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Klimas' clinic tests and results

Discussion in 'Diagnostic Guidelines and Laboratory Testing' started by madietodd, Sep 14, 2012.

  1. madietodd

    madietodd Senior Member

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    I just got my test results from Dr. Rey.

    Tests done at the Miami lab:

    CXP Panel: I don't know what most of this is testing, but here's the information:
    Total B, T (3 tests), NK cells: normal.
    CD8 + CD11a+ isCD4 is low. CD4 Ancour CD45RA-CD62L is high for "region D1," low for "region D2," and high for "region E1."
    CD8+CD95+ is low. CD4+CD38+is high. CD8+CD38+ is low. She put a note here saying
    "viral reactivation." CD8+CD28 is high. CD2+CD26 is low.

    NK Cell: Total numbers are normal, activity is low (5.63%, normal mean 13% +/- 8).

    Epstein-Barr nuclear antigen IgG: 31.68 (upper limit is 20); positive "monochrome antibody."
    Epstein-Barr VCA IgM: very low negative "monoacute antibody"

    HHV-6: 1.76, positive (>1.00).

    Complete Blood Count: Total white blood cells, HGB, HCT, and PLT low end of normal range or barely under.

    Tests done at my local lab (Quest):

    Parvovirus 1.30 (positive >1.1) for chronic; negative for acute.

    Cytomegalovirus negative for chronic and for active.

    Vitamin D (tested total, D3, and D2); I'm low normal despite supplementing for a year. I'm adding 2,000IU in drops.

    TSH and T3 (4 tests total), normal

    Cortisol, AM normal (18.6, range 4-22) **I've had the 4x/day saliva test done, and I was low-normal am, high-normal pm, on that test.

    Coxsackie (6 tests), negative

    Gliadin (2 tests, to see if I should test for celiac disease), negative

    Lyme:
    "as screen" 1.73, positive, over 1.1
    "Lyme antibodies, IGG, IGM, Western Blot," only reactive on band 41 [1 out of 10]
    "Lyme disease AB (IGM) WB (western blot?)" positive, bands 23 and 41 reactive [2 out of 3]

    Hepatitis B and C, negative

    She's treating the Lyme with 6 months of doxycycline (100 2ce a day), then re-testing almost everything. She doesn't want to treat the viral activations until the lyme is controlled.

    I didn't understand most of the CXP panel, but other than that it's a pretty clear picture.

    I hope this is useful information, and I also hope you'll all tell me what you notice/think.

    Madie
  2. L'engle

    L'engle moderate ME

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    Fascinating! Who could have guessed lyme? Looks like progress is in the works!
  3. Sherezade

    Sherezade Senior Member

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    Madie, if i understand correctly you tested positive for lyme. Maybe thatĀ“s the real and only cause of your illness, I hope that you get better with the treatment :)
    taniaaust1, merylg and madietodd like this.
  4. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Sound like a good candidate for antivirals.
  5. madietodd

    madietodd Senior Member

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    Yes, Heaps - I'm wondering about doing some natural antivirals while on the abx. See how low I can get my numbers by the time she re-tests me. Any thoughts?
  6. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    I would go the real deal,maybe start with something like famvir and look into valcyte if no response from famvir. famvir is really safe and has some effect against all the herpes viruses. Just getting the viral load down could help free up your immune system to fight the other bugs. I dont know if there are any descent natural antivirals other then lysine for cold sores. Acutally artesunate has activity against herpes viruses and can get it off iherb too and maybe oxymatrine but dont have experience with oxymatrine but have been on artesunate for a week or so...
    The tests and all and seeing Klimas i think things will start getting better for you.

    cheers!!!
    L'engle, madietodd and justy like this.
  7. madietodd

    madietodd Senior Member

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    She doesn't want to start the antiviral treatment while dealing with Lyme. Said something about protecting my stomach.

    I only know about oil of oregano........which is hard on the stomach...........and monolaurin which likely isn't.
    warriorseekspeace likes this.
  8. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Artesunate then??
    madietodd likes this.
  9. merylg

    merylg Senior Member

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    Madie I am trying monolaurin to help stomach. I am taking 1 teaspoon of quality solid coconut oil 3 times/day. So far I find it is soothing my stomach.
    L'engle and madietodd like this.
  10. madietodd

    madietodd Senior Member

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    Heaps, I'll take a look at artesunate. If it only targets herpes, monolaurin might be a better choice. If I can only do one [I have no idea about that].

    Meryl, I took this: http://www.amazon.com/LauricidinĀ®-P...TF8&qid=1347717456&sr=8-2&keywords=monolaurin a few years ago. I didn't notice any result, but.......well, that happens all the time, and XYZ still might be helping. I'm already taking a tablespoon of salmon oil daily for inflammation and omega-3s, so I don't want to add more oil!
    merylg likes this.
  11. justy

    justy Senior Member

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    Hi Maddie, i'm so glad to see that you are getting some treatment and seeing some lab results that actually show something going on that hopefully can be treated.

    Good luck with it all!
    Justy x
  12. taniaaust1

    taniaaust1 Senior Member

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    I hope your new treatments go well. Best luck.

    ps.. Olive leaf extract can be antiviral.
  13. madietodd

    madietodd Senior Member

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    I wonder how useful olive leaf would be, taken as a tea throughout the day? I can buy it by the pound locally.
  14. lnester7

    lnester7 Seven

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    Madie, OLE is STRONG!!! I put the drop ones in my tea, but you need about 3g a day (somebody confirm plz).

    I love OLE, I feel the herx a little but once the herx passes I feel better than when I started. If I do low dose then no herx. I do kefir (lactose free) to protect stomach.
    warriorseekspeace likes this.
  15. madietodd

    madietodd Senior Member

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    Yes, Inester - I'd rather take it as a tea than as an extract, as that would be gentler.
  16. SOC

    SOC Back to work (easy, part-time work)

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    Just a thought -- Dr Rey knows her business. You might want to follow her thinking and hold off on the OTC antivirals until you can see the effect of the doxy. Sometimes changing too many things at once confuses the picture. It becomes difficult to tell exactly what is working or causing problems.

    It's so very, very hard to be patient, isn't it. :D Now that I'm feeling a little better all the time, I want to push it to go faster. I can see the possibility of being nearly normal and I want it NOW, lol!
  17. madietodd

    madietodd Senior Member

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    Good call, SOC!

    Dr. Rey won't communicate by email because their email isn't secure. Makes sense. So I found a $40 fax machine, and I'm going to set that up to communicate with her.

    I plan on collecting all of my Lyme related questions, and faxing them all to her at once. The whole issue of anti-viral supplements will be in there too.
    HTree and warriorseekspeace like this.
  18. SOC

    SOC Back to work (easy, part-time work)

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    Oh crud, no email communication? I'm having trouble getting my phone appt to work at the moment. Communication between NOVA and Klimas/Rey's office is not perfect, yet. I was hoping to consult by email until administrative issues settle out. Oh, well. Maybe I'll have to get a fax machine, too. :)
    warriorseekspeace likes this.
  19. madietodd

    madietodd Senior Member

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    On my Lyme test, I'm only positive IGG on one band. On the IGM, 2 of 3 bands are positive.

    Does this mean that my Lyme is due to a recent infection?
  20. madietodd

    madietodd Senior Member

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    I just talked with Dr. Rey, and yes, this is a recent infection. Probably from this spring, which is the last time I did any gardening. I'm looking for a local lyme doctor........yay! Another doctor :eek:.
    warriorseekspeace likes this.

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