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komaroff, harvard, brigham and women's hospital

Discussion in 'XMRV Research and Replication Studies' started by Rrrr, Aug 26, 2010.

  1. Rrrr

    Rrrr Senior Member

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    so, long term CFS doctor and researcher dr. komaroff, was involved in helping this study. here he is:

    http://anthonykomaroff.gather.com/

    and

    http://www.brighamandwomens.org/res...e/Researchers_and_Staff/komaroff_anthony.aspx

    he is well known to those of us in new england. a good man, pretty conservative. did not seem to be taking any new patients for the last decade, i think...?

    he recently gave a lecture to MassCFIDS association and i think there is a video to it, but i can't find it on their website: http://www.masscfids.org/links

    it looks like Komaroff was mostly involved in the NIH/FDA study by the use of his old blood samples, right?

    i don't know why i'm bringing him up, but just thought i would.

    i do plan to see Dr. Paul Sax, head of Infectious Disease at Brigham and Women's hospital in Sept. i had an appt with him before i knew of komaroff's involvement in this NIH/FDA paper. http://www.thebody.com/content/art39695.html
     
  2. Daffodil

    Daffodil Senior Member

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    youre right..kamaroff hasnt taken patients as long as i can remember! he was the one to diagnose gilda radner with CFS. she went on to die of ovarian cancer.

    i wonder if gilda's club is in any way involved in XMRV/CFS research.
     
  3. leaves

    leaves Senior Member

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    Yeah he doesn't see new patients. Let me know if you find a good idd!!
     
  4. Anika

    Anika Senior Member

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    I didn't know whether Komaroff was seeing patients - maybe some ongoing patients? In any case, it sounds like some patients (like the 8 who gave blood this summer for the re-tests in the NIH/FDA study) are still being seen by either Komaroff or colleagues.

    The paper notes said that Komaroff was involved in writing the paper. I expect he did the parts describing the cohorts. My impression has been that he is good at seeing the big picture, but also looks at the details.

    I don't remember hearing that Gilda Radner had been diagnosed with CFS. If so, and she then developed ovarian cancer, I would think the findings on X-MRVs would be of interest to her groups, as well as us.
     
  5. Daffodil

    Daffodil Senior Member

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    there is a book out called "what really killed gilda radner"
     
  6. sensing progress

    sensing progress Senior Member

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    Rrrr, here's the video you're referring to from MassCFIDS Association: http://www.masscfids.org/videofiles/Komaroff/Komaroff.html
    And here's the Q&A from afterwards: http://www.masscfids.org/videofiles/Questions/Questions.html

    It's interesting, someone asked if he knew of any XMRV studies in the Boston area, and he said I believe something like "not that I know of". The lecture was given back in February so either the Alter/Lo study hadn't started yet or he purposefully didn't mention the study he was providing patients for.

    He is scheduled to repeat his CFS & The Viral Connection presentation for the CFIDS webinar series coming up on Thursday, September 16, 2010. I am sure this time he will have more to say on XMRV and MLVs.
     
  7. camas

    camas Senior Member

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    I was so happy to see Dr. Komaroff's name on that study and am eternally grateful to the handful of doctor/researchers who have stood by us over the decades. This breakthrough could not have come at a better time with all of them retiring or close to retiring. I wish they and Dr. Alter, who is 75, were all 20 years younger. Of course I wish I were 20 years younger too...
     
  8. firefly

    firefly

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    I emailed Dr. Komaroff yesterday to ask if he would be doing any new studies. Haven't heard back yet, but if he ever replies I'll post it on here.
    I'm scheduled to see Dr. Felsenstein in Oct. If anyone finds a good ID doc in Boston, let us know.
     
  9. CBS

    CBS Senior Member

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    Dr. Komaroff is going to be presenting on the 9/16 CAA webinar: http://www.cfids.org/webinar/series2010.asp

    Way to go CAA - Nice timing!
     
  10. Rrrr

    Rrrr Senior Member

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    firefly: i will see Brigham and Women's Hospital's ID doctor, Dr. Paul Sax. It is my hope other PWCs will try to see him too. he is familiar with PWCs but treats mostly HIV, i think. a good combo!
     
  11. Rrrr

    Rrrr Senior Member

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    so far i have watched komaroff's lecture, but not yet the Q&A. in his lecture, he calls for clinical trials of antiretrovirals. it is a good lecture. i recommend it.
     
  12. Rrrr

    Rrrr Senior Member

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    hmm. i take it back! in the Q&A he says he does not give anti-virals to patients because they don't have proof that they have a virus.

    so he has contradicted himself, in his lecture vs his Q & A.
     

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