meeting and that it has fulfilled all its duties in the ethical review of the application.

    Yours sincerely

    JOAN KIRKBRIDE
    Head of Operations, England


    Encs Minute of the application discussion


    National Research Ethics Service, National Patient Safety Agency, 4-8 Maple Street London W1T 5HD
    Tel: 020 7927 9898 Fax: 020 7927 9899


    Extract of Minutes from South West 2 REC meeting held on 2 December 2010.

    5.1 10/H0206/32

    Assessing the feasibility and acceptability of comparing the Lightning Process? with specialist medical care for Chronic Fatigue Syndrome or Myalgic Encephalopathy (CFS/ME) - pilot Randomized Controlled Trial.

    Chief Investigator: Dr Esther Crawley

    Type of review: Other

    Sponsor: Royal National Hospital for Rheumatic Diseases NHS Foundation Trust


    Joan Kirkbride, NRES Head of Operations advised that the REC had previously given this study a favourable opinion to this study. Following this, NRES had dealt with a number of requests under the Freedom of Information Act from people and organisations who had raised a number of objections about the study. In view of this correspondence NRES asked the REC to debate these representations. Her attendance and that of Dr Hugh Davies, NRES Ethics Advisor at today's meeting was to provide the REC with any guidance they may require in relation to process and ethical considerations.

    To facilitate this review, Dr Davies, had put together a paper which included a collection of representations made on this study. The points raised by the representations were distilled into 15 issues that the Committee discussed in turn.

    Permission had been sought from people who had sent correspondence to NRES to forward this information to Dr Crawley. Dr Crawley had provided a detailed response, which included letters from Mary-Jane Willows, CEO of Association for Young people with ME (AYME) and Colin Barton, Chairmen [sic] of the Sussex and Kent ME/CFS Society which the REC had available for consideration.

    1. The study is misnamed and should be seen as more than a pilot study.

    The Committee felt that 96 participants may be quite a lot to recruit for a feasibility study and queried if a 30% drop out rate was expected. In discussion with the researchers the REC were happy with the title of the study

    2. Purpose

    The Committee reviewed what data was available comparing the effectiveness of different treatments. This data seems to indicate that the Lightning Process is as effective/ineffective as many other current treatments and that more research is needed to resolve these uncertainties for the benefit of ME patients.

    3. The Lightning Process (LP) is subject to trading standard and Advertising Standards Authority (ASA) enquiries

    Complaints that Mr Parker made unsubstantiated claims of effectiveness have been upheld by the ASA and this is in line with data from the ME society indicating it is effective (or ineffective) or harmful as other therapies. It was noted that the judgement of the ASA was made after the submission of the application to the ethics committee . And corrective action had been taken

    4 Mr Parker is shortly to attend court for making false claims about his product

    The Committee noted the correspondence submitted by Dr Crawley from Mr Parker and the refutation of this. The Committee considered this but had no further comments to make on this point

    5 Conflict of interest

    The REC considered this and felt they were similar to much other research and that they were adequately handled in the application

    6. Mr Parker has a history of past failed businesses

    The Committee noted the correspondence submitted by Dr Crawley from Mr Parker refuting this. The Committee considered this.

    7. Mr Parker has used the study to increase sales

    No evidence has been provided that Mr Parker has specifically used this study to increase sales. It was noted that the adjudication by the Advertising Standards Authority (ASA) had stated that “The ad [16 June 2010 Internet sponsored search] must not appear again in its current form. We [the ASA] told Withinspiration to ensure they held substantiation before making similar efficacy claims for the lightning process” and that all Lightning Practitioners had been advised of this. The protocol and application clearly state that practitioners had been informed that they must make NO therapeutic claims on the basis of this study.

    8. The complainants claim it is not appropriate to research children before work has been conducted in an adult population that can give consent

    It was felt that respondents had selectively quoted from guidance about the acceptability to undertake research on children.

    The Committee accepted the researcher's view that t CFS/ME is different in children and adults and therefore results from research on adults cannot be extrapolated to children.

    9. Risk

    The Committee noted that the intervention was in addition to standard care. The ME association survey data seemed to suggest it is as effective, ineffective or harmful as many other current treatments. Evidence of the risk provided to NRES was anecdotal and of low evidential value, reinforcing the need for such a trial as this one.

    The Committee felt that there may be a slight risk of a child being worse after therapy (but equally a chance of improvement) and considered that they could withdraw at any time from the study if they wanted to. Supervision of the process was in place

    10. Service user involvement

    The Committee were reassured by the fact that AYME had been consulted during the planning of this study.

