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Leg exercise & OI

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by Sushi, Aug 30, 2013.

  1. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I am noticing that during the rest of the day after an equipment pilates class (done lying down with weighted machines) I don't have any OI. My guess is that, as we do rather intense leg exercise, I am increasing venous return and getting more blood to the brain.

    Muscles seem to stay "active" for some hours after intense exercise, so the effect lasts at least the rest of the day. Now I need to track how long it lasts--the next day too maybe?

    Anyone else experiencing this?

    Sushi
    L'engle and Sasha like this.
  2. Ruthie24

    Ruthie24 Senior Member

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    I have noticed that if I do any exercise that exceeds my anaerobic threshold, even if for short durations, I have more OI issues for the rest of the day and my HR monitor is going off much more frequently doing routine things that don't usually set it off. I assume that makes sense in a way as they say that the "benefits" of exercise last beyond when you exercise....it's just not the particular benefit I want right now. :)
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  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Hey Ruthie,

    I wear a HR monitor in class and stay way below my anaerobic threshold in this class. I get the same results as you if I go over my AR.

    Sushi
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  4. Valentijn

    Valentijn Activity Level: 3

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    I can get a short term reprieve from OI symptoms from muscle use, but it lasts a few minutes and then I get all of the other problems - worse OI, crash, etc.
  5. Firestormm

    Firestormm Senior Member

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    Finding an appropriate means of exercising, e.g. lying down as Sushi is able to manage, has been known to relieve OT for some considerable time I believe. I think even Julia Newton will say that appropriate exercise is one means of improving symptoms. Loads on the internet. I was reading and searching whilst composing a reply. Here's one that contains a little about exercise under 'E' ;)

    Preventing and treating orthostatic hypotension: As easy as A, B, C
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  6. Sasha

    Sasha Fine, thank you

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    Nancy Klimas has said that if PWME go over their anaerobic threshold (which tends to be much lower than that of healthy people), the autonomic system 'tanks' and takes the immune system with it. She hasn't presented any data on that but your experience is very interesting.
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  7. Sasha

    Sasha Fine, thank you

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    Do you think you're staying under your anaerobic threshold?
  8. Firestormm

    Firestormm Senior Member

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    She says she does in #3 :)
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  9. ukxmrv

    ukxmrv Senior Member

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    I've tried both Pilates and atable top "passive" exercise but after both had the normal OI symptoms after and PEM. Swimming as well using a butterfly leg action, which I would have expected to act as a pump also didn't help if I was or tepid weather. Cold water was much better but I could still only do a small amount. Used this to try and build up on my disastrous exercise programs.

    Where I did notice was an improvement as you mentioned (bit it was maybe not as long) was when I was seeing a very short dentist who had a chair that tipped me upside down (far more than other dentists) and very good aircon
  10. Sasha

    Sasha Fine, thank you

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    o_O
  11. taniaaust1

    taniaaust1 Senior Member

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    Strengthening leg muscles is meant to help in venus return in POTS. I tried it thou and for me it didnt help, even if I end up with well toned leg muscles, no change for me in my OI.

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