Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Latest total for the microbediscovery project for ME/CFS

Discussion in 'General ME/CFS News' started by aimossy, Oct 22, 2014.

  1. aimossy

    aimossy Senior Member

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    From Facebook. I will copy and paste it here just as a reminder and for peoples interest.

    New total update: $142,456 from 760 donations!
    Thank you so much everyone :) Keep them coming they are adding up. ME/CFS Gut microbiome research is so needed! Get on board and make it happen.
    Donate directly on Columbia University's secure site here:
    www.bit.ly/DonateToDrLipkin
    To read about the project go to the dedicated website here:
    www.microbediscovery.org
     
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  2. A.B.

    A.B. Senior Member

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    Lipkin could do a reddit IAMA to attract some attention. Obama did it, as did Bill Gates. It's an easy way to let many people know about this project. How many? Probably many thousands.
     
    Last edited: Oct 22, 2014
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  3. aimossy

    aimossy Senior Member

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    The patient crowdfund finishes on Dec 31st. Hello world get a move on :)
     
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  4. Valentijn

    Valentijn Senior Member

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    Is he considering approaching the NIH for funding again, now that they've supposedly gotten rid of the psychobabbler(s) controlling the grant review process?
     
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  5. aimossy

    aimossy Senior Member

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    Are you querying that based on the Stanford article Valentijin? I will quote it below.

    "And then there is the stigma associated with the condition; some NIH grant reviewers are reluctant to fund research because they believe that ME/CFS is a psychosomatic, “all in the head,” disorder. (To remedy this, the NIH recently created a special emphasis panel so that researchers familiar with the condition review grant applications.)"

    I'm just wondering because I don't know if this has been substantiated yet. Does anyone know?
     
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  6. aimossy

    aimossy Senior Member

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    Just for interest, also, here is a recent article about MS and the Gut microbiome from Scientific American.
    It's interesting as 70% of people with MS have gut symptoms. I just think we really need to have an open mind about possible gut connections with the immune system. I mean you cannot really trash something that hasn't been discovered yet.It's a discussion article about some findings.
    https://richarddawkins.net/2014/10/could-multiple-sclerosis-begin-in-the-gut/

    Here is the actual Scientific American Link.
    http://www.scientificamerican.com/a...rosis-begin-in-the-gut/?WT.mc_id=SA_syn_RDFRS

    I thought it was quite well balanced in the discussion. Noting the importance but not over hyping.
     
    Last edited: Oct 22, 2014
    Simon likes this.
  7. A.B.

    A.B. Senior Member

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    Wikipedia says:

    1.6 million page views sounds pretty good :)
     
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  8. aimossy

    aimossy Senior Member

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    Would be great and so would a Q and A of some sort and probably depends on time. Ebola has taken over with respect to public health this year. Understandably.
     

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