Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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letters to media: stop showing tired people

Discussion in 'Action Alerts and Advocacy' started by Samuel, Nov 19, 2009.

  1. Samuel

    Samuel Senior Member

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    The media are at a loss for what pictures or videos to show for the disease. We need to educate them, I think.

    Typically they show people who look tired.

    An attractive and dignified person with oxygen is an excellent portrayal, IMO. A few pictures have been like this, thanks to Andrea (thanks!).

    I also like the two images from the CFSAC testimony.

    Or a person with an IV, perhaps? A person playing sports (before) and lying in bed (after)? A list of symptoms flashing on the screen?

    I think that we have to supply them with ideas by writing them letters.

    What do you think?
     

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