Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Laura Hillenbrand Interview on Face The Nation

Discussion in 'General ME/CFS News' started by Gemini, Dec 28, 2014.

  1. Gemini

    Gemini Senior Member

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    CBS aired Bob Schieffer's interview with Laura Hillenbrand on "Face The Nation" December 28, 2014.

    She discussed Myalgic Encephalomyelitis in detail & how it affected her ability to write "Unbroken."

    http://www.cbsnews.com/face-the-nation/

    Video of the interview will be posted later I believe on the CBS website.

    It's excellent & worth a watch.
     
    Wayne, waiting, NK17 and 11 others like this.
  2. Gemini

    Gemini Senior Member

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    As we wait for the video to be posted for those not familiar with the show--

    "Face The Nation"
    it's one of the longest running news programs in the history of television & has ~3 million viewers.

    Covers the latest issues: typical guests are government leaders, politicians & international figures in the news.

    I was struck by the fact Laura's interview begins with a discussion of ME.
     
    Bob, snowathlete, Sasha and 2 others like this.
  3. Sidereal

    Sidereal Senior Member

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  4. Sushi

    Sushi Senior Member Albuquerque

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    Right now the site is saying: CBS News--we'll be right back. :(
     
  5. Bob

    Bob

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    It's working for me, at the moment. Great interview. :)
     
    Last edited: Dec 28, 2014
  6. Sushi

    Sushi Senior Member Albuquerque

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    Gemini and Bob like this.
  7. Bob

    Bob

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  8. Sushi

    Sushi Senior Member Albuquerque

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    Excellent! That should archive it for us. Now we have another great resource to refer "doubting friends" to. Much more comprehensible for people than medical information that they can't understand.

    Thank you Laura Hillenbrand for being a brave spokesperson--both for the illness itself and talking about the creative ways we have to work around our disabilities.

    Sushi
     
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  9. Mya Symons

    Mya Symons Mya Symons

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    She did a great job of bringing awareness to ME/CFIDS. I hope people pay attention to this interview. I appreciate that she was able to talk so openly about her struggles. I think the fact that she mentions she was unable to leave the house for two years will help others understand just how serious this illness is.
     
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  10. Nielk

    Nielk

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  11. Gingergrrl

    Gingergrrl Senior Member

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    I just watched the Laura Hillenbrand interview and thank you to @Bob for posting the You Tube link. To say she is extraordinary doesn't even begin to describe her. She had me tearful twice, both when she was talking about understanding suffering and the moment she parted with Louis Zamperini at the car and he said that he knew that the reason he lived so long was so he could meet her and she could tell his story (I am paraphrasing this of course.)

    She also gave a good description of ME/CFS (although many of her symptoms differ from my own) but she expressed how debilitating it is in that she was too weak to walk to the car and did not leave her home for two years. I wish doctors and the general public could watch this video to see someone who was profoundly ill with the MEDICAL illness of ME/CFS but that it did not stop her from becoming a best selling author and inspiration to millions.
     
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  12. Ren

    Ren .

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    Snagit ("a screenshot program") seems pretty easy to use, and I believe you can test it out a few weeks (months?) before purchasing it. http://en.wikipedia.org/wiki/Snagit

    The recent (Dec 9?) Hillenbrand NBC video was archived at this website: https://archive.org/details/tv.

    The CBS video in this thread, however, doesn't seem to be there yet. Maybe someone in our community can eventually add it? :) (I don't know how yet, but can slowly learn.)

    Non-video/audio pages can also be added to archive.org. "The Internet Archive is working to prevent the Internet - a new medium with major historical significance - and other "born-digital" materials from disappearing into the past. Collaborating with institutions including the Library of Congress and the Smithsonian, we are working to preserve a record for generations to come..." https://archive.org/about/
     
    Last edited: Dec 28, 2014
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  13. Bob

    Bob

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    I'm not sure if this is still important for you, but there is an easy and free way to download YouTube videos to keep on your computer. Just enter the YouTube url, in the following website, and it will provide you with a video file to download:
    http://keepvid.com/

    (But I don't know if it's legally permitted for this video.)
     
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  14. NK17

    NK17 Senior Member

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    Wonderful interview! Thank you to @Gemini and @Bob for posting it.
    It brought tears to my eyes and now I'm off to send the link via e-mail and social media.
     
    beaker, Bob and Gingergrrl like this.
  15. Tammy

    Tammy Senior Member

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    :thumbsup: Way to go Laura.........Looking forward to the movie..
     
    Last edited: Dec 28, 2014
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  16. NK17

    NK17 Senior Member

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    Maybe a bit too loud and apparently off thread, but I can't resist to upload this super energetic version of a good old rock'n roll classic, Louie Louie, reinterpreted by Iggy Pop, in memory of Louie Zamperini.
    Please abstain from watching/listening if you can't tolerate loud music ;).
    Here you go Louie:
     
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  17. beaker

    beaker ME/cfs 1986

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    a slightly different interview she did at the same time ( same background, same clothes) for another news organization can be watched HERE
     
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  18. Forbin

    Forbin Senior Member

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    I really empathize with her description of severe "vertigo." Of all the ME symptoms I've known, constant relentless "vertigo" has been the worst (but, then again, I've never been totally bedridden with the exhaustion of ME, just pretty much housebound by it at times). In my experience, there is nothing you can do to temper this kind of "vertigo."*

    Strictly speaking, what she has described elsewhere - and what I've known - is a form of "dizziness;" a sensation that the body is constantly bobbing to-and-fro. "Vertigo," on the other hand, is a sensation that the room is spinning - like you might get after spinning in place. The form I've known produces some interesting visual effects, though, such as corridors and walls appearing tilted despite that fact that you're standing straight up. Some PWME's might experience true spinning vertigo, however. It might well depend on what part of the inner ear is affected (assuming that that's where false signals originate).

    Needless to say, the constant sensation of losing your balance keeps you on edge. It's something the body/nervous system never acclimates to. It's too primal, I guess.

    *[I did find one thing that sort of took the edge off - lying on a bench swing and letting it drift back and forth. It didn't help the "vertigo," but it gave it an acceptable "context," i.e. that you should feel motion while lying on a moving bench swing.]
     
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  19. Roy S

    Roy S former DC ME/CFS lobbyist

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  20. Gemini

    Gemini Senior Member

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    Sent a "Thank You" this morning to Bob Schieffer via the CBS feedback form, Choose "Face The Nation"...

    http://audienceservices.cbs.com/feedback/feedback.htm

    And to Laura a huge Thank You!
     
    Sushi, beaker, aimossy and 3 others like this.

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