Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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LETS HAVE OUR SAY IN TERMS OF HOW ME IMPACTS US FOR EU POLICY

Discussion in 'Advocacy Projects' started by shahida, Dec 1, 2014.

  1. shahida

    shahida Senior Member

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    Help survey impact of brain disorders
    HAVE OUR SAY IN TERMS OF HOW ME IMPACTS US FOR EU POLICY



    The European Federation of Neurological Associations has launched an online patientsurveyon the impact of living with a brain disorder.

    The aim is to:

    • Find out how neurological disorders impact on the home, work/educational and social life of those affected
    • Explore the association with related conditions/syndromes e.g. mental wellbeing, chronic pain, bladder and bowel disorders, sexual dysfunction etc.
    • Assess the satisfaction rates with treatment and management.
    The data generated will help build a ‘Book of Evidence’ which will be taken to European policy and decision makers outlining why neurological disorders must be a political priority.

    The survey should take less than 15 minutes to complete and will close on Friday, January 9.
    Here's the thread https://www.surveymonkey.com/s/XJGMHR5
     

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