A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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Latest paper from Buchwald team: Reported Pain and Fatigue Behaviors Mediate the Relationship etc.

Discussion in 'Latest ME/CFS Research' started by Dolphin, Dec 8, 2015.

  1. Dolphin

    Dolphin Senior Member

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    (Not a recommendation)

     
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  2. Esther12

    Esther12 Senior Member

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    Heads I win, tails you lose?

    Would have to read the full paper, but it doesn't sound as if their results necessarily supported a cognitive-behavioural model for CFS either.
     
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  3. jimells

    jimells Senior Member

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    Where's the Barf Smilie when I need it...
     
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  4. Kati

    Kati Patient in training

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    We could put the pesudo-profound bullshit paper side by side with this one and see that the bullshit paper makes much more sense than this psycho-babble.

    Let's send this to Coyne so he sees what we are dealing with.
     
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  5. Scarecrow

    Scarecrow Annie Gsampel

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    Allow me.

    :vomit:
     
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  6. Snow Leopard

    Snow Leopard Hibernating

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    Who would want to participate in these sorts of studies, unless they are patients that 'believe' in the psychological model?

    So we have a biased sample, and associations between a few different questionnaires, with no objective evidence of such behaviour. Sometimes what you think you are measuring might not be what you are actually measuring...

     
    Last edited: Dec 8, 2015
  7. Sean

    Sean Senior Member

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    And probably more often than that.
     
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  8. jimells

    jimells Senior Member

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    Is it still valid and reliable after modifying it? When I used to write software for a living, if I added an additional option for a user to select, I would have to, you know, test it.
     
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  9. dannybex

    dannybex Senior Member

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    Dedra Buchwald is the Simon Wessley of the US.

    If I had the energy I'd start a website where people could tell their horror stories regarding their (usually brief) experiences involving the Harborview CFS Clinic that she's headed for over 20 years here in Washington State.

    In the 17 years I've been sick, and the 8 years I attended local CFS support group meetings, I've never heard of even ONE good experience coming from that place. Patients wait six months to get in, have to fill out probably 50 pages of questionnaire forms (no doubt for Buchwald's $$$Studies), then once they finally get in, basically no treatment is offered except 'go home and rest'.

    It's quite telling as well, that when Dr. David Bell came to speak here last June, that Buchwald refused the invitation to attend.
     
    Last edited: Dec 9, 2015
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  10. ballard

    ballard Senior Member

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    I agree with Dan. As far as I can tell, the clinic mainly collects data for Buchwald's psychologically oriented research. There is no appropriate treatment for ME/CFS at the Harbourview Clinic. I'm not even sure that Dr. Buchwald shows up at the clinic anymore. The last time I went (and it's definitely the last time), I was seen by a perfunctory physician's assistant.

    I really don't understand why the U. of W. continues to associate itself with the Harbourview Clinic. Maybe it's because the U.of W. Medical School has recently relegated ME/CFS to the "Mind, Brain and Behavior" block of education for incoming medical students.

    It's a shame, really.
     
  11. dannybex

    dannybex Senior Member

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    Hi there @ballard :)

    Actually, I think it's the other way around, which is even worse; I have a feeling the U.W. Medical School relegated ME/CFS to the 'Mind, Brain and Behavior' department precisely because of the influence of 20-25 years of Buchwald's self-serving "work".

    And the fact that she hasn't seen patients in years is IMO a testament to her cowardice. Sorry, that just slipped out.
     
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  12. Kati

    Kati Patient in training

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    Buchwald is part of the MAPP collaborative for pelvic pain. She has been working hard for diseases such as pelvic chronic pain and interstitial cystitis remain in the psychological domain.
     
    Last edited: Dec 10, 2015
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  13. SOC

    SOC

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    It's really hard not to wish these illnesses on people like Buchwald and SW. I can't really, because no one deserves ME or any chronic pain condition, but if anyone did deserve this kind of suffering, psychogenic theory pushers would be on the list.
     
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  14. Sean

    Sean Senior Member

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    Perfectly legitimate to wish it on them for as long as it takes for them to understand how wrong they are.

    I have been wishing it for years, and the gods have not struck me down yet. :p

    Mind you, they haven't granted my wish yet either. Maybe I haven't sacrificed enough chickens. :rolleyes:

    :whistle:
     
    Last edited: Dec 10, 2015
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  15. worldbackwards

    worldbackwards A unique snowflake

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    Have you arranged the entrails into a pentagram? There may yet be hope. Or at very least an alternative treatment from an AfME affiliate...
     
    Last edited: Dec 10, 2015
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