Discussion in 'General ME/CFS News' started by Firestormm, Jan 25, 2013.
Quite good I thought.
Is the source for this a press release? I see it's been picked up by some news sites (none I recognise).
You don't half find some good stuff, Firestormm - you're always sourcing really interesting news!
Great stuff! Now we need to see this on the front page of national newspapers - and emblazoned on the inside of GP's eyelids.
The witholding of treatments for PWME is political - not medical.
I'll be using this in my daily email to the FDA to get approval of Ampligen.
This is a bit of an opportunity to spread the word about the email campaign since this statement is being covered by several news sites.
I've posted the following message (awaiting moderation) on news-medical.net and newswise.com:
As someone bedbound/housebound with this disease for 27 years I'm grateful to Dr Klimas for this statement.Please join the ongoing campaign to get the FDA to approve Ampligen for ME/CFS when it makes its final decision, which is expected around 2nd February but could be any day now.A template email is here and it takes less than a minute to send:forums.phoenixrising.me/.../urgent-email-the-fda-about-ampligen-now-and-daily-%E2%80%93-final-decision-is-imminent.21228/
Please feel free to adapt that message and do the same wherever you see it popping up! And please list the sites where you've done it. You can find where it's posted by entering part of Dr Klimas's message into google.
I'll keep going with it - won't hurt if we duplicate a bit and I'll update this post/thread with where I've posted.
Edit: Just posted to nw.newsblaze.com
Can you all give me some links to those sites or very people that post bad stuff on CFS (the known reporters, So I can post this in the comments (Advocacy).
I am in fighting back mode and want to make this public in as many places as possible.
Here's a link:
Thanks, Johnny - I posted on that one but presumably my post is being held for moderation.
I sent emails to several people that cover CFS to make sure this piece get more coverage.
Great! The more who see it, the better.
You can also try a Google Site Search
Separate names with a comma.