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Kidney area pain?

Discussion in 'Gastrointestinal and Urinary' started by PWCalvin, Dec 30, 2011.

  1. Patrick*

    Patrick* Formerly PWCalvin

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    Thanks Justy. (Great Avatar, by the way). I've tested negative for Lupus several times and don't have a skin rash. My main symptoms besides the fatigue and kidney pain are shortness of breath, frequent sore throats, and swollen glands.

    It's definitely not a UTI either. I've had many urine tests.
  2. Calathea

    Calathea Darkness therapy

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    Willow - bless you for discussing it, but as I'm in Scotland, we don't have Barnes & Noble or Nooks. It's a pity, they sound nice. A friend vaguely offered to let me play with her Kindle, perhaps even borrow it, but it doesn't seem to be happening

    Going back to the kidney area thing, I'm curious to know whether anyone here who has urinary tract problems of any sort gets kidney area pain in the absence of an actual kidney problem? And if so, what sort of urinary problems are they?
  3. justy

    justy Senior Member

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    My Avatar is the warrior Queen Boudicca - the leader of the last british tribe to fight the Romans (thanks!) Lupus can be difficult to diagnose - tests can be negative and only 40 ish percent of sufferers have the rash. Im not trying to encourage the idea though, just trying to be informative. i also dont have a UTI- my kidney pain has been worse and often i dont get it now.
    Take care, Justy.
  4. Patrick*

    Patrick* Formerly PWCalvin

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    Interesting. How does one find out for sure if they have Lupus? (I'm almost afraid to ask, if it's anything as complicated as getting an ME diagnosis.)
  5. WillowJ

    WillowJ Senior Member

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    lol, silly willow. I saw that you were in Scotland but I didn't stop to check where B&N had or hadn't expanded to. Too used to the internet going everywhere that I forgot to think about stores still not going everywhere. :Retro smile: ty for kind words. Hopefully your friend will think to let you look at her Kindle after all...

    I think I have interstitial cystitis. And I seem to get mild UTI's rather often (though, badly, I don't always go in... too much effort to go to the doc, and I'd rather not have the antibiotics unless it gets bad... I try cranberry juice or cranberry pills first).
  6. justy

    justy Senior Member

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    I am afraid that you are right - diagnosing Lupus is very difficult, especially as it is possible to have it without having positive tests. there are lots of good sites for Lupus info that you can google.
    This is a link to the alternative St Thomases criteria

    http://www.lupus-support.org.uk/Crit.htm I fit most of the criteria here apart from all the tests which i havent had. I have had a negative ANA test, but it is possible to have lupus and not be positive on this test. For me the red flag is that i also have lung involvement in my illness and some joint pain and a couple of small swollen joints.
    All the best Justy
  7. Gavman

    Gavman Senior Member

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    The kidney area pain is worse for me after sex, heavy exercise or food that doesnt agree with me. I also get pain in the chest. As we struggle with exercise, the cardiovascular system and blood flow are likely problematic and the heart and kidneys would be indicated. Which could also be a tight diaphragm. Lol, we just struggle with everything.

    I think thats why CoQ10 and l-carnitine can be effective with CFS. In regards to the kidneys, learning to relax and not get overstimulated/excited would be the idea, of course i find myself struggling with varying addictions as life with CFS can be boring. When exercising, i try to relax enough that my heart doesnt beat fast, therefore the strain on my heart and subsequently kidneys is lessened.
    sianrecovery likes this.
  8. nanciswell

    nanciswell

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    FOr me kidney pain was related between the relationship of oxalate overload plus ecoli .. I had had chronic ecoli infections of my bladder.for 33 years . Often my kidneys would ache but no infection would show up. Upon going on the low oxalate protocal over a year ago , taking high dose p5p which helps the body to stop producing endogenous oxalates / the ecoli infections in my bladder stopped and my kidneys have not hurt since. I still have to take homeopathic ecoli to deal with ecoli in my gut which causes me fatigue, irritable bowel .
    SickOfSickness and sianrecovery like this.
  9. Old Salt

    Old Salt Rowing the boat

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    I have the same complaint. An Ultra Sound of my kidneys and liver discovered (cysts) on both. Nothing malignant yet, except for a Basil Cell carcinoma below my left eye which was removed a couple of months ago. I'm 72.
  10. Old Salt

    Old Salt Rowing the boat

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    I would strongly advise to take 10,000iu of vitamin D3 per day with a substantial amount of Magnesium Citrate. Good for recurring stones as well.
    sianrecovery likes this.
  11. sianrecovery

    sianrecovery Senior Member

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    Thanks everyone who posted - am taking D3, and used to take heroic amounts of magnesium. Stopped on advice of a doctor who believed it contributed to biofilm infections. I still have problems with infection and kidney and bladder irritation. For a while, d mannose held it at bay. Stress definitely exacerbates it. Just did two weeks on steroids and the pain went - clearly inflammation is a big part of the picture. There are a number of schools of thought on interstial cystitis - I kind of lean to Angela Kilmartins, which sees an underlying infective component - one easily passed backwards and forwards via sexual partners.
    Very interesting on the oxalate stuff - will check out.
  12. sianrecovery

    sianrecovery Senior Member

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    Ps Nanciswell - when you say high dose p5p, what kind of dose do yo mean? And did you do mutaflor for the E. coli?
  13. SickOfSickness

    SickOfSickness Senior Member

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    I have kidney area pain. An ultrasound showed nothing abnormal with my kidneys.

    I have two types. The first is an ache on both sides, and now I believe it is from my lower ribs. I have pain and tenderness around other parts of my ribcage too.

    The occasional sharp pain I have can last for hours and days IIRC. I haven't worked out why it happens or what it could be.
  14. nanciswell

    nanciswell

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    Sian ... Sorry long time .. I found taking at least 100mg P5p helped the pain alot.. I had tried mutaflor but cannot remember at what point ? I had no changes on the mutaflor. I found help for the kidney pain also using homeopathic ecoli and also a kidney homeopathic specific for mercury in the kidneys by Kroeger Vibropathics

    I am still having problems ... Still convinced the low oxalate is one of a culprits in the kidney pain.. . I have been detoxing ox for two years now .. , treating my bad intestinal tract. etc making small improvments.. hopeful . Recently I have had a chronic return to kidney pain . It got worse with another bacterial problem after taking a soil based probiotic called Prescription Assist . I also have a diseased colon and since taking the PA my colon along with my kidneys are alot worse.. There is one partiuclar fungi in the PA that is related to colon problems but have yet to research any connections to the kidneys ....
    sianrecovery likes this.
  15. sianrecovery

    sianrecovery Senior Member

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    Interesting Nanc, thank you. Prescript Assist, which I took after reading Ken Larssen's website, made me pretty poorly too. I never really know when that kind of effect should be tolerated and when it's a bad sign. I stopped them, anyway. When you say 'low oxalate is one of the culprits', do you mean oxalate should be raised?

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