    11. The role of the External Advisory group

    The Committee considered that AYME has been consulted during the planning of this study.

    12. The claims that the LP is coercive and bullying

    The Committee considered this but were satisfied by the processes and precautions in place in the study..

    13. Concern about the “primary endpoint”

    The Committee clarified that this is only a feasibility study and that the primary endpoint is to see if it [sic] a full study is possible. The Committee also suggested that the secondary endpoint could be altered to assess the return to the education that children were in prior to their treatment rather than attendance at school.

    14. A lack of generalisability

    The Committee considered that the researchers accepted that they would not be able to generalise from this to children who had severe ME that kept them at home. It would still provide data on other children with this condition.

    15. Participant Information

    The Committee was unsure if the ME groups have enough information in the PIS to join.

    The Committee felt that the PIS should include statistics on the risks of getting worse, whether there was no change, or whether the treatment was helpful.

    The Committee debated whether, in order to address a possible perceived lack of training of those that might be conducting the Lightning therapy that a practitioner who is subject to a professional code of conduct could be used to deliver the therapy. This was also considered in discussion with the researcher.

    The Committee also wanted to know if the research has begun recruitment.

    Dr Esther Crawley and Professor Gunnell were invited to join the meeting and were asked by the Vice-Chair to clarify the following issues:

    Q1: Is there anything you would like to say regarding your study?

    Dr Crawley said that this research had the full support of children and families, indeed the impetus for starting it came from children and families and had the support of AYME. They started recruiting in September and this is well up to schedule. Dr Crawley said that it was a feasibility study and the Committee were content with this.

    Q2: You stated that the study has started recruiting,

    Dr Crawley stated there has been a high recruitment rate so far. Participants have not started receiving treatment yet.

    Q3: Please explain your recruitment figures and what dropout rate are you expecting?

    Dr Crawley replied that 96 participants may seem high for a feasibility study this number is smaller than that for some other feasibility studies and reflects both the expectation of up to 50% dropout in one of the arms and a moderate treatment effect (participant numbers reflect the need to ensure there is sufficient data to reliably estimate sample size requirements for the full trial). Therefore they need high numbers to keep the numbers up to judge across the arms and see why people are dropping out.

    Q4: Are there differences in the way children and adults are treated?

    Dr Crawley replied that the treatment approaches are very different in the two groups. There are lots of points of difference but given the outcome is so different between adults and children, adult services tended to focus on symptom management whilst paediatric services aimed for recovery. In addition, paediatric services involved families and dealt with education not work. She added that children are already receiving this treatment and that we need to evaluate it to see if it works.

    Q5: The practitioner of the lightning therapy has no other allied professional qualifications. The Committee suggested that it might be beneficial to the research if the practitioner had external qualifications other than in Lightning therapy and was covered by a code of conduct?

    Dr Crawley replied there is a geographical limitation to who can be chosen and that she has worked before with the Bath practitioner who is good. In addition, the children will remain under her care. Prof Gunnell pointed out that children will continue to be under the specialist service in both arms. As the Chief Investigator for the study Dr Crawley accepted responsibility for the activities of the research team and pointed out that in this feasibility study, all Lightning intervention sessions will be recorded and some observed.

    The Committee requested that the fact that the practitioner is not clinically qualified be added to the PIS.

    The Committee suggested that consideration should be given to using “clinically qualified” Lightning Practitioners should the feasibility study proceed to a full study in the future.

    Q6: The risk balance of the study is not included in the PIS.

    Dr Crawley and Professor Gunnell replied that they would be happy to add this to the PIS. They added that according to the figures in the Parliamentary Inquiry into NHS Service provision for ME/CFS, Lightning therapy fares better than the standard NHS therapies of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT).

    It was noted that this information related to treatment in adults. Data for children was not available. They also added that when patients get better they also don't tend to take part in surveys.

    The Committee asked for these figures to be added to the PIS and to reference them so they are available but to note that they are relative to adults.

    Q7: The Committee discussed the secondary endpoint regarding returning to school and suggested that it could be altered to assess the return to the education that they were in prior to their treatment rather than attendance at school.

    Dr Crawley replied that recruitment and retention is the primary endpoint of the study as it is a feasibility study. She added that the inventory used to measure school attendance also measures home tuition. Those children that are house bound are excluded from the study as they have to be able to get to the clinic.

    Dr Esther Crawley and Professor Gunnell left the meeting.

    The committee felt that given current treatment uncertainty research was vital in this area and the proposal is a standard way to assess this. Currently survey data were limited and it was unwise to base health policy on individual case reports. It is vital to see if the lightening [sic] process is or is not helpful as children are already receiving this therapy.

