1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Letter To DR. OZ

Discussion in 'Action Alerts and Advocacy' started by Dreambirdie, Oct 10, 2009.

  1. Sunday

    Sunday Senior Member

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    I also sent an email to Dr. Oz. Good idea! It would be great if more people understood this as a disease, not a fantasy, and if there were some exposure to the different possiblities available for us.
     
  2. Dreambirdie

    Dreambirdie work in progress

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    Thanks Sunday. 28 people so far. I'm almost at my goal of 30.
    Plus, hopefully, all the others I don't know about. Anybody else???
     
  3. kolowesi

    kolowesi Senior Member

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    dreambirdie I sent a note

    Sure hope they don't pick me to be on the show. I'm sure my mind would be completely blank:)

    Kelly
     
  4. Dreambirdie

    Dreambirdie work in progress

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    THANK YOU, Kelly! You were my #29.
    And last night a friend of a friend came in as #30 on my list.

    YAY! That's my goal, so I'm done for now.

    I'm hoping others will continue on this mission to inspire the most popular and most watched doctor on tv to do a segment on CFS.

    Thanks Again to all who sent their emails. XXOX
     
  5. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    Emails to Oprah and Dr. Oz sent!!

    :DI have sent an email message to Oprah and Dr. Oz, thanks for the links, that was easy!:D
     
  6. Dreambirdie

    Dreambirdie work in progress

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    Your welcome, Ginggues! I got a note from Mikie yesterday, saying he would send one too! :cool::cool::cool:

    Please pass the word along, as I have, to friends and practitioners.
     
  7. zoe.a.m.

    zoe.a.m. Senior Member

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    Dr. Teitelbaum will appear on Dr. Oz on Friday

    Hope I haven't posted this in the wrong place/thread.

    It's safe to say that I'm pretty underwhelmed by this choice. With all of the exciting science/research taking place in this area, I don't understand why a for-profit Dr./protocol would be his "expert" for CFS.
     
  8. garcia

    garcia Aristocrat Extraordinaire

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    I haven't followed all of this thread but Tietelbaum is a poor choice to represent us IMHO. He just comes off as an airy-fairy light weight. The guru for housewives "who are a bit tired". I saw him on British TV recently and he was pants, even though what he was saying wasn't inaccurate. It was just a pants representation of this serious, serious disease.
     
  9. Koan

    Koan Be the change.

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    Oz has a facebook page with discussions. Problem is, there's more than one. We should pick one, as a group, and post about this.

    (This seemed way more doable before one of my kids started IMing me from overseas. He's at work and is messaging other people, talking on the phone and IMing me! He's ADD which makes all this totally doable, even comfortable, for him. My head is exploding.)

    Anyway, last chance to impact Oz, so to speak. There is no discussion about "CFS" that I could see on the one Facebook page I went to before IMing happened. I went to the show page.

    ZZZzzzzzzzt zzzzzt zzzzt
     

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