Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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Keratoconis Question

Discussion in 'Connective Tissue Disorders/Ehlers-Danlos Syndrome' started by VeganMonkey, Dec 8, 2014.

  1. VeganMonkey

    VeganMonkey Senior Member

    Anyone with keratokonis here? Have you had surgery for it? I was told to get a cornea transplant but I researched it a bit and everywhere people with EDS say it didn't go well for them. I read a book about EDS and eye conditions and corneal collagen cross-linking was suggested as better option. Has anyone gotten this done?
  2. SDSue

    SDSue Southeast

    If you are unable to get good vision from glasses or regular contact lenses, a very good option for the interim while you consider surgery is scleral contact lenses. Here is a summary article.

    Scleral lenses are making a comeback in the US, but I don't know about Australia. Best of luck to you!
    Sushi likes this.

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