1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
9th Invest in ME International ME Conference, 2014 - Part 1: Autoimmunity and ME
Mark Berry begins a series of articles on the 9th Invest in ME International ME Conference in London, with a look at three presentations on autoimmunity
Discuss the article on the Forums.

L carnitine

Discussion in 'General Treatment' started by keenly, Aug 5, 2010.

  1. keenly

    keenly Senior Member

    Messages:
    109
    Likes:
    7
    IS this o.k for us?

    does Cheney use it?
     
  2. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
    Likes:
    331
    Southern USA
    I have no idea about Cheney, but my CFS doctor has me on one tsp. of Carniclear. I will never be without it. The brand is Designs for Health. I have no idea about other brands. This is liquid. It is wonderful. It has been key in getting rid of my brain fog. Also, that and my CoQ10 has been wonderful for my energy. My CFS is so much better. My big problem now is POTS. My doctors and I are working hard on it with supplements like Adrecor. That is much better, but you also have to heal with time.

    I always make sure I have a whole bottle of Carniclear so I don't run out.
     
  3. richvank

    richvank Senior Member

    Messages:
    2,717
    Likes:
    755
    Hi, Keenly.

    For what it's worth, I believe that the depletion of carnitine in CFS is due to the partial methylation cycle block. Methylation is required to synthesize carnitine in the body. Some also comes in from meat in the diet.
    Many PWCs do benefit from supplementing carnitine, but the longer term solution is to lift the partial methylation cycle block.

    At the Yasko Protocol conference this past weekend, Dr. Yasko noted that when carnitine is depleted in autism cases, she looks particularly for H. pylori infection, using the G.I. Function test offered by Metametrix. She said that it often doesn't show up until other dysbiotic bacteria have been knocked down.

    Best regards,

    Rich
     
  4. August59

    August59 Daughters High School Graduation

    Messages:
    1,480
    Likes:
    405
    Upstate SC, USA
    Been on generic Carnitor for 2 years. I've started and stopped a few times and have always noticed some improvement starting back. It has not been a great improvement, but enough to keep taking it. My prescription has expired, so I'll be looking at something else in a couple of months.
     
  5. judderwocky

    judderwocky Senior Member

    Messages:
    327
    Likes:
    3
    Carnitine can do some amazing things... i like it best when it comes with the Alpha lipoic acid... which is also very good for CFS....

    I know that interferon patients... which has been proposed as a model for CFS.... also have carnitine defficiencies and that they benefit from the same supplementation.
    CFS patients also have raised intereferon and rnase l pathway activation....

    There are a number of proposed mechanisms for how this works... my guess is that several of them contribute....
     
  6. jeffrez

    jeffrez Senior Member

    Messages:
    1,108
    Likes:
    641
    NY
    contraindicated if you're hypothyroid.
     
  7. Questus

    Questus Senior Member

    Messages:
    125
    Likes:
    87
    Why is carnitine contraindicated for people who are hypothyroid? Are you talking about Hashimoto's disease? With thyroid supplementation, someone with Hashimoto's is no hypo, so I'm confused why carnitine would be contraindicated.

    Also, can you please tell me where you purchased Carniclear, Sally?

    Thanks.
     
  8. jeffrez

    jeffrez Senior Member

    Messages:
    1,108
    Likes:
    641
    NY
    Because carnitine blocks the action of thyroid hormone peripherally.

    No/not necessarily.

    I didn't say anything about Hashimoto's. Please read more carefully, thanks.
     
  9. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
    Likes:
    331
    Southern USA
    I order my CarniClear from my doctor, but you can find it online I am sure. CarniClear 8oz. by Designs for Health. You can read about it here. I take 1 tsp in the morning. It is SUPER sweet, not that tasty, but it has been great for me. I also take Lipoic Acid Supreme, Dribose as well as many other things like CoQ10. This is a very important part of my supplement schedule. Do you have a doctor that knows anything about supplements and nutrition? You can ask him about it.


    http://www.designsforhealth.com/carniclear.html
     
  10. Questus

    Questus Senior Member

    Messages:
    125
    Likes:
    87
    Thanks Sally..Yes, I see an doctor who specialized in bio-identical hormones, anti-aging and nutrition. I have been taking Carnitine supplements from Whole Foods also CoQ10 and inject myself with b-12.
    Have not noticed a significant difference with supplementation but I tend to 'pulse' my dosages. Perhaps I should just take them all on a regular cycle, but it seems counterintuitive to me somehow.
    Thanks again for the info..
     
  11. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
    Likes:
    331
    Southern USA
    For me, I must be on a schedule, daily supplements. That gives me enough of everything that way. I used to just take things off and on and not get good results. My docs have me on a schedule, three times a day, hormone gels twice a day, other things throughout the day. The right doses and brands of supplements. Glad you have a doc. that knows about supplements. I think it is good to have guidance since we are all so different. How much CoQ10 do you use?
     
  12. Questus

    Questus Senior Member

    Messages:
    125
    Likes:
    87
    Mr. Kite,

    Before reading your response I researched L-Carnitine to bits. My research led me to research it in relation to thyroid disease, both Grave's disease and Hashimoto's.

    WoW....

    L-Carnitine is an antagonist of thyroid hormone...Mr. Kite, you are right.

    Here's the link by the NIH...

    http://www.ncbi.nlm.nih.gov/pubmed/11502782?dopt=Abstract

    Sallysblooms...Why do I pulse my supplements. I'll add a link, but just google multi-vitamin and breast cancer. Huge number of links...Here's one
    http://www.medicalnewstoday.com/articles/183880.php

    The lesson is to research supplements before taking them.

    After researching L-Carnitine, I wish I could take it. If I could, I would certainly be taking a brand that uses
    Carnipute...A Swiss made brand.

    All the best...
     
  13. Questus

    Questus Senior Member

    Messages:
    125
    Likes:
    87
    Sorry...That should read Carnipure...D brain fog.
     
  14. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
    Likes:
    331
    Southern USA
    I don't take a multivitamin right now, but when I did, it was not what you get over the counter. I am on a good routine with individual supplements right now. Many cheap supplements are not pure. My doctors are very picky about brands and giving me exactly what I need.
     
  15. August59

    August59 Daughters High School Graduation

    Messages:
    1,480
    Likes:
    405
    Upstate SC, USA
    I'm hypothyroid, but have all thyroid levels at a good point with the use of "Synthyroid". I can't relate it to causing any problems and as I posted earlier have good improvement by taking it (generic Carnitor).
     

See more popular forum discussions.

Share This Page