The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Klimas: Why Ampligen failure has highlighted need for effective therapy

Discussion in 'General ME/CFS News' started by Firestormm, Jan 25, 2013.

  1. Firestormm

    Firestormm

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    Cornwall England
     
  2. Firestormm

    Firestormm

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    Quite good I thought.
     
  3. Sasha

    Sasha Fine, thank you

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    Great stuff!

    Is the source for this a press release? I see it's been picked up by some news sites (none I recognise).

    You don't half find some good stuff, Firestormm - you're always sourcing really interesting news! :thumbsup:
     
    justy likes this.
  4. justy

    justy Donate Advocate Demonstrate

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    Great stuff! Now we need to see this on the front page of national newspapers - and emblazoned on the inside of GP's eyelids.
    The witholding of treatments for PWME is political - not medical.
     
    Little Bluestem likes this.
  5. Sasha

    Sasha Fine, thank you

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    I'll be using this in my daily email to the FDA to get approval of Ampligen.
     
    justy likes this.
  6. Sasha

    Sasha Fine, thank you

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    This is a bit of an opportunity to spread the word about the email campaign since this statement is being covered by several news sites.

    I've posted the following message (awaiting moderation) on news-medical.net and newswise.com:

    As someone bedbound/housebound with this disease for 27 years I'm grateful to Dr Klimas for this statement.

    Please join the ongoing campaign to get the FDA to approve Ampligen for ME/CFS when it makes its final decision, which is expected around 2nd February but could be any day now.

    A template email is here and it takes less than a minute to send:



    Please feel free to adapt that message and do the same wherever you see it popping up! And please list the sites where you've done it. You can find where it's posted by entering part of Dr Klimas's message into google.

    I'll keep going with it - won't hurt if we duplicate a bit and I'll update this post/thread with where I've posted.

    Edit: Just posted to nw.newsblaze.com
     
    Little Bluestem likes this.
  7. lnester7

    lnester7 Seven

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    Can you all give me some links to those sites or very people that post bad stuff on CFS (the known reporters, So I can post this in the comments (Advocacy).

    I am in fighting back mode and want to make this public in as many places as possible.
     
    jimells likes this.
  8. JohnnyD

    JohnnyD Senior Member

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  9. Sasha

    Sasha Fine, thank you

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    lnester7 likes this.
  10. lnester7

    lnester7 Seven

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    I sent emails to several people that cover CFS to make sure this piece get more coverage.
     
    Little Bluestem likes this.
  11. Sasha

    Sasha Fine, thank you

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    Great! The more who see it, the better.
     
    lnester7 likes this.

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