Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Lady Gaga to release documentary on chronic illness

Discussion in 'Other Health News and Research' started by jstash, Sep 13, 2017.

  1. jstash

    jstash Senior Member

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    Not sure which section this should go in, but:
    (CNN)Lady Gaga is hoping her forthcoming Netflix documentary will raise awareness of chronic illness, as she herself battles with fibromyalgia.

    The singer on Tuesday opened up about her condition on social media, saying, "In our documentary the #chronicillness #chronicpain I deal w/ is #Fibromyalgia I wish to help raise awareness & connect people who have it."
    Fibromyalgia is a chronic musculoskeletal disease that causes widespread pain, with patients often experiencing extreme fatigue, sleep disturbances, depression and headaches.


    http://edition.cnn.com/2017/09/12/entertainment/lady-gaga-fibromyalgia/index.html
     
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  2. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    A couple of friends saw the documentary at a special screening - they mentioned that she had chronic pain, but they didn't mention fibro, and from the wording on her social media, it seems the doc itself doesn't refer to fibro.
     
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  3. Valentijn

    Valentijn Senior Member

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    Odd, I thought she was diagnosed with Lupus?
     
    merylg likes this.
  4. Shoshana

    Shoshana Northern USA

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    She could be a potential good, strong voice, for us.... IF she gets the message out more clearly, than so far.

    If not, its frustrating.
    But we can still hope she and others, will, give us a bigger platform, since we don't have the one that they do.
     
  5. SamanthaJ

    SamanthaJ Senior Member

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  6. Groggy Doggy

    Groggy Doggy Senior Member

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    I look forward to watching the documentary. Wondering how to get Lady Gaga a copy of 'Unrest"?
     
  7. jstash

    jstash Senior Member

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    Maybe someone in Jen's team could reach out to her?
     
  8. Shoshana

    Shoshana Northern USA

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    Notice her update today? She has had to cancel her Brazil concerts, to go to a hospital, she is in so much pain.
     
  9. SamanthaJ

    SamanthaJ Senior Member

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    Saw this sympathetic article about fibromyalgia on the BBC website

    http://www.bbc.co.uk/news/health-41224151

    I don't have fibro, so can't really comment on how accurate it is, but thought it made it very clear that it's a life-long, debilitating condition. No reference to Lady Gaga, but it's probably there because it's topical.
     
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  10. slysaint

    slysaint Senior Member

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  11. Groggy Doggy

    Groggy Doggy Senior Member

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    Sorry to hear she is very ill. I hope her doctors are able to help soon. From watching her interview a few years ago with Oprah, Lady Gaga seems like a genuine person who wants to make a difference and improve the world.
     
  12. Gingergrrl

    Gingergrrl Senior Member

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    I saw that on the news today and was so sorry to hear she is ill. I saw Gaga in concert (the Monster Ball Tour) which was a few years before I got sick and she was phenomenal. Her concert was more like a theatrical production. Hoping she feels better soon.
     
  13. thijs

    thijs

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    Meanwhile at the therapists office.
    Therapist: When reading through your medical record I noticed that many of your personality traits are risk factors for developing fybromyalgia.
    Patient: Could you give an example?
    Therapist: You don't seem to express your emotions. Pushing through when you don't feel well, thinking "it's going to be okay". I also saw distress from relationships being mentioned.
    Patient: What are you referring to?
    Therapist: "Pokerface", "Just dance", Bad romance"
    Patient: That's my discography
    Therapist: ...
    Therapist: Excuse me, wrong page.
     
    Last edited: Sep 16, 2017
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  14. Groggy Doggy

    Groggy Doggy Senior Member

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    Watching it now on Netflix.
    :):balloons:
     
  15. Jesse2233

    Jesse2233 Senior Member

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    Let us know how it is Groggy

    Curious if she has hallmark ME symptoms in addition to FMS
     

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