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Simon McGrath looks at theories that microglia, the brain's immune cells, could trigger and perpetuate the symptoms of ME/CFS and fibromyalgia.
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Letter To DR. OZ

Discussion in 'Action Alerts and Advocacy' started by Dreambirdie, Oct 10, 2009.

  1. Dreambirdie

    Dreambirdie work in progress

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    Hi Everybody--

    I sent off an email to Dr Oz this morning, requesting that he do a show about CFS/ME, given the recent research findings.

    I'm hoping that some other people here might consider sending him one too. If he gets multiple letters, maybe he will be more motivated to take it on.
    Wouldn't that be great!

    Here's the link
    http://www.doctoroz.com/plugger?tid=21
  2. shrewsbury

    shrewsbury member

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    and Oprah

    Hi Dreambirdie,

    I thought your idea of sending a letter to Dr Oz was brilliant! I sent one. I then thought that the Oprah show would be a good forum as well so sent a suggestion there too. Here's the link if anyone wants to do so as well.

    https://www.oprah.com/ord/plugform.jsp?plugId=216
  3. Dreambirdie

    Dreambirdie work in progress

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    Hi islandfinn--

    Thanks! That makes three of us so far for both. I'm hoping we can get at least 7 more... Anyone?
  4. Koan

    Koan Be the change.

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    Hi All,

    There's a conversation going on right now in the Guardian that is not going well. Please see my post in Advocacy area.

    Many thanks!!!
  5. _Kim_

    _Kim_ Guest

    I just sent one too. Thanks for the idea!
  6. KC22

    KC22 Senior Member

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    Good idea!!

    I just sent my letter to Dr. Oz. Will work on Oprah soon.. It's interesting that we can now say WPI, NCI, and Cleveland Clilnic has research with possible cause and looking into treatment.

    Also, I reference it being the number one hit on NYT and googlenews.com. Millions are interested in this topic now.... HOPE!!!
  7. Dreambirdie

    Dreambirdie work in progress

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    Thanks everybody for posting. Please spread the word about this. :)
  8. lostinthedesert

    lostinthedesert Killer, Clown, Priestess

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    I have no idea who Dr Oz is (lost my TV set years ago) I sent him a letter because I just want to see this information get out there:


    Please do a show on the new research by the Whittemore-Peterson Institute and the National Cancer Institute showing a retroviral link to the disease ME/CFS. I have struggled with this illness and the related neuro-immune conditions Fibromyalgia and MCS for decades. Like many others I have lost my career, home and possessions. My relationships with family and friends have been irreparably damaged since many physicians have treated me as if I was a faker and malingerer. This is a common story among those afflicted with these conditions.

    The findings of the team at WPI also show that about 4% of the general population are carrying this retrovirus (XMRV). This may have huge implications for public health since we do not know if those who are asymptomatic will eventually develop what is now being termed X Associated Neuro-immune Disease, or XAND, nor do we know the exact transmission modes of XMRV.

    I hope you will do a show on this in the very near future and continue to cover this very important medical story.

    Sincerely,
    my name
  9. Dreambirdie

    Dreambirdie work in progress

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    Thanks Susan! :) Great letter.
  10. Dreambirdie

    Dreambirdie work in progress

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    HEY everybody--

    We still could use a few more people to send some emails this week.

    Is anybody out there?
  11. Aftermath

    Aftermath Guest

    Yes.

    Yes.

    Done and sent.

    Let's hope that they pick up on this...
  12. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Also done! Thanks for the link. Would have done it earlier, but like others, my emotions and attention have been jumping all over the place and it has been hard to focus. '

    Thanks for the reminder,
    Sushi
  13. RestingInHim

    RestingInHim Realist

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    I just sent one off too! Please also contact FOX News (foxreport@foxnews.com)...since it is the most-watched news on television. This news needs to get out!!
  14. citybug

    citybug Senior Member

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    Letters to Everybody XMRV

    Hi, I sent email to whitehouse.gov and working on senators and CDC, and keeping nytimes article on most emailed list. I think we should work on everyone even if short. Anyone who influences getting the CDC and NIH to put the money in. My letter is : Research XMRV...
  15. Dreambirdie

    Dreambirdie work in progress

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    THANKS to everyone who has sent an email to Dr. OZ!

    So far that is 13 people from this forum, and 5 others--from another forum, making 18 total.

    I'm hoping we can get a few more today, to bring the number to 25.

    Anybody else out there???
  16. Frickly

    Frickly Senior Member

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    Count me in!

    I sent one today.;)
  17. Dreambirdie

    Dreambirdie work in progress

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    I just notified my local doctor (who has a bunch of CFS patients) about this, and he will send an email to Dr Oz too.

    PLEASE do the same if you can. thanks
  18. Frickly

    Frickly Senior Member

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    Dreambirdie

    This is a little off topic but does concern Dr. Oz. Dr. Mercola sent out a newsletter today about Dr. Oz's show on the flu vaccine. He posted two videos. One on the show where Dr. Oz gets the seasonal flu vac. The other is an interview afterwards where he says he will get the H1N1 flu vac when it is available to the general public but that his wife and children will not. I thought you might be interested in watching it.

    http://articles.mercola.com/sites/articles/archive/2009/10/13/Dr-Oz-Helps-Shill-the-Flu-Vaccine.aspx

    Take care,
  19. bettine

    bettine

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    I too have sent a letter to doctor Oz today, and also asked a friend of mine who doesn't have ME/CFS, but who is a great fan of him, to also send a letter...:)

    Bettine
  20. Dreambirdie

    Dreambirdie work in progress

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    Yay!

    Thank you Bettine. Yes, do spread the word!

    So far 25 people have sent emails to Dr. Oz--18 from this forum, the rest being my personal friends.

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