    The committee voted unanimously to confirm the favourable opinion of the application with the following additional conditions:

    1. PIS for Teenagers and PIS for Parents: Please add the fact that the Lightning Practitioner is not clinically (medically) qualified (trained).

    2. PIS for Teenagers and PIS for Parents: Please include the following text in the "Are there any disadvantages to taking part" section:
    "Teenagers with CFS/ME can get worse with any intervention offered. There is no data in teenagers, see tables 1 and 2 for data in adults."

    3. PIS for Teenagers and PIS for Parents: Add the figures for GET, CBT and the LP from the Parliamentary Inquiry into NHS Service provision for ME/CFS* include Data taken from Action for ME (AfME) and Association of Young people with ME (AYME) joint report “M.E. 2008: What progress” and reference it.

    4. PIS for Teenagers and PIS for Parents: Add the figures for GET, CBT and the LP from the 2008 MEA survey and reference this.

    The Committee suggested that for the future Dr Crawley might consider using Lightening [sic] Practitioners who were additionally clinically qualified.

    Decision

    The Committee restated the favourable opinion of the application.

    The Committee nominated Tom Lucas to be the point of contact should further clarification be sought from the applicant.

    [Ends]

    -----------------------------------

    *Ed: Note: The Inquiry into NHS Service provision for ME/CFS was not a “Parliamentary Inquiry”. This was an unofficial inquiry instigated and undertaken by the APPG on ME. The interim report published by the APPG on ME, last year, does not have the authority of either House nor any government agency or department.
     
  17. Snow Leopard

    Snow Leopard Senior Member

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    50% Dropout rate. LOL

    What a joke.....
     
  18. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    This reads as though a complaint against Phil Parker, specifically, had been submitted to the ASA and that a judgement had been made after the application to the ethics committee (which had been submitted on 14 June 2010*).

    *Date application submitted provided under FOIA by Jonathan Cramp, FOI Manager, NHS South West.


    I have checked the ASA site and the only judgement that I can see for "Lightning Process" is the 16 June 2010 judgement for Withinspiration (Alastair Gibson, one of the study collaborators) - the one we already knew about.*

    It seems probable then that the above refers to the judgement on the advert associated with Withinspiration and not to any advert by Phil Parker, himself. (Note that the remit of the ASA does not yet extend to website content).

    If anyone is able to clarify that is was the case post May/June 2010 a second complaint specifically about an advert by Phil Parker resulted in an additional judgement being handed down (though none is archived on the ASA website other than that for Withinspiration) I would be pleased to have confirmation.


    * ASA judgement, June 2010:

    http://www.asa.org.uk/ASA-action/Adjudications/2010/6/Withinspiration/TF_ADJ_48612.aspx
     
  19. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Note the PIS (Patient Information Sheets) on the University of Bristol website don't appear to have been revised yet:

    http://www.bristol.ac.uk/ccah/research/childrencomplexhealthneeds/chronic-fatigue/smile.html

    Note also that in May 2008, in the Bristol media, Dr Crawley had dismissed the Action for M.E./AYME joint patient survey results for GET as being "unreliable":

    "However Dr Esther Crawley, an ME specialist based at the Royal National Hospital for Rheumatic Diseases in Bath and who helped to draw up the Nice guidelines, dismissed the findings, saying the survey was unreliable.

    This survey is based on a biased sample of people who have had an issue with treatment and we cannot deduce who had graded exercise therapy delivered by a specialist, as Nice recommends



    http://meagenda.wordpress.com/2008/05/16/dr-esther-crawley-condemns-afme-survey-as-unreliable/

    TREATMENT IS MAKING TEENAGERS ME WORSE

    BY ALEISHA SCOTT EPNEWS

    07:00 16 May 2008

    A young ME sufferer says a treatment recommended by the Government makes her feel worse, not better.

    Helen Wood, 18, from Thornbury, is not alone. A survey by Action for ME revealed a third of people with the condition who had a treatment called graded exercise therapy, also reported it made them worse.

    ME, also known as chronic fatigue syndrome, causes a range of symptoms including muscle pain, tiredness, headaches, sleep disturbances and difficulties with concentration.

    The charity, which released the figures as part of ME Awareness Week, also said GPs were still largely unsupportive towards patients who had ME.

    Helen was diagnosed with ME in 2005 but is thought to have had it for at least 10 years.

    The condition makes her immune system weak and vulnerable to infection and she said she was constantly exhausted and suffered from aches and pains.

    She has not been to school since April 2004 and despite having home education, has not been able to finish her GCSEs because of the illness.

