Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Lactic (organic) Acid Symptoms - from CFS Australian Study - You'll be surprised!

Discussion in 'Gastrointestinal and Urinary' started by Cort, Jan 31, 2011.

  1. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    Check out a questionnaire developed by Bioscreen in Australia to assess symptoms associated with lactic acid (and other organic acid buildup) in the gut. It's very interesting how lactic acid can cause both physiological and 'mood' problems. It really bridges the gap.

    Herr's the study from the SACFC Newsletter - the questionnaire is attached

    http://sacfs.asn.au/news/2008/03/03_07_lactic_acid_study.htm

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  2. sandgroper

    sandgroper

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    west australia
    Unfortunately even though the study is in the nearest capital city to the one I live in its still several hours flying to get there. Certainly I have the burning muscles that suggest the Lactic acid problem. When I read the questionaire it was interesting to note the last question was about "the idea" that something is wrong with your body. Surely we are past the idea that we think we are ill (or maybe not). After all we still have really hopeless guidelines in use by our GPs.

    Its always been hard to participate in trials due to the severity of my condition. That is another thing that is not taken into consideration when these studies are designed. That is the most severely effected are not represented.

    That said it is truly wonderful that the researchers are prepared to provide their own funding. Very sad that they have to though.
    Cheers
     
  3. Francelle

    Francelle Senior Member

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    Victoria, Australia
    I am currently being recruited to a research study where these two men (Drs Butt and Buttfield) are the head researchers. I'm assuming it is another study, as this one was started in 2008, however it could be the same one. I will know more in a couple of weeks time (17th Feb) when I get the paperwork and talk to the doctor who is recruiting patients.
     
  4. Glynis Steele

    Glynis Steele Senior Member

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    Newcastle upon Tyne UK
    Hi Francelle,

    I a wondering whether you could let us know if this is the D-Lactic study, after your appointment, and when you have had a chance to look at the paperwork? And also, how long a time line might be involved, before the results are known to you.

    Thank you.

    Glynis
     
  5. Francelle

    Francelle Senior Member

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    Victoria, Australia
    Yes Glynis I will post here when I know more details of the particular study I'll be recruited into.
     

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