1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Knitting Equals Pleasure, Despite ME/CFS
Jody Smith loves knitting. Again. She thought her days of knitting and purling were long over but ... she's back ...
Discuss the article on the Forums.

letter to Dr Klimas re name change for clinic

Discussion in 'Action Alerts and Advocacy' started by shrewsbury, Nov 19, 2009.

  1. shrewsbury

    shrewsbury member

    Messages:
    1,540
    Likes:
    55
    As you probably have seen, Dr Klimas is in the process of opening a CFS clinic. I think this is wonderful news, but the name concerns me greatly.

    [​IMG]

    Below is a copy of the email I sent to the office at info@cfsclinic.com regarding the name.

    islandfinn:)

    Hi again,

    I had emailed you earlier today to ask about when the clinic would be opening. Soon after that, I saw the podcast of Dr Klimas interview on South Florida today. Great interview especially liked the santa claus analogy. Good of them to close with the links to the research donation page and to the clinic.

    I am thrilled about the clinic opening. Hopefully youll be the avante-garde of proper medical care for all of us with ME/CFS.

    My one concern, and its fairly big, is the name of the clinic. Why would you use the term chronic fatigue, which is a totally different entity from Chronic Fatigue Syndrome? This seems detrimental to clarifying what ME/CFS really is and to go against all that DR Klimas has achieved to date.

    I STRONGLY urge you to consider changing the name before the clinic opens.

    All the best,
     
  2. gracenote

    gracenote All shall be well . . .

    Messages:
    1,508
    Likes:
    44
    Santa Rosa, CA
    Wow!

    8:50 Posted by Gracenote "I am so very disappointed with the name Chronic Fatigue Center. Can we petition her to change it before her grand opening?"

    9:25 New thread started by Islandfinn letter to Dr Klimas re name change for clinic

    Wow. Now I know who to go to when I need help in my life. ;)

    Great work. Bravo. Way to go. And thank you.
     
  3. shrewsbury

    shrewsbury member

    Messages:
    1,540
    Likes:
    55
    thanks, bow, curtsey, merci

    thanks for the kind words gracenote, but that would be like going to a turtle. I saw your post the second it came out and it took me 35 minutes to do a few minute task!

    But I did do it - so I'll accept a pat on the back.:p

    if:)
     
  4. gracenote

    gracenote All shall be well . . .

    Messages:
    1,508
    Likes:
    44
    Santa Rosa, CA
    Yes you did!

    You are getting so very good at this that I think you've forgotten that even to complete a task before one forgets where one is going is a major accomplishment. But even greater is that you are doing this at all. I love what you posted on another thread.
    I think you are doing remarkably well and are setting a great example for the rest of us.
     

See more popular forum discussions.

Share This Page