The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Letter to the king of Norway from 58 children with ME

Discussion in 'Action Alerts and Advocacy' started by Sasha, Feb 8, 2015.

  1. Sasha

    Sasha Fine, thank you

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  2. Roy S

    Roy S former DC ME/CFS lobbyist

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    That is excellent and they got it in the online and print version of a major newspaper.
     
    "Quotes from the 58 ME children and youth that support the content of the letter to King Harald:"
     
    "Kill me before I lay eggs." (boy, 15 with ME)
     
    Bravo for keeping a sense of humor!
     
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  3. Sasha

    Sasha Fine, thank you

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    Awful that this (the attempts to remove kids with ME from their parents) is going on in the land of MEandYou - and after an apology from the Norwegian Health Directorate (if that's the institution) about how people with ME have been treated in the past.

    We've all got a long way to go.
     
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  4. Alea Ishikawa

    Alea Ishikawa

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    This is really heart-breaking. Kudos to the advocate.



    This resonates with me. The only time I am closer to "normal" is when I have a cold or flu. After about 2-3 years, I forgot what it was like to be healthy again. You just adjust and get used to the new baseline.



     
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  5. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    :cry:
     
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  6. Denise

    Denise Senior Member

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    Sasha likes this.
  7. Sasha

    Sasha Fine, thank you

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    So do I! Martin Qvist Giercksky is only 17 and has done a brilliant piece of advocacy there. This poor young man has been ill for over half his young life. Fantastically well done of him to write to the king and get all those other signatories together.
     
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