Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Levine Protocol, my POTS DOC uses it. Anyone try it? What was the result?

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by PNR2008, May 31, 2014.

  1. PNR2008

    PNR2008 Senior Member

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    OH USA
    I just had my 4th tilt table test and have crashed from the whole experience. I'm not sure I'm up to an exercise regime or changing the height of my bed. I'm still housebound and mostly bedbound.

    Anyone try Levine Protocol?
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque
    I've heard mixed experiences with this. One person I know crashed on it.

    Sushi
     
  3. rosie26

    rosie26 Senior Member

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    I don't know anything about the Levine protocol. But regarding raising the bed I put some pillows under my mattress at the head end to raise height slightly. I don't think I could have coped with a big change. Perhaps start out slowly @PNR2008 ?
     
    Last edited: Jun 2, 2014
    maryb likes this.

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