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Klimas' ME/CFS 23andME Research Tribe

Discussion in 'Active Clinical Studies' started by Sea, Oct 24, 2015.

  1. Sea

    Sea Senior Member

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    NSW Australia
    If anyone is interested, I haven't seen this posted anywhere here. There's a closed group on Facebook called Klimas' ME/CFS 23andME research tribe. The idea behind it is to pool 23andme results and look for similariities.

    You have to be prepared to do the 23andme test if you haven't already and give them your email address. Klimas' office will be communicating directly with participants through email.
     
  2. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    This was previously discussed here:
    http://forums.phoenixrising.me/inde...sults-with-dr-nancy-klimas.37879/#post-603298

    there seemed to be some questions about this group and whether it was legitimately connected to Dr. Klimas
     
    Valentijn and Sea like this.
  3. Sea

    Sea Senior Member

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    Thanks Kyla, I hadn't seen that before. Probably best if conversation continues on that thread rather than this one.
     
  4. lartista

    lartista

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    GOAL: 10,000 genetic international profiles submitted from ME/CFS and Gulf War Syndrome patients. I believe many people with POTS, LYME, FIBRO would all be included as she needs a HUGE genetic base to sort the details from.

    Klimas' video:
    https://drive.google.com/file/d/0B9vYfJXRH3i4MmhxWXY2V2stbW8/view?pli=1

    NOVA's page explaining the study:
    http://www.nova.edu/nim/research/mecfs-genes.html

    Klimas' bio:
    http://www.nova.edu/nim/clinic/dr.-nancy-klimas-bio-page.html

    INSTRUCTIONS: Dr. Nancy Klimas' ME/CFS GENES STUDY

    1) MECFSGenes@Nova.edu

    2) Watch & RE-WATCH Dr. Nancy Klimas video to understand the INIM ME/CFS Genes Study.

    3) Read and RE-READ the instructions at this link:
    http://www.nova.edu/nim/research/mecfs-genes.html

    4) Those individuals interested in participating must email
    " MECFSGenes@Nova.edu " so that they can email directly a personalized link to a secure website which will be how the study is conducted. If you are having trouble understanding what to do, contact them directly at that email above and they will help you.

    5) INIM under Dr. Rey & Dr Nancy Klimas' direction are accepting ANY & ALL GENETIC DATA you have on yourself or your sick family member with ME/CFS or ME/CFS like sick illnesses... ie Gulf war Syndrome, Lyme, Fibro.

    6) If you have NOT completed any genetic tests, you can do so by ordering one from "www.23andme.com"for your country. Take the test and when your results are ready, proceed with the above instructions.

    7) Dr. Klimas and INIM are asking for your help. PLEASE HELP OTHERS WHO ARE HAVING TROUBLE to get through these instructions. Take this list from above, cut and paste were you wish.

    GOOD LUCK and you are all making a global difference to help our cause!
     

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