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Life according to ME: Caught in the ebb-tide

Discussion in 'Latest ME/CFS Research' started by Dolphin, Jul 31, 2016.

  1. Dolphin

    Dolphin Senior Member

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    Life according to ME: Caught in the ebb-tide
    1. Olaug S Lian
      1. University of Tromsø – The Arctic University of Norway, Norway
    2. Frances Rapport
      1. University of Tromsø – The Arctic University of Norway, Norway; Macquarie University, Australia
    1. Olaug S Lian, Department of Community Medicine, Faculty of Health Sciences, University of Tromsø – The Arctic University of Norway, 9037 Tromsø, Norway. Email: olaug.lian@uit.no
    Abstract

    In this article, we explore the role of ‘place’ in shaping people’s illness experiences through a data-led inductive case-study based on experiential data from people living with myalgic encephalomyelitis (ME) in Norway.

    Our main aim is to understand how they experience, interpret and attach meaning to various places in which they reside, and how they construct the course of a life influenced by chronic illness.

    The study is based on stories containing photographs and written texts, received from 10 women and men. In their stories, they describe those places where they experience their illness in the least and most taxing ways.

    Through a narrative and photographic analysis of their stories, we explore how they perceive the relationship between place and illness as experienced, managed and endured.

    Our analysis is based on a place-sensitive sociology, in which we approach place both as physicality and a symbolic construction.

    The participants describe how a wide range of places are intimately linked to their illness experiences, and they interpret these links by referring to both physical and symbolic factors.

    They describe their lives in terms of a need for equilibrium between activity and rest. Risk is a strong underlying theme: whatever they do, they risk losing something.

    Most of all, the participants describe how they are looking for places to escape to and from.

    Places to escape to are those places where privacy and peace can be found, which primarily revolve around being at home.

    Places to escape from are those places that make their energy ‘slowly ebb away’.

     
  2. Dolphin

    Dolphin Senior Member

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    I have read this now.
    I found it sympathetic: I think there is nothing in it that I would disagree with.

    I didn't find there was too much jargon in it or that it was too difficult to read; on occasion I have found sociological pieces difficult to read. It may have that the first language of the authors is presumably not English.

    The results section in particular is quite easy to read.

    I am not sure there was anything earth-shatteringly new to me but then I have been reading people describe their lives with ME for 22 years. There may be value in having it published in the journal so that it can be quoted.
     
    Last edited: Jul 31, 2016
  3. Dolphin

    Dolphin Senior Member

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  4. Dolphin

    Dolphin Senior Member

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  5. Dolphin

    Dolphin Senior Member

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  6. Dolphin

    Dolphin Senior Member

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  7. Dolphin

    Dolphin Senior Member

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    Comet and Valentijn like this.
  8. Sasha

    Sasha Fine, thank you

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    I'm just thrilled to discover that there's the Arctic University of Norway! :woot:
     
    Comet, MEMum, Snow Leopard and 2 others like this.

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