Snow Leopard
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What on earth are GOSH and Barts doing giving LP a platform?
Do they think that LP is CBT rebranded or something!?!
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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What on earth are GOSH and Barts doing giving LP a platform?
Crawley's characterisation of 'malicious' correspondence is unsubtantiated, and could quite possibly be merely a subjective description of discomfiting but accurate critique of her trial and her psychogenic explanations for ME or CFS in children.
Needs to be remembered - this sort of thing (unsubstantiated claims of malice applied to legitimate critique) is VERY common in contested issues.
(This may have been mentioned before) There have been no RCTs of GET on children and not many other trials either. Children/parents could use this to claim GET isn't "evidence-based" for children!!Our protocol makes it clear that CFS/ME in children is not sufficiently close to CFS/ME in adults to mean that research in adults could be extrapolated to children.
Shouldn't there actually be research into whether ME in children is biological different to ME in adults before she can make such claims?
I wonder does she then think the RCPCH guidelines for children are not evidence-based as they are largely based on evidence from adults from what I recall: http://www.rcpch.ac.uk/doc.aspx?id_Resource=1480 .(This may have been mentioned before) There have been no RCTs of GET on children and not many other trials either. Children/parents could use this to claim GET isn't "evidence-based" for children!!Our protocol makes it clear that CFS/ME in children is not sufficiently close to CFS/ME in adults to mean that research in adults could be extrapolated to children.
Best of luck. There's some information at: http://www.sayer.abel.co.uk/LP.htmlDoes anyone have a link to a clear description of what an LP course involves? (i.e. an exact description of what a 'trainee' has to do.)
I know that there's a description somewhere, but I can't remember where...
I want to add it to what I'm writing.
But I heard these people state that: Myalgic Encephalomyelitis = Chronic Fatigue Syndrome = Chronic Fatigue = Depression = Somatoform Disorder = Neurasthenia = Munchausen Syndrome by Proxy (for under 16s) or Malingering (for over 16s).
No. The requirement for all claims to be substantiated by evidence only applies to other people. Crawleys may waive that requirement whenever it is essential to do so in order to uphold a central plank of their case. Besides, the protocol makes it clear. That should be enough for anyone.Shouldn't there actually be research into whether ME in children is biological different to ME in adults before she can make such claims?