    She sees a psychologist at Bristols Frenchay Hospital and also a dietician, but is rationed to just one appointment a month with her GP.

    Her graded exercise therapy involves her walking up and down the stairs or getting in and out of the bath easy enough for most people but not for Helen.

    I have been told to walk up and down the stairs a few times a day to get my muscles working but sometimes it makes me feel bad and sometimes I feel worse afterwards, she said.

    Im not able to do much at all and I feel really achy all the time and tired, I would really like to go out more but I just cant manage it.

    She added:Talking helps the most because I can get things off my chest.

    But I would like people to understand ME better, I dont think that doctors do at all because they think it is all in the mind but its not, its a physical thing.

    The National Institute of Clinical Excellence (Nice) guidelines tell doctors to develop a personal plan for each of their patients, recommending cognitive behavioural therapy and graded exercise therapy as treatments.

    Graded exercise therapy encourages patients to gradually increase physical exercise or daily tasks irrespective of how they feel.

    But while Action for ME accepted the treatment could help some, it said that 34 per cent of ME patients in its survey said graded exercise therapy had made their ME worse.

    However Dr Esther Crawley, an ME specialist based at the Royal National Hospital for Rheumatic Diseases in Bath and who helped to draw up the Nice guidelines, dismissed the findings, saying the survey was unreliable.

    This survey is based on a biased sample of people who have had an issue with treatment and we cannot deduce who had graded exercise therapy delivered by a specialist, as Nice recommends, she said.

    Delivered by a specialist, it actually reduces activity to a stable level and then to a small amount each day. We have had above 85 per cent of people who said they have been happy with their treatment.

    We do not say to people they have to have the therapy, we give them a range of options and they choose.

    [Media article ends]
     
  20. Bob

    Bob

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    Thanks Suzy, for posting the letter and minutes from the ethics committee.

    I find it disturbing that the committee did not discuss, what is for me, one of the most important issues surrounding practising LP on children, which is the possible potential danger to the child of long-term developmental and psychological damage, due to the LP system of training the child to ignore the pain and illness signals that they receive from their own bodies. We all learn to respond to pain and symptoms of disease in order to protect ourselves from damage. If children are taught not to trust these signals of ill-health, and not to trust the truth of their own subjective experiences, and are taught that they are deceiving themselves and the people around them (when they aren't), then I think that this sets them up for a life time of serious psychological issues. Indeed, in reality, they are actually being trained to deceive themselves and the people around them by denying the reality of their illness, but they are taught that this deception is the truth. How is a child supposed to endure this corrupt process and remain balanced and psychologically healthy?

    I would like to see a child development expert carry out a full evaluation of the Lightning Process, and its potential dangers as a mind-training course for children. A safety evaluation should be carried out on the Crawley study, and LP generally, by a child developmental expert, before children are exposed to LP. I'd also like to see a child development expert oversee the Crawley project, and to monitor each child, although, actually, children shouldn't be exposed to any mind-training programs which have potential to harm them, in the first place.

    It is quite likely that children exposed to LP will not want to discuss the subjective experiences, of their illness, candidly with either their guardians or their doctors, after undergoing a LP mind-training course, due to the nature of the training, and the way it coerces patients to attempt to 'believe' that they are not ill, even when they are seriously ill. This restriction in the child's willingness to communicate would further jeopardise the child's health. The Lightning Process is too complex a system of mind training for young minds to be able to comprehend, and it may well lead to children having a false a understanding about the nature of illness and pain, which might set them up for a life time of psychological damage.

    The committee also didn't appear to fully discuss, or gain any insight into, the coercive nature of the LP mind-training system, and how it has the potential to be abused due to it's very nature of telling children that they are not actually ill but that they only have a (false) belief that they are ill. This sort of corrupt, pseudo-medical practise can easily spill over to treating the children as if: they are only ill because they want to be ill; the illness is all made up in their heads, is due to a false illness belief, and is therefore purely a somatoform disorder; they are not cooperating with their treatment when they don't respond positively to the mind-training program; they are ready to go back to school when they haven't actually responded positively to the mind-training program, and aren't yet ready to return to education. All further symptoms described or exhibited by the child patient have the danger of being viewed purely as a result of the child not cooperating with the training program, and having a wish to remain ill. This could lead to forms of patient abuse and neglect of the child's human rights. The fundamental basis of the Lightning Process is that patients are only ill because they believe that they are ill, so where does this leave people who don't respond to LP? It leaves them being accused of having a false illness belief, and a somatoform disorder (i.e. a mental illness).

    But all of you know all this already... It's deeply regrettable that the authorities still don't understand this.
     

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