• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

LDN: International Conference to Raise Awareness about a Ground-Breaking Drug

Firestormm

Senior Member
Messages
5,055
Location
Cornwall England
International Conference to Raise Awareness about a Ground-Breaking Drug

The 2014 LDN at the MEET is being organised by the charity the LDN Research Trust in the UK and Mark’s Dugs in the US. The conference reviews, compares and contrasts the most recent data and treatments for a variety of Auto-Immune and Immuno-modulated Conditions.


29 May 2014

Physicians, patients and experts from all over the world will gather in Las Vegas this November at a major conference to discuss and raise awareness about a ground-breaking drug that can help eradicate pain for those affected by a range of autoimmune diseases and conditions.

The LDN 2014 AIIC Conference 2014 will take place on the 7th and 8th November at the MEET in Las Vegas with a number of high profile medical experts already confirmed to speak. The conference also coincides with LDN Awareness Week 2014 which runs from 2nd-8th November 2014.

Doctors around the world are now starting to realise the benefits of using LDN (Low Dose Naltrexone) to treat a range of conditions from Crohn’s and HIV to MS, ME, arthritis and infertility.

LDN has traditionally been used in higher doses (50mg) to treat drug/alcohol addicts but, since the 80s, doctors have prescribed it in lower doses (3-4.5mg), and it is currently helping over a quarter of a million people worldwide suffering from a range of autoimmune conditions.

As a result, and to raise awareness of how other people could be helped, the LDN Research Trust was set up in 2004. Since that time, the group’s popularity has grown rapidly with supporters from all over the world, including prominent physicians. The LDN Research Trust is currently raising funds for official scientific trials to take place with the ultimate aim that LDN is prescribed on the NHS for all conditions that could benefit from LDN.

At the moment, LDN can be prescribed off label on a name patient basis, if the prescribing doctor so chooses, though most people have to pay for a private prescription. It has the backing of many high profile doctors and is relatively low-cost. For example, traditional MS drugs can cost £9,000-£12,000 a year whereas LDN costs just £300.

LDN works as an opiate antagonist, inhibiting natural endorphins thus forcing the body to produce more which, in turn, reduces painful symptoms and improves well-being and those using it have experienced a huge improvement in their conditions, with some disappearing altogether.

The LDN 2014 AIIC Conference 2014 will include expert panellists, around 20 speakers with experience of either taking or prescribing LDN and question and answer workshops. The whole event will be streamed live and will also be available to download after the conference.

Some of the key speakers will include: - Dr Samyadev Datta, a pain specialist from New Jersey who is prescribing LDN for pain and is working with Dr Pradeep Chopra, another pain specialist who is on a board of doctors carrying out trials; Dr Khan, the co-founded of the Medicor Cancer Centres which are the first integrated private cancer clinics of their kind in Canada. Since 2007, Dr. Khan has gained international recognition and has been treating patients from all over the world;

and Kent Holtorf M.D. is the medical director of the Holtorf Medical Group. LDN is widely used in all of his practices for hypothyroidism, complex endocrine dysfunction, chronic fatigue syndrome, fibromyalgia and chronic infectious diseases, including Lyme disease.

Dr Mark Mandel is one of the organisers of the conference. He said: “LDN could be benefiting hundreds of thousands more people worldwide and it is currently under-used. That’s a fact- physicians from across the world agree. This conference and the awareness week are crucial to educate and inform the medical profession and people affected by autoimmune diseases that LDN can change lives- and it has already for a quarter of a million people all over the globe. The conference will provide vital information from professionals, reverse some people’s opinions about LDN and, hopefully, assist more people in getting help and treatment to ease suffering and pain.”


Linda Elsegood is one of the organisers and a trustee of the LDN Research Trust. Linda is an MS sufferer herself and takes LDN. Linda said: “LDN has given me my life back and I now want to help others with autoimmune diseases to improve their lives too. LDN isn’t a miracle drug or a cure but it is an inexpensive, non-toxic drug with few side effects. It works incredibly well in so many cases and has done so since 1985.”


A full list of speakers confirmed can be found here http://www.ldnresearchtrust.org/conference-speakers

Issued on behalf of LDN Research

For further information please contact Anna at Anna Addison Associates on 01642 710707 or 07970 996 329.
 
Messages
33
Hi all,

I'm a patient at the Institute for Immune Medicine at Nova Southeastern University. I've been diagnosed with CFIDS as well as cell-mediated immune deficiency. My natural killer cell count and activity are both below the 10th percentile. My cytokine activity is all over the place (most measures are very low and some are too high). I have a positive titer for Epstein Barr virus as well as HHV-6. I'm low for several neurotransmitters and I do not show a normal diurnal cortisol cycle. I've been slowly building a low dose of Naltrexone since July by increasing by 0.1mgs per week. At present, I'm taking 1.5mgs. I'm also taking a battery of supplements produced by a company called NeuroScience. I'd be grateful for feedback from others with the same or similar diagnosis who have been taking Naltrexone. What changes, if any have you noticed? How much are you taking? How long did it take to feel improvement?

Many thanks.