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In Brief: Muscles and the 'myalgia' in ME/CFS
In the first in a new series of 'In Brief' articles, Andrew Gladman provides a helpful insight into the science behind fairly common topics and explores how they relate to ME/CFS. This time he looks at the muscles, exploring how our reported symptoms might be associated with our...
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Launch of the UK Research Collaborative

Discussion in 'General ME/CFS News' started by maryb, Apr 22, 2013.

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  1. Simon

    Simon

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    That's a great piece from ME Research UK, thanks, Sasha. And of course, the UK Respiratory Research Collaborative that enjoyed so much success was set up by Stephen Holgate too.
    Simon, Jun 10, 2013
    #61
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  2. Sasha

    Sasha Fine, thank you

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    Yes - he's said that that was his motivation for getting an ME one off the ground. A ten-fold increase in funding would be great! :)
    Sasha, Jun 10, 2013
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  3. Bob

    Bob

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    Bob, Jul 23, 2013
    #63
    Valentijn likes this.
  4. Dolphin

    Dolphin Senior Member

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    Two points of interest to me in this:

    A bit nervous about this given you have to support the NICE guidelines/similar to be a member of BACME.

    There were already clinicians from the NHS on the executive board so unsure if this was necessary.

    Anyway, who knows, perhaps I have been looking too much on the negative and it could be beneficial.


    I could imagine this conference will have a mix of research incl. some psychobabble. So again have mixed feelings about it.
    Dolphin, Jul 23, 2013
    #64
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  5. Bob

    Bob

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    Discussing areas of concern, I think you missed something, Dolphin:

    "EC has yet to invite an early career researcher to the Executive Board"

    I might have misunderstood this, but if it is EC's responsibility to decide who is invited, I'm not very optimistic about this. I can't imagine her inviting an early-career researcher involved in cutting-edge biomedical research.

    We've no idea how this project is going to pan out. It could be disastrous, but it could be transformational. I guess we'll find out in a couple of years or so.
    Bob, Jul 24, 2013
    #65
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  6. Esther12

    Esther12 Senior Member

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    I'm increasingly doubtful that any good will come of this. I doubt that much good will come from any CFS 'collaborations' when so many of those who have built their careers on CFS are quacks. So long as they're allowed to go on clinging to authority and money, things will only be able to progress very slowly.
    Esther12, Jul 24, 2013
    #66
    Valentijn likes this.
  7. Bob

    Bob

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    Bob, Jul 31, 2013
    #67
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