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letter Nijmegen to Whitemoore

Discussion in 'XMRV Research and Replication Studies' started by lansbergen, May 1, 2010.

  1. VillageLife

    VillageLife Senior Member

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    A friend of mine got this email from Jerry Holmberg on Friday, He seems to say that Canada, Australia, and New Zealand are not exactly stopping people.....

    -----------------------------
    We have been very busy since the first report published in Science (Oct
    2009). Although there has been confounding studies reported in the US
    and Europe, we still are moving ahead to clarify the testing and our
    understanding of the risk. Once we have standardized the testing, we
    can then proceed with the epidemiology related to transmission.

    I am aware of the action of Canada, Australia, and New Zealand. From my
    understanding, the Canadian action is only for Canadian Blood Service
    and not Hema-Quebec. Also all three of these blood collections are not
    asking a question, only deferring if the potential donor offers the
    information regarding a diagnosis with CFS.

    At the present time, neither the FDA nor the blood community have
    established a deferral policy relative to XMRV, as you know there is
    currently no demonstrated association between the transmission of XMRV
    and blood transfusion transmitted disease. However, FDA regulations
    require that donors should be in good health. In the absence of FDA
    guidance or blood community standard on CFS, the blood collection
    center's medical director is responsible for determining whether a donor
    with history of CFS is in good health.

    We are having the CFSAC on May 10th and I will also be discussing this
    with the Medical Advisory Committee of the American Red Cross in May.

    Jerry A. Holmberg

    --------------------------
  2. ukxmrv

    ukxmrv Senior Member

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    London
    We also have the UK study.

    So far the WPI has 50 bloods from a draw in Ashford. These have been sent to 2 different new laboratories for XMRV testing. The labs are said not to have ever had XMRV in them.

    How far do people think this will go to sorting out the argument?
  3. Martlet

    Martlet Senior Member

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    Near St Louis, MO
    Moderator comment: Please keep to the topic and drop the personal comments as per the forum rules.
  4. omerbasket

    omerbasket Senior Member

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    I would prefer people that are real, that say what they believe in and that uncover the ugly sides of the scientific community (and I have a feeling that WPI know of many other ugly things and doesn't publish it yet, for their reasons).
    I have nothing but amazing words to say about Annete Whittemore, Dr. Judy Mikovits, Dr. Dan Peterson (who, by the way, is finishing, in a decision that was known a long time ago, his job at the WPI as I understood from their website), Dr. Lomabardi and all of the other staff in the WPI. They are great scientists, and they are incredible people who are fighting for us agaisnt the evil in the scientific world, which, if it was in those evils's power, would have kept us sick.
  5. oerganix

    oerganix Senior Member

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    You should be addressing this comment to the European studies' authors since they are the ones who started the fracus, with McClure mentioning Lombardi by name in the first Failure To Find study, and then shedding crocodile tears that CFS patients would be "bitterly disappointed" by their "findings".

    The politics were elevated over science long ago, by the likes of Wessely, for whom McClure is just a mouthpiece, and Kuppeveld. Sometimes one must fight fire with fire. At least WPI has actually been trying to find the cause and cure or treatment of CFS, instead of trying to convince the world that there is no such thing.
  6. oerganix

    oerganix Senior Member

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    Me, too. (Can't wait, that is. Don't understand speaking through closed hands.) According to PR thread on Mikovits in Spain, she says there are 4 more papers coming out soon!

    This is my post in the thread on Mikovits in Spain: (the blogger is a Spanish pharmacist)

    Dr Judy charms 'em in Spain; gets Nobel Prize nomination
    Also interesting that the blog says Dr Mikovits is working with Dr Clotet, looking for XMRV in CFS patients in Catalonia, AND will publish in the next few months.

    The blogger ends with this:
    "An exquisite, very accessible and otherwise charming Mikovitz Dra.
    From here my support for Nobel Prize in Medicine, if the thing turns out to be it,and it seems so."



  7. oerganix

    oerganix Senior Member

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    I agree with you Omar. Silence gives consent. All it takes for evil to triumph is for good people to do nothing.
  8. ixchelkali

    ixchelkali Senior Member

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    Long Beach, CA
    :D:D:D
  9. ixchelkali

    ixchelkali Senior Member

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    But it wasnt scientifically premature to publish their paper before having settled the reason for the discrepancy? Egos as big as all outdoors...
  10. ixchelkali

    ixchelkali Senior Member

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    How was the WPI then able to detect XMRV in the Dutch samples using PCR? Do they amplify them or something?

    I remember Dr Peterson mentioned being able to culture XMRV from a 20+ year old blood sample from a patient who had since died. I wonder how they did that?
  11. ixchelkali

    ixchelkali Senior Member

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    oerganix, "peeking through closed hands" means that Cort wants both to cover his eyes and to look, because he wants to see what the studies say but he's almost afraid to find out.
  12. rebecca1995

    rebecca1995 Apple, anyone?

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    Northeastern US
    oerganix, I think you've just coined an apt new expression (neologism?). Speaking through closed hands is exactly what the CDC and other powers-that-be have done to us for years. :Retro mad: :D (In the sense that they try to hide their mouths and faces while mumbling unintelligible nonsense.)
  13. Katja

    Katja

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    I think it's incredible arrogant of van Kuppenveld. But hey, in Nijmegen they have their cognitive behaviour therapy; the one and only therapy which has proven to 'cure' cfs. The therapy includes that people who suffer from cfs have to be confinced their not ill. They must learn to have other thoughts, and ignore their fatigue.

    Funny details:
    People who join this therapy, don't have to be diagnosed with cfs: being tired for a longer period is good enough.
    The patients who need rest in the afternoon (let's say... 80% of the cfsers?) are disqualified.
    Patients who have phisical abnormalities, are either.

    In nijmegen they're very proud of the results of their CGT. In the meantime they simply ignore all interesting results of research which prove cfs could be a physical disease.

    I think their IQ is far below 118.

    Best wishes